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  1. M

    bad Dr. Visit

    First I want to thank everyone for your inputs and encouragement. The docs concern was no one would take me because of liver cirrosis. However, I may not have mentioned that my LFT's are just a hair away from normal and have been stable for almost 15 years. I had my spleen removed and a shunt...
  2. M

    bad Dr. Visit

    First I want to thank everyone for your inputs and encouragement. The docs concern was no one would take me because of liver cirrosis. However, I may not have mentioned that my LFT's are just a hair away from normal and have been stable for almost 15 years. I had my spleen removed and a shunt...
  3. M

    bad Dr. Visit

    First I want to thank everyone for your inputs and encouragement. <br /> <br />The docs concern was no one would take me because of liver cirrosis. However, I may not have mentioned that my LFT's are just a hair away from normal and have been stable for almost 15 years. I had my spleen removed...
  4. M

    bad Dr. Visit

    Thank you for the replies. I may take the advice of just disappearing for a day or two with my wife. I've been thinking of doing that anyway. Erin, thank you for posting. I am sorry about your situation as I am mine. I guess it sucks to be us and it sucks to have CF. Hopefully you are qualified...
  5. M

    bad Dr. Visit

    Thank you for the replies. I may take the advice of just disappearing for a day or two with my wife. I've been thinking of doing that anyway. Erin, thank you for posting. I am sorry about your situation as I am mine. I guess it sucks to be us and it sucks to have CF. Hopefully you are qualified...
  6. M

    bad Dr. Visit

    Thank you for the replies. I may take the advice of just disappearing for a day or two with my wife. I've been thinking of doing that anyway. <br /> <br />Erin, thank you for posting. I am sorry about your situation as I am mine. I guess it sucks to be us and it sucks to have CF. Hopefully you...
  7. M

    bad Dr. Visit

    I've had a crappy day at the doc today. Lately I've been feeling kind of blah. I've felt tight and coughing more. I went on home IV a few weeks ago. I feel better but my PFT is 50% rather then the normal. The doc has decided this is my new baseline after several similar tests. On top of this, I...
  8. M

    bad Dr. Visit

    I've had a crappy day at the doc today. Lately I've been feeling kind of blah. I've felt tight and coughing more. I went on home IV a few weeks ago. I feel better but my PFT is 50% rather then the normal. The doc has decided this is my new baseline after several similar tests. On top of this, I...
  9. M

    bad Dr. Visit

    I've had a crappy day at the doc today. Lately I've been feeling kind of blah. I've felt tight and coughing more. <br /> <br />I went on home IV a few weeks ago. I feel better but my PFT is 50% rather then the normal. The doc has decided this is my new baseline after several similar tests. On...
  10. M

    A Good CF Center/ Doctor

    I have two good doctors. One is an internal medicine doc and he has his areas that he is very good with. However, when it comes to understanding having to work around life events or work, he is not understanding. He believes you can drop whatever you are doing and immediately put CF at the top...
  11. M

    A Good CF Center/ Doctor

    I have two good doctors. One is an internal medicine doc and he has his areas that he is very good with. However, when it comes to understanding having to work around life events or work, he is not understanding. He believes you can drop whatever you are doing and immediately put CF at the top...
  12. M

    A Good CF Center/ Doctor

    I have two good doctors. One is an internal medicine doc and he has his areas that he is very good with. However, when it comes to understanding having to work around life events or work, he is not understanding. He believes you can drop whatever you are doing and immediately put CF at the top...
  13. M

    Disability....Working...$$$$

    Depending on the amount of money you make and the type of disability you receive, depends on how much you can make. There are some rules in the SSI and SSDI rules depending on which you receive about how much you can make and how much is counted against you. If it is not a lot of money, you may...
  14. M

    Disability....Working...$$$$

    Depending on the amount of money you make and the type of disability you receive, depends on how much you can make. There are some rules in the SSI and SSDI rules depending on which you receive about how much you can make and how much is counted against you. If it is not a lot of money, you may...
  15. M

    Disability....Working...$$$$

    Depending on the amount of money you make and the type of disability you receive, depends on how much you can make. There are some rules in the SSI and SSDI rules depending on which you receive about how much you can make and how much is counted against you. If it is not a lot of money, you may...
  16. M

    approved drugs with eflow?

    Other then Cayston, what has been approved for use with eflow technology? Specifically I am looking for Hyper-saline and Albuteral/saline mix. My doc is having issues with wanting to prescribe eflow because of a lack of approval. However, I do have the Altera which is very similar if not the...
  17. M

    approved drugs with eflow?

    Other then Cayston, what has been approved for use with eflow technology? Specifically I am looking for Hyper-saline and Albuteral/saline mix. My doc is having issues with wanting to prescribe eflow because of a lack of approval. However, I do have the Altera which is very similar if not the...
  18. M

    approved drugs with eflow?

    Other then Cayston, what has been approved for use with eflow technology? Specifically I am looking for Hyper-saline and Albuteral/saline mix. My doc is having issues with wanting to prescribe eflow because of a lack of approval. However, I do have the Altera which is very similar if not the...
  19. M

    approved drugs with eflow?

    Other then Cayston, what has been approved for use with eflow technology? Specifically I am looking for Hyper-saline and Albuteral/saline mix. My doc is having issues with wanting to prescribe eflow because of a lack of approval. However, I do have the Altera which is very similar if not the...
  20. M

    approved drugs with eflow?

    Other then Cayston, what has been approved for use with eflow technology? <br /> <br />Specifically I am looking for Hyper-saline and Albuteral/saline mix. <br /> <br />My doc is having issues with wanting to prescribe eflow because of a lack of approval. <br /> <br />However, I do have the...
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