med port

crystalina0814

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://s906.photobucket.com/albums/ac263/sommers_christina/">Pics of Christina's port</a>
<br />I have a few pics on photobucket of my port accessed and de-accessed.
<br />
<br />I promise you it is the same port....my accessed ones were taken in a mirror <img src="i/expressions/face-icon-small-wink.gif" border="0"> Hope this helps you see the difference!
 

mag6125

New member
You can do anything you would normally when it isn't accessed,swim, exercise,sleep on it, lift weights, whatever you want. Unlike most people I don't have mine in my upper chest because I didn't want it to be seen all the time. My surgeon was awesome and was able to put it lower on my side/rib area so make sure you explore all your options for location! Now the only time anyone can see it is if I'm in a bathing suit. Its sore for a couple weeks after having it placed but honestly its sooo much better than piccs and I loved piccs before! After you develop some scar tissue over the site you don't even know its there and for me when I have it accessed it hurts less than a shot, just a small prick. It makes life so much easier, I put off getting one as long as I possibly could and honestly I wish I would have done it sooner!
 

mag6125

New member
You can do anything you would normally when it isn't accessed,swim, exercise,sleep on it, lift weights, whatever you want. Unlike most people I don't have mine in my upper chest because I didn't want it to be seen all the time. My surgeon was awesome and was able to put it lower on my side/rib area so make sure you explore all your options for location! Now the only time anyone can see it is if I'm in a bathing suit. Its sore for a couple weeks after having it placed but honestly its sooo much better than piccs and I loved piccs before! After you develop some scar tissue over the site you don't even know its there and for me when I have it accessed it hurts less than a shot, just a small prick. It makes life so much easier, I put off getting one as long as I possibly could and honestly I wish I would have done it sooner!
 

mag6125

New member
You can do anything you would normally when it isn't accessed,swim, exercise,sleep on it, lift weights, whatever you want. Unlike most people I don't have mine in my upper chest because I didn't want it to be seen all the time. My surgeon was awesome and was able to put it lower on my side/rib area so make sure you explore all your options for location! Now the only time anyone can see it is if I'm in a bathing suit. Its sore for a couple weeks after having it placed but honestly its sooo much better than piccs and I loved piccs before! After you develop some scar tissue over the site you don't even know its there and for me when I have it accessed it hurts less than a shot, just a small prick. It makes life so much easier, I put off getting one as long as I possibly could and honestly I wish I would have done it sooner!
 
K

Keepercjr

Guest
I think a port is one of those things that many wish they had done sooner. I know for my brother, my parents put it off for a long time but once they did it, it was one of the best decisions they made for him (he died when he was 13). I got a port in 2001 even though I was only getting IVs once or twice a year. I was a VERY hard stick and it would take many many tries for a picc, my veins would spasm when we removed the picc, and once they even accidently put a picc in my artery and we didn't realize it till the next day (big medical error!! and they all had to go to training again).

I'm super glad I got my port and am sill very happy to have it even though I haven't needed it for CF reasons for 6 years. I have had a few procedures and even got really sick and was on meds for 2 days when I had my gallbladder out and a blocked bile duct. It has really come in handy.

I do everything with it and nobody knows I have anything there.
 
K

Keepercjr

Guest
I think a port is one of those things that many wish they had done sooner. I know for my brother, my parents put it off for a long time but once they did it, it was one of the best decisions they made for him (he died when he was 13). I got a port in 2001 even though I was only getting IVs once or twice a year. I was a VERY hard stick and it would take many many tries for a picc, my veins would spasm when we removed the picc, and once they even accidently put a picc in my artery and we didn't realize it till the next day (big medical error!! and they all had to go to training again).

I'm super glad I got my port and am sill very happy to have it even though I haven't needed it for CF reasons for 6 years. I have had a few procedures and even got really sick and was on meds for 2 days when I had my gallbladder out and a blocked bile duct. It has really come in handy.

I do everything with it and nobody knows I have anything there.
 
K

Keepercjr

Guest
I think a port is one of those things that many wish they had done sooner. I know for my brother, my parents put it off for a long time but once they did it, it was one of the best decisions they made for him (he died when he was 13). I got a port in 2001 even though I was only getting IVs once or twice a year. I was a VERY hard stick and it would take many many tries for a picc, my veins would spasm when we removed the picc, and once they even accidently put a picc in my artery and we didn't realize it till the next day (big medical error!! and they all had to go to training again).
<br />
<br />I'm super glad I got my port and am sill very happy to have it even though I haven't needed it for CF reasons for 6 years. I have had a few procedures and even got really sick and was on meds for 2 days when I had my gallbladder out and a blocked bile duct. It has really come in handy.
<br />
<br />I do everything with it and nobody knows I have anything there.
 

ej0820

New member
Thanks for the pics, christina!!

Wow, caroline, you got your port even though you weren't on IVs very frequently? How did it go? Is there a bigger chance of it clotting with non-use (even with proper flushing)? Were your doctors hesitant at all to let you have it done, as you seemed to be on IVs rather seldom?

Your situation sounds like me. I am always relieved to have a PICC put in, just because I blow EVERY IV within about two hours, no matter the medication. I am a very hard stick, too. There's only one person I even allow to try to get an IV in me anymore because it's sooo hard (my pulmo seems to be an IV placing genius). However, PICC placements are difficult, too. I always have to go down to radiology (bed side nurses cannot get 'em in anymore). From there, it usually takes two tries with about three different people, both arms, and black and purple bruises up and down to successfully get a line in me. Because of THIS, I am TERRIFIED every time I go in for a PICC. This last time was so awful! It didn't even hurt that badly, and the radiologist that did it got it on the first try and did a pretty good job...that, unfortunately, did not prevent me from flipping out. I was jumpy, scared, anxious, crying the WHOLE time. I was actually pretty embarrassed when it was all over and done with. When I got back to my room, my nurse gave me something for my anxiety and had me floating on a cloud for the rest of the day to calm me down.

This last placement was sooo bad, emotionally, that I would rather blow an IV every hour than lay conscious during a placement ever again. The radiologist even mentioned getting a port to me and I thought to myself, "No way, I'm only here once a year!" However, this is my second time on IVs this year...even if my average is 2 hospitalizations a year now, I didn't think it would make sense to get a port just yet.

Have any of you other guys gotten a port, even for infrequent IVs??
 

ej0820

New member
Thanks for the pics, christina!!

Wow, caroline, you got your port even though you weren't on IVs very frequently? How did it go? Is there a bigger chance of it clotting with non-use (even with proper flushing)? Were your doctors hesitant at all to let you have it done, as you seemed to be on IVs rather seldom?

Your situation sounds like me. I am always relieved to have a PICC put in, just because I blow EVERY IV within about two hours, no matter the medication. I am a very hard stick, too. There's only one person I even allow to try to get an IV in me anymore because it's sooo hard (my pulmo seems to be an IV placing genius). However, PICC placements are difficult, too. I always have to go down to radiology (bed side nurses cannot get 'em in anymore). From there, it usually takes two tries with about three different people, both arms, and black and purple bruises up and down to successfully get a line in me. Because of THIS, I am TERRIFIED every time I go in for a PICC. This last time was so awful! It didn't even hurt that badly, and the radiologist that did it got it on the first try and did a pretty good job...that, unfortunately, did not prevent me from flipping out. I was jumpy, scared, anxious, crying the WHOLE time. I was actually pretty embarrassed when it was all over and done with. When I got back to my room, my nurse gave me something for my anxiety and had me floating on a cloud for the rest of the day to calm me down.

This last placement was sooo bad, emotionally, that I would rather blow an IV every hour than lay conscious during a placement ever again. The radiologist even mentioned getting a port to me and I thought to myself, "No way, I'm only here once a year!" However, this is my second time on IVs this year...even if my average is 2 hospitalizations a year now, I didn't think it would make sense to get a port just yet.

Have any of you other guys gotten a port, even for infrequent IVs??
 

ej0820

New member
Thanks for the pics, christina!!
<br />
<br />Wow, caroline, you got your port even though you weren't on IVs very frequently? How did it go? Is there a bigger chance of it clotting with non-use (even with proper flushing)? Were your doctors hesitant at all to let you have it done, as you seemed to be on IVs rather seldom?
<br />
<br />Your situation sounds like me. I am always relieved to have a PICC put in, just because I blow EVERY IV within about two hours, no matter the medication. I am a very hard stick, too. There's only one person I even allow to try to get an IV in me anymore because it's sooo hard (my pulmo seems to be an IV placing genius). However, PICC placements are difficult, too. I always have to go down to radiology (bed side nurses cannot get 'em in anymore). From there, it usually takes two tries with about three different people, both arms, and black and purple bruises up and down to successfully get a line in me. Because of THIS, I am TERRIFIED every time I go in for a PICC. This last time was so awful! It didn't even hurt that badly, and the radiologist that did it got it on the first try and did a pretty good job...that, unfortunately, did not prevent me from flipping out. I was jumpy, scared, anxious, crying the WHOLE time. I was actually pretty embarrassed when it was all over and done with. When I got back to my room, my nurse gave me something for my anxiety and had me floating on a cloud for the rest of the day to calm me down.
<br />
<br />This last placement was sooo bad, emotionally, that I would rather blow an IV every hour than lay conscious during a placement ever again. The radiologist even mentioned getting a port to me and I thought to myself, "No way, I'm only here once a year!" However, this is my second time on IVs this year...even if my average is 2 hospitalizations a year now, I didn't think it would make sense to get a port just yet.
<br />
<br />Have any of you other guys gotten a port, even for infrequent IVs??
 

maddie256

New member
I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time).
Anyway, at the time I was only going in about 2,3 times a year. And coincidence that after I got my port I got sick alot and it was about 6 - 8 times a year. So I was so thrilled that I had my port, it saved me from all the PICC sticks.

If you are a hard stick and if you have built up scar tissue so PICC line placement is just a horrible experience I would look into a port, because honestly like Caroline said you might not need it for CF but it will really come in handy.
and its not hard to maintain, you don't know its there and just makes having CF and getting sick a little better.
 

maddie256

New member
I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time).
Anyway, at the time I was only going in about 2,3 times a year. And coincidence that after I got my port I got sick alot and it was about 6 - 8 times a year. So I was so thrilled that I had my port, it saved me from all the PICC sticks.

If you are a hard stick and if you have built up scar tissue so PICC line placement is just a horrible experience I would look into a port, because honestly like Caroline said you might not need it for CF but it will really come in handy.
and its not hard to maintain, you don't know its there and just makes having CF and getting sick a little better.
 

maddie256

New member
I was the same way, crying and shaking and being a complete wreck. After they tried 3 times to get a PICC in I actually decided to have a port done. I did actually have them put IV's for the 2 weeks just because I wanted to have my port placed and my hospital ( I was out of town at the time).
<br />Anyway, at the time I was only going in about 2,3 times a year. And coincidence that after I got my port I got sick alot and it was about 6 - 8 times a year. So I was so thrilled that I had my port, it saved me from all the PICC sticks.
<br />
<br />If you are a hard stick and if you have built up scar tissue so PICC line placement is just a horrible experience I would look into a port, because honestly like Caroline said you might not need it for CF but it will really come in handy.
<br />and its not hard to maintain, you don't know its there and just makes having CF and getting sick a little better.
 

ej0820

New member
when getting it put in, how long did the procedure take? is it an outpatient thing? how long was your recovery? how IS the recovery...really painful, difficult to move around/sleep, etc.?

I guess what I'm asking is, if I were to sign up for this, how many days of work/school would I most likely end up missing?

Do they typically put ports it when you're already in the hospital and needing IVs, or is it a procedure that isn't done unless you're "healthy"?

Again, THANKS guys for answering all my questions! You guys are my personal consultants, haha. This post was intended to just give me an idea what a port is all about, but now I am REALLY interested in its possibilities for me!
 

ej0820

New member
when getting it put in, how long did the procedure take? is it an outpatient thing? how long was your recovery? how IS the recovery...really painful, difficult to move around/sleep, etc.?

I guess what I'm asking is, if I were to sign up for this, how many days of work/school would I most likely end up missing?

Do they typically put ports it when you're already in the hospital and needing IVs, or is it a procedure that isn't done unless you're "healthy"?

Again, THANKS guys for answering all my questions! You guys are my personal consultants, haha. This post was intended to just give me an idea what a port is all about, but now I am REALLY interested in its possibilities for me!
 

ej0820

New member
when getting it put in, how long did the procedure take? is it an outpatient thing? how long was your recovery? how IS the recovery...really painful, difficult to move around/sleep, etc.?
<br />
<br />I guess what I'm asking is, if I were to sign up for this, how many days of work/school would I most likely end up missing?
<br />
<br />Do they typically put ports it when you're already in the hospital and needing IVs, or is it a procedure that isn't done unless you're "healthy"?
<br />
<br />Again, THANKS guys for answering all my questions! You guys are my personal consultants, haha. This post was intended to just give me an idea what a port is all about, but now I am REALLY interested in its possibilities for me!
 

lrbloms

New member
I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I was in weightlifting and sports even when it was accessed. I never let it slow me down. I am usually only on antibiotics 2 times a year but have varied up to 8 times in a year. So it has been a life saver for me.
 

lrbloms

New member
I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I was in weightlifting and sports even when it was accessed. I never let it slow me down. I am usually only on antibiotics 2 times a year but have varied up to 8 times in a year. So it has been a life saver for me.
 

lrbloms

New member
I am a port lover also. Mine is in my upper left chest. I have had it for almost 14 years. I access it myself and it saved me from 10 to 12 iv sticks each time an IV blew which was about every 8 hours or so. I also got my first port (in 1991) before PICC lines were popular. During high school, I was in weightlifting and sports even when it was accessed. I never let it slow me down. I am usually only on antibiotics 2 times a year but have varied up to 8 times in a year. So it has been a life saver for me.
 

crystalina0814

New member
I only needed ivs about 1-2 times a year my whole life. I got the port last fall just because my previous picc atempt was a failure. I had it done perfectly healthy, wide awake (my choice) and outpatient. It took about 25-30 min (I did take a adevent? anti-anxiety)and I was completely numb. I was pretty stocked up on vicodin and percocet for a few days. I would say after about 3 days I did not need pain-killer. I am a stomach sleeper and was back on my stomach after about 5-6 days. Stitches were removed after a week. It was a little tender for about a month afterwards, but nothing unbearable. Felt more like a bruise in my chest and ibprofin helped. I did go to a wedding 3 days after my port was placed and had a photoshoot 5 days later (I am a photographer).

It was worth ALL of this, and I would do it again.

I started culturing MRSA this past winter and have needed 4 iv treatments in 6 months...my port was a life saver!
 
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