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Well, I was told by the Dr. that they don't like to place the button first because they tend not to heal as well as the tube which seemed reasonable so we went ahead with the G-tube... big mistake!!! I have no idea what these Docs are thinking?!?!?! The friggin' tube sticks so far out...

Well, I was told by the Dr. that they don't like to place the button first because they tend not to heal as well as the tube which seemed reasonable so we went ahead with the G-tube... big mistake!!! I have no idea what these Docs are thinking?!?!?! The friggin' tube sticks so far out...

Well, I was told by the Dr. that they don't like to place the button first because they tend not to heal as well as the tube which seemed reasonable so we went ahead with the G-tube... big mistake!!! I have no idea what these Docs are thinking?!?!?! The friggin' tube sticks so far out...

Thanks for the replies everyone. Sorry 'bout the confusion; we weren't told that Sean can't swim, in fact he was specifically told he could but he has decided he won't. We discussed using a swim shirt but he feels it will be too obvious especially until he gets his "button". Of course that won't...

Thanks for the replies everyone. Sorry 'bout the confusion; we weren't told that Sean can't swim, in fact he was specifically told he could but he has decided he won't. We discussed using a swim shirt but he feels it will be too obvious especially until he gets his "button". Of course that won't...

Thanks for the replies everyone. Sorry 'bout the confusion; we weren't told that Sean can't swim, in fact he was specifically told he could but he has decided he won't. We discussed using a swim shirt but he feels it will be too obvious especially until he gets his "button". Of course that won't...

<P>Yep, it's true. Sean is getting a G-tube next week. No one is happy about it least of all, Sean. He's sworn up and down that he will be giving up all activities and that without a doubt, I am ruining his life. Of course I know I'm not ruining his life, we're just trying to get him back on the...

<P>Yep, it's true. Sean is getting a G-tube next week. No one is happy about it least of all, Sean. He's sworn up and down that he will be giving up all activities and that without a doubt, I am ruining his life. Of course I know I'm not ruining his life, we're just trying to get him back on the...

<P>Yep, it's true. Sean is getting a G-tube next week. No one is happy about it least of all, Sean. He's sworn up and down that he will be giving up all activities and that without a doubt, I am ruining his life. Of course I know I'm not ruining his life, we're just trying to get him back on the...

Here's a link to the article run in our local paper regarding Teen Sibling Advocacy Day, <a target=_blank class=ftalternatingbarlinklarge href="http://heritage.com/articles/2010/07/18/saline_reporter/news/doc4c43a309e23ad256293376.txt">Neil goes to DC</a> The picture from left to right; Neil's...

Here's a link to the article run in our local paper regarding Teen Sibling Advocacy Day, <a target=_blank class=ftalternatingbarlinklarge href="http://heritage.com/articles/2010/07/18/saline_reporter/news/doc4c43a309e23ad256293376.txt">Neil goes to DC</a> The picture from left to right; Neil's...

Here's a link to the article run in our local paper regarding Teen Sibling Advocacy Day, <a target=_blank class=ftalternatingbarlinklarge href="http://heritage.com/articles/2010/07/18/saline_reporter/news/doc4c43a309e23ad256293376.txt">Neil goes to DC</a> <br /> <br />The picture from left to...

Hi All, Just wanted to let you know that our older son Neil is heading to DC to represent his brother, Sean, and everyone else with CF as part of the CFF's Teen Sibling Advocacy day. There are about 20 teen siblings participating and they will each be speaking to several Congressmen, Senators...

Hi All, Just wanted to let you know that our older son Neil is heading to DC to represent his brother, Sean, and everyone else with CF as part of the CFF's Teen Sibling Advocacy day. There are about 20 teen siblings participating and they will each be speaking to several Congressmen, Senators...

Hi All, <br /> <br />Just wanted to let you know that our older son Neil is heading to DC to represent his brother, Sean, and everyone else with CF as part of the CFF's Teen Sibling Advocacy day. <br /> <br />There are about 20 teen siblings participating and they will each be speaking to...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...

Heading out of town for Easter Break and I need a "refresh" on what to do with Sean's Nebulizer, HS, and Pulmozyme. Obviously we'll be bringing these as carry-on so I need some advice about how to get them on the plane. I'm mostly concerned with the liquids. Do we need a Dr's note? Original...