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me too! keep me updated!

I feel the same way. At my clinic I have asked about support groups and stuff and they say NO and tell me we are not supposed to meet so that wont work. They dont even have an online forum or anything to get to know others at the clinic which i think is a shame. I have known others with cf but...

I feel the same way. At my clinic I have asked about support groups and stuff and they say NO and tell me we are not supposed to meet so that wont work. They dont even have an online forum or anything to get to know others at the clinic which i think is a shame. I have known others with cf but...

I have this issue as well. I culture 1-3 strains of achromobacter and its resistant to everything except imapenum. Feel crappy all the time and have a low_grade fever that my docs say shouldn't be caused by the achromobacter so I'm getting the full workup for fever of unknown origin. I'd love to...

I have this issue as well. I culture 1-3 strains of achromobacter and its resistant to everything except imapenum. Feel crappy all the time and have a low_grade fever that my docs say shouldn't be caused by the achromobacter so I'm getting the full workup for fever of unknown origin. I'd love to...

I have the paragard iud and I loooove it! It lasts for 10 years and doesn't hve hormones so I can tlerate it. Be careful w any hormonal bc because antibiotics can cause it to be ineffective. I say condoms!!!!!! And iud!!!!

I have the paragard iud and I loooove it! It lasts for 10 years and doesn't hve hormones so I can tlerate it. Be careful w any hormonal bc because antibiotics can cause it to be ineffective. I say condoms!!!!!! And iud!!!!

i cant seem to find the facebook group can someone add me? my name is mary kathleen getz! thanks so much!

i cant seem to find the facebook group can someone add me? my name is mary kathleen getz! thanks so much!

i'm a big fan of marijuana - for pain, anxiety, depression, insomnia, nausea, lack of appetite and mucus expectoration. Eating/vaporizing is the way to go. I have a volcano and it really helps me clear the junk. my docs always say i "sound clear". been vaping since 2006 still have 75-90% fev1.

i'm a big fan of marijuana - for pain, anxiety, depression, insomnia, nausea, lack of appetite and mucus expectoration. Eating/vaporizing is the way to go. I have a volcano and it really helps me clear the junk. my docs always say i "sound clear". been vaping since 2006 still have 75-90% fev1.

I've taken up knitting because i often don't feel well enough to get out. It feels productive even though i'm kind of mindlessly knitting away. Just a thought!

I've taken up knitting because i often don't feel well enough to get out. It feels productive even though i'm kind of mindlessly knitting away. Just a thought!

I have chronic back pain along with migrating joint pain... without swelling. I would like to be included in any study you get put together! I also want to ask if any of you also have chronic low grade fever along with increased pain?

I have chronic back pain along with migrating joint pain... without swelling. I would like to be included in any study you get put together! I also want to ask if any of you also have chronic low grade fever along with increased pain?

i hope they come fast! So exciting! 

i hope they come fast! So exciting!

i hope they come fast! So exciting!

great video i can't wait to hear about the double df508 trials - i hope they are as successful as these!