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Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...

Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...

Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...

Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. What are the chances he will get...

Patrick was tested for all 1500 mutations, not sure if it was the Ambry test. <br /> <br />He is still getting albuteral treatments and Pulmacort twice a day w/the vest. The Dr did want him on pulmozyme but the insurace will not ok it because he has not been diagnosed w/CF. <br /> <br />What are...

We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.

We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.

We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.

We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. The test for PCD also came back negative. I am glad I found this sight it was very helpful.

We found out this week that my son does NOT have CF <img src="i/expressions/face-icon-small-smile.gif" border="0"> which is great news. I just wish we knew what is going on with him. <br /> <br />The test for PCD also came back negative. <br />I am glad I found this sight it was very helpful.

my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...

my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...

my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...

my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will not ok...

my son gets on the bus @ 7:00AM and gets off the bus by about 4:00 during the school year. <br />He dose Albuteral 3 times a day W/vest, and also dose pulmicort 2 times a day. Dr would like us to use Pulmazyme, but my son is waiting on genetic testing. So w/out a CF diagnoses our insurance will...

Patricks bronchoscopy w/ biopsy went well. He did not have any problems during his procedure. He did half to have some blow by oxygen. His o2 runs about 95%. without the oxygen his o2 would drop below 95%. They almost addmited him, but first gave him some med through his IV to dry up his lungs...

Patricks bronchoscopy w/ biopsy went well. He did not have any problems during his procedure. He did half to have some blow by oxygen. His o2 runs about 95%. without the oxygen his o2 would drop below 95%. They almost addmited him, but first gave him some med through his IV to dry up his lungs...

Patricks bronchoscopy w/ biopsy went well. He did not have any problems during his procedure. He did half to have some blow by oxygen. His o2 runs about 95%. without the oxygen his o2 would drop below 95%. They almost addmited him, but first gave him some med through his IV to dry up his lungs...

Patricks bronchoscopy w/ biopsy went well. He did not have any problems during his procedure. He did half to have some blow by oxygen. His o2 runs about 95%. without the oxygen his o2 would drop below 95%. They almost addmited him, but first gave him some med through his IV to dry up his lungs...

Patricks bronchoscopy w/ biopsy went well. He did not have any problems during his procedure. He did half to have some blow by oxygen. His o2 runs about 95%. without the oxygen his o2 would drop below 95%. They almost addmited him, but first gave him some med through his IV to dry up his lungs...