Search results

  1. M

    Greatful?!?

    Sean, I know where your coming from and like absintheminded said unless you have CF you can't say anything other then comforting words. I however do have CF and know what you mean. I try to think positive sometimes and say im fortunate to have CF because if I didn't I wouldn't have met such...
  2. M

    Greatful?!?

    Sean, I know where your coming from and like absintheminded said unless you have CF you can't say anything other then comforting words. I however do have CF and know what you mean. I try to think positive sometimes and say im fortunate to have CF because if I didn't I wouldn't have met such...
  3. M

    Greatful?!?

    Sean, <br /> <br />I know where your coming from and like absintheminded said unless you have CF you can't say anything other then comforting words. I however do have CF and know what you mean. I try to think positive sometimes and say im fortunate to have CF because if I didn't I wouldn't...
  4. M

    med port

    I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time)...
  5. M

    med port

    I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time)...
  6. M

    med port

    I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time)...
  7. M

    med port

    Ports- I love it!! I could talk about them all day, they are so much nicer then PICC lines!! I actually had my nurse come out and access my port for me today. I'll try to explain it as best I can but it typically rest on the inside of your chest, below your clavicle and connects to your...
  8. M

    med port

    Ports- I love it!! I could talk about them all day, they are so much nicer then PICC lines!! I actually had my nurse come out and access my port for me today. I'll try to explain it as best I can but it typically rest on the inside of your chest, below your clavicle and connects to your...
  9. M

    med port

    Ports- I love it!! I could talk about them all day, they are so much nicer then PICC lines!! I actually had my nurse come out and access my port for me today. I'll try to explain it as best I can but it typically rest on the inside of your chest, below your clavicle and connects to your...
  10. M

    Does being extra salty make one itchy?

    Yes, I found that I can't wear pants if i decided to exercise because the salt makes me itch. Once I take a shower and run the salt off me it feels better, otherwise i sit and scratch and mark up my whole body.
  11. M

    Does being extra salty make one itchy?

    Yes, I found that I can't wear pants if i decided to exercise because the salt makes me itch. Once I take a shower and run the salt off me it feels better, otherwise i sit and scratch and mark up my whole body.
  12. M

    Does being extra salty make one itchy?

    Yes, I found that I can't wear pants if i decided to exercise because the salt makes me itch. Once I take a shower and run the salt off me it feels better, otherwise i sit and scratch and mark up my whole body.
  13. M

    Liver Trouble Anyone?

    I do an I am on ursodiol 4X a day and i got for routine ultra sounds of my liver/spleen. I also have endoscopys of my stomach mostly my liver and biopsies of my liver as well. Routine blood tests keep my number in check and clinic visits. My numbers are high though and have gone up...
  14. M

    Liver Trouble Anyone?

    I do an I am on ursodiol 4X a day and i got for routine ultra sounds of my liver/spleen. I also have endoscopys of my stomach mostly my liver and biopsies of my liver as well. Routine blood tests keep my number in check and clinic visits. My numbers are high though and have gone up...
  15. M

    Liver Trouble Anyone?

    I do an I am on ursodiol 4X a day and i got for routine ultra sounds of my liver/spleen. I also have endoscopys of my stomach mostly my liver and biopsies of my liver as well. Routine blood tests keep my number in check and clinic visits. My numbers are high though and have gone up...
  16. M

    Ports and college Life

    I was in your position and i decided not to get a port because I was unsure of where i'd get it flushed every month away at school but then i ended up going into the ER at the local hospital and needed iv's and they(the IR) tried to put in a PICC and they couldnt get it after 4 tries so they...
  17. M

    Ports and college Life

    I was in your position and i decided not to get a port because I was unsure of where i'd get it flushed every month away at school but then i ended up going into the ER at the local hospital and needed iv's and they(the IR) tried to put in a PICC and they couldnt get it after 4 tries so they...
  18. M

    Ports and college Life

    I was in your position and i decided not to get a port because I was unsure of where i'd get it flushed every month away at school but then i ended up going into the ER at the local hospital and needed iv's and they(the IR) tried to put in a PICC and they couldnt get it after 4 tries so they...
  19. M

    15 y/o with cystic fibrosis, depression, and anxiety.

    Hey Megan, We have all been there and experienced exactly what you are going through and although I wish I could say it goes away, it won't because it is a part of life that we have to deal with. Learning to accept it and finding ways around the challenges in life is what you have to do...
  20. M

    15 y/o with cystic fibrosis, depression, and anxiety.

    Hey Megan, We have all been there and experienced exactly what you are going through and although I wish I could say it goes away, it won't because it is a part of life that we have to deal with. Learning to accept it and finding ways around the challenges in life is what you have to do...
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