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  1. M

    Anyone feel lightheaded when sick?

    Sometimes when I have a cold, even though my O2 sat is fine, my heart rate does go up, sometimes into the 120s if I am at work and running around, and I will occasionally get a little light-headed. I am also a nurse, and find that sometimes I push myself too much as well. I will work a 12-hour...
  2. M

    Rib Pain

    Over the past 3-4 days, I have started having pain in my mid back on the left side. It has gradually gotten worse, and now is on my left side, about mid rib cage and more in front. I went to my primary care physician yesterday, and they did a chest and a rib X-ray, which were fine. She said that...
  3. M

    C section v natural birth

    I agree that you should get a second opinion. I delivered my now 2-year old naturally. I was very adamant about not wanting a c-section unless absolutely necessary. I am a nurse and have seen how painful abdominal incisions can be, and obviously as much as we have to cough, I wanted to avoid the...
  4. M

    Breastfeeding?

    I breastfed my now 2-year old exclusively for 2 months, and then started supplementing with formula because my supply couldn't keep up with her. I stopped breastfeeding around 5 months, not by choice. My supply just kept dropping until it just wasn't worth it anymore. I am completely pancreatic...
  5. M

    Help!

    I have had episodes of hemoptysis several times over the last couple of years. For me, it seems to be somewhat random, but I have had a lot of increased congestion, therefore more coughing lately, and I did have an episode a couple of weeks ago. My doc has never seemed to be overly concerned...
  6. M

    Rheumatoid Arthritis

    I was wondering if there is anyone on here that has Rheumatoid Arthritis in addition to CF. I was having some joint pain a while back, went to a Rheumatologist, who did some lab work, diagnosed it as Palindromic Rheumatism, but said that based on my lab work, I will develop RA. I was started on...
  7. M

    Pregnant! Now what?

    Congratulations! When I was pregnant, my dr took me off of Tobi, but I continued albuterol, which is the same as Pro Air, if I remember right. I also continued Pulmozyme, Advair, and Hypertonic saline, and delivered a healthy baby girl at 37 &1/2 weeks, who is now 2 years old. It will be very...
  8. M

    Chest Congestion

    Hello everyone! I have noticed over the past couple of weeks that I have had increased chest congestion in the mornings. It is to the point that for up to 2 hours every morning, I am coughing constantly until my chest "loosens up." For the rest of the day, I will usually just cough...
  9. M

    Pain while doing vest???

    I remember it being somewhat painful when I first started it (first got one at about age 10). If he has had the bronchoscopy recently, the tissue may still be pretty inflamed. Other than that, I think it's just something you have to get used to. Maybe lower the frequency or pressure as the...
  10. M

    Pregnancy & CF..

    Hello, I think in general it can be more difficult for women with CF to conceive, I think mainly because of the increased thickness of the cervical mucus. Also, nutrition does play a role in the menstrual cycle, so women who have a hard time keeping weight on may have a more difficult time if...
  11. M

    Pregnancy & CF..

    Hello, I think in general it can be more difficult for women with CF to conceive, I think mainly because of the increased thickness of the cervical mucus. Also, nutrition does play a role in the menstrual cycle, so women who have a hard time keeping weight on may have a more difficult time if...
  12. M

    Implantation Bleeding?

    It does sound like a possibility of being implantation bleeding, but you are right that there really isn't anything you can do but wait. My first symptoms of pregnancy (other than having a positive pregnancy test) were sore, swollen breasts, but that didn't start until a couple of weeks after I...
  13. M

    Using Vest while pregnant

    I used my vest pretty much until I delivered my daughter at 37 & 1/2 weeks. I have a vest that the straps adjusted, so as my belly got bigger, I just adjusted the straps. The most annoying this was that the vest kind of rode-up when my belly got really big. Just a funny anecdote: My first...
  14. M

    Bowel Movement Issues

    Hello. I am not sure about the bleeding, but I remember that I got pretty constipated in the 1st trimester of my pregnancy. I would definitely encourage you to take the miralax everyday and make sure to drink plenty of water. I wish I had more advice about the bleeding. I would just keep close...
  15. M

    Gynecologist / OBGYN

    My CF doc wanted me to see a high risk OB, and also a Maternal-Fetal specialist. This was quite inconvenient, as the closest of these to where we live is about 2.5 hours away. I had monthly ultrasounds until 32 weeks, then weekly. I completely understood why they did this, but it ended up...
  16. M

    Breastfeeding and CF

    I was able to breastfeed my now 5 month old daughter for about 2 months. The only medications that I had to stop were the same one's I stopped because of the pregnancy. I was surprised to learn that there are actually very few medications that aren't recommended while breastfeeding. I strongly...
  17. M

    30 weeks Pregnant

    I delivered my daughter at 37 &1/2 weeks when I went into labor spontaneously. I had very few problems with the pregnancy except an exacerbation that I did have to go on IV antibiotics for at about 19 weeks. Thankfully, my daughter was perfectly healthy, didn't need any oxygen. She was a little...
  18. M

    30 weeks Pregnant

    I delivered my daughter at 37 &1/2 weeks when I went into labor spontaneously. I had very few problems with the pregnancy except an exacerbation that I did have to go on IV antibiotics for at about 19 weeks. Thankfully, my daughter was perfectly healthy, didn't need any oxygen. She was a little...
  19. M

    Pulmozyme

    I have been on Pulmozyme pretty much since it came out. I was probably around 8 or 9 years old. Have never had any problems with it. It is one of the few meds that I take that actually makes me feel better immediately rather than some that are more for the long-term like TOBI. I take it once a...
  20. M

    Pulmozyme

    I have been on Pulmozyme pretty much since it came out. I was probably around 8 or 9 years old. Have never had any problems with it. It is one of the few meds that I take that actually makes me feel better immediately rather than some that are more for the long-term like TOBI. I take it once a...
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