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Hi, I was wondering if anyone knew ---- If you start working and get cut off of SSI, then you get real sick after so many years, and can't work anymore do you have to go through the whole process of reapplying and waiting to get approved or do they automatically give it to you since youve been...

Does anyone know how the GHPP system works? Do they cut you off if you start working? Is it only for people on SSI?

I want to know, for those of you who work full time, how are you dealing with that. Does it make life easier or harder? I just got my first full time job, I start Monday and am kind of nervous, cause Ive been on SSI for years and I know they are going to cut me off. Im worried about getting...

What are some of the most difficult situations everyone has had to deal with in their life because of CF, whether it be being picked on in school, or self esteem issues, ect.... I think the hardest thing that Ive ever had to deal with is the way people treat me when I was in school, mostly High...

Ive been on here for a couple months now and there are topics on here that start off interesting then an argument breaks out. I mean it defeats the whole purpose of what the original poster posted and wanted to talk about and it just makes people mad, right? Like we dont have enough problems...

I have been on prednizone for 10 years now, daily. It's great! just wondering if Im the only one, cause my new CF specialist was surprised to find that Ive been on it for so long

How will everyone react when they find a cure???!!!! Honestly, I dont know what I would do.

Im sure many of you, like me worry about when were gonna die and we all get scared thinking about it. I'd like to know how you all deal with these thoughts. When I think about when I am going to die, I think of the people Im leaving behind, mainly my daughter. But then again I also have...

Hi everyone I have a concern, Lately I have had a lot of gas and problems with going to the bathroom. I have never had THIS much trouble before. Im wondering if you all have any suggestions, because I know if I tell my doc all he's gonna do is refer me to another doctor who will just examine...

Does anyone know how a person with CF gets Diabetes. It runs in my family so Im kind of scared because I know, A lot of people with CF gets it eventually. Does anyone know why it is so commen with CFers though?

I was wondering if anyone knew about GHPP.(Genetic Handicaped People's Program) When I got on SSI and Medi-Cal they wouldnt cover some of my meds with just Medi-Cal alone so I was signed up for this and they pay for what Medi-Cal doesn't. Just Informing everyone on here. If you have questions...

What does everyone think about working even though you qualify for SSI/Disability? Me, Im the type that wants to do something with my life besides sitting around being sick. I am now on SSI but am a trained Vet Assistant and I am looking for a job, but there is always the issue of "what if I...

Hi, I want to hear some of your experiences you've had in abortions and why you did them. When I first got pregnant I aborted it thinking it would kill me and/or my baby if I had it (mainly because of what people were telling me) then 5 months ago I had a healthy baby girl. I do have some...

I wanna know what everyone does to keep their lungs in shape, besides the meds and chest therapy, and does it work?

Hi I would really like a pen pal, because I've never actually talked to someone with CF before and it would just be really nice to connect with someone who has that in commen