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Jaden will be having sinus surgery on June 25th at Childrens in Pittsburgh. I searched about it here but what do I need to be prepared for as far a recovery goes?? We aren't sure if she'll be in overnight or not. She is 3 soon to be 4 in July.

Jaden has clinic tomorrow and we have a wind chill warning and all our schools are closed as the temps are to be in the -20s tomorrow. I am going to call to see if a can reschedule but I don't want it to be to long. She is good and haven't had any issues but I don't want to wait to long between...

A friend of mine works for our local paper and wanted to do a story on Jaden to raise awareness as he knew nothing about CF when he found our that she tested postive for it. It took some time to say yes. I was worried about how people would react and how kids would act towards Zack. Since the...

HI I've posted only a few times and lurk mostly but like to become more active so I thought I'd reintroduce myself. I'm Chrissy mom to Jaden who has CF, she is 2 and doing very well health wise. We have only culture PA once since her getting diagnosed (at 8 months). We have had no lung issues...

yellow stools Today Jaden has had really light yellow, sloppy and kinda stringy stools. Can it be from all the new stuff I'm giving her?I have a call in but it is after hours now and they'll return it tomorrow. Just wondering. I've made me some milk up with the powdered milk in and and did use...

Jaden had tested postivie for pseudo and today we found out is was the Mucoid kind. He said it was light strain and there is a 80% chance it isn't there. Hopefully it is gone, i'll have to wait for the culture to come back. Now her weight they aren't happy with and I know a bit of it is my...

Just wondering how ya get the little ones to sit while doing the neb treatments. A friend suggested her car seat (she is 16months) And that keeps her in one place but she is still not happy. We have tried Barney, who she loves during her CPT. We have tried all kinds of things. She usually is...

I have tried and tried over and over to make them understand and I think they feel I am picking on them about this. My husband does not want them here cause they both smell so bad from smoking and everytime they show up she starts sneezing and coughing. No one smokes in my house and they know...

My daughter Jaden who is 15 months old has CF and I have a 10 year son Zack who does not. I've been looking for a place to talk and share and get advice. Jaden was diagnosed at 8 months and has been doing great. This week we got a call she tested postive for the pseudomonas bacteria and have...