Hi! My name is Jenny and I am brand new to this sight.
I am 35 years years old with CF. I was diagnosed as a baby, because I have an older brother with it.
I have a wonderful husband and an awesome set of twins, Hallie and Walker who are 6. Times are busy.
All through my growing up I was basically normal. I was never hospitalized, never had a vest and didn't even have to nebulize.
MAny people didn't even know that I had a disease. But the corner turned about 10 years ago. My lung capacity just kept decreasing, and then
I had to start the vest and nebulize. Just about 4 years ago I had to start IV's. And then in June 2005 my lung colapsed. And then it was down hill
and I decided to go on the list. I was on for 2 months when I got the call.
My doctor had told me all the things that could go wrong, but not all. I was asleep for 5 weeks and then I woke up. During that time I had uncontrolable blood
pressure and that made my toes black. They thought I would loose my toes for sure- But I DIDN'T! I also had quite a few strokes that affected my left side.
I am totally recovered physically, but I do have some things with my speech. But nobody notices except me. The trach was the worst thing. But after I woke up
I pushed foreward, and then they had to close a hole in my heart. But all that went well.
It has been 1 1/2 years post. I am doing awesome! If somebody would have told me that I would feel this good, I would have thought they would be lying.
I am able to do anything with my kids, which I couldn't do before. It feels like I don't even have CF. It is the most amazing thing!
Jenny
I am 35 years years old with CF. I was diagnosed as a baby, because I have an older brother with it.
I have a wonderful husband and an awesome set of twins, Hallie and Walker who are 6. Times are busy.
All through my growing up I was basically normal. I was never hospitalized, never had a vest and didn't even have to nebulize.
MAny people didn't even know that I had a disease. But the corner turned about 10 years ago. My lung capacity just kept decreasing, and then
I had to start the vest and nebulize. Just about 4 years ago I had to start IV's. And then in June 2005 my lung colapsed. And then it was down hill
and I decided to go on the list. I was on for 2 months when I got the call.
My doctor had told me all the things that could go wrong, but not all. I was asleep for 5 weeks and then I woke up. During that time I had uncontrolable blood
pressure and that made my toes black. They thought I would loose my toes for sure- But I DIDN'T! I also had quite a few strokes that affected my left side.
I am totally recovered physically, but I do have some things with my speech. But nobody notices except me. The trach was the worst thing. But after I woke up
I pushed foreward, and then they had to close a hole in my heart. But all that went well.
It has been 1 1/2 years post. I am doing awesome! If somebody would have told me that I would feel this good, I would have thought they would be lying.
I am able to do anything with my kids, which I couldn't do before. It feels like I don't even have CF. It is the most amazing thing!
Jenny