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I dont know if you have tried Cayston yet. I nebulize Cayston every other month, alternating with the TOBI. I have found it helpful. My PFTs suck and baseline is around mid 50s now. I would try anything to get my PFTs up to the 60s again... that would be awesome... Cant remember last time i...

I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...

I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...

I just found out during a recent pelvic exam that I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Monday i have a colonoscopy and endorectal ultrasound and a biopsy will be taken then. They said the tumor...

I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?

I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?

I am on synthroid for my thyroid. Is there a connection between thyroid and CF? I also have a mass attached to my tailbone that they have yet to let me know if it is malignant or benign but is the size of a man's fist. Is there a connection between CF and rectal cancer?

I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...

I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...

I have a placard that i hang from my rear view mirror. Outside appearances I look okay. But, I cannot breathe much of the time and have to stop to catch my breath when I am sick. People still look at me, when I park there, like they wonder why i have one and the few times that people have said...

When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...

When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...

When I have a coughing jag and people look at like I have three heads, I just tell them I have Cystic Fibrosis. Seems like no one ever knows what it is, so I try to educate them, but usually to no avail. Some people associate it to be much like asthma, and I am sorry, but it isn't. I am not...

This has been an awful summer!!!!! I cannot breathe in outside most of the time. Luckily I work in air conditioning and have air conditioning in our house. This past weekend was especially bad with heat index of way over 100. I am so ready for fall it is not funny. I am glad to know that it...

This has been an awful summer!!!!! I cannot breathe in outside most of the time. Luckily I work in air conditioning and have air conditioning in our house. This past weekend was especially bad with heat index of way over 100. I am so ready for fall it is not funny. I am glad to know that it...

This has been an awful summer!!!!! I cannot breathe in outside most of the time. Luckily I work in air conditioning and have air conditioning in our house. This past weekend was especially bad with heat index of way over 100. I am so ready for fall it is not funny. I am glad to know that it...

I would call the doctor. But it is not unusual for me to have a high fever when i am on abx when i have an infection and am doing IVs. Just to be on the safe side, call the dr. Hope you get better soon.

I would call the doctor. But it is not unusual for me to have a high fever when i am on abx when i have an infection and am doing IVs. Just to be on the safe side, call the dr. Hope you get better soon.

I would call the doctor. But it is not unusual for me to have a high fever when i am on abx when i have an infection and am doing IVs. Just to be on the safe side, call the dr. Hope you get better soon.

Eat whatever you want, just compensate with insulin. Some of my coworkers were like, "oh you can't eat candy or cookies" I corrected them right away... .YES I CAN!! I don't restrict what I eat. I just shoot up on insullin, but not too much cuz the lows are awful!!. Good luck!!