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I need help. I have a 2 1/2 year old daughter with CF who has done well with eating all this time. My issue is the people caring for her. I need to be able to tell them exactly how to dose the creon. MD says take 4 with meals, 2-3 with snacks. She's on creon 6. I usually give her 2 to start a...

I need help. I have a 2 1/2 year old daughter with CF who has done well with eating all this time. My issue is the people caring for her. I need to be able to tell them exactly how to dose the creon. MD says take 4 with meals, 2-3 with snacks. She's on creon 6. I usually give her 2 to start a...

I need help. I have a 2 1/2 year old daughter with CF who has done well with eating all this time. My issue is the people caring for her. I need to be able to tell them exactly how to dose the creon. MD says take 4 with meals, 2-3 with snacks. She's on creon 6. I usually give her 2 to start a...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

I might be a little late with this, but I wanted to weigh in. I am very confident in my CF clinic which is held every Monday afternoon. When we first started going we were nervous about being in the waiting room (our CF doc is in a pulmonologist group and he's the only peds pulm), but then...

My daughter has been on HTS twice a day since she was about 3 months old, she is now a little over 2 years old. She has never had any issues with it and I truly believe it has helped her stay healthy.

My daughter has been on HTS twice a day since she was about 3 months old, she is now a little over 2 years old. She has never had any issues with it and I truly believe it has helped her stay healthy.

My daughter has been on HTS twice a day since she was about 3 months old, she is now a little over 2 years old. She has never had any issues with it and I truly believe it has helped her stay healthy.

We're kind of new to the CF world and I am always worried about my daughter getting enough calories.  While searching around on the internet I came across something called Benecalorie.  It looks like its made by Nestle.  Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g of...

We're kind of new to the CF world and I am always worried about my daughter getting enough calories. While searching around on the internet I came across something called Benecalorie. It looks like its made by Nestle. Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g of...

<BR>We're kind of new to the CF world and I am always worried about my daughter getting enough calories. While searching around on the internet I came across something called Benecalorie. It looks like its made by Nestle. Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g...

We're kind of new to the CF world and I am always worried about my daughter getting enough calories.  While searching around on the internet I came across something called Benecalorie.  It looks like its made by Nestle.  Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g of...

We're kind of new to the CF world and I am always worried about my daughter getting enough calories. While searching around on the internet I came across something called Benecalorie. It looks like its made by Nestle. Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g of...

<BR>We're kind of new to the CF world and I am always worried about my daughter getting enough calories. While searching around on the internet I came across something called Benecalorie. It looks like its made by Nestle. Anyway its liquid and comes in 1.5 oz packs and has 330 calories and 7 g...

Does it ever get better? We never have a week of normal stools and its very frustrating. She'll go from having 1 large formed stool for 1-2 days to nothing for a day to several somewhat loose stools for a day. None of them are greasy and she doesn't seem uncomfortable. I just don't know what...

Does it ever get better? We never have a week of normal stools and its very frustrating. She'll go from having 1 large formed stool for 1-2 days to nothing for a day to several somewhat loose stools for a day. None of them are greasy and she doesn't seem uncomfortable. I just don't know what...