11 yr. old son going through some tuff times, need help.

[Housepharmacy]

Hi everyone,

I am new to this site. However, I am not new to dealing with CF. First I would like to explain my situation.

My wife and I have been married for 12 years now. We have 3 wonderful children. Abigail 14, Allan 11, and Austin 10. Allan is the only one with CF.

My son Allan was diagnosed with CF when he was 4mths old. He was diagnosed by his pediatrician who just happened to be the CF specialist at Children's hospital in Dallas. I guess we were lucky to catch it early. Unlike Allan's aunt, my wife's sister who passed away from CF at the age of 27 (they did not detect her CF until she was 10 years old - despite all the symptoms).

Sorry I got off topic a bit but what I mentioned might give you some insight with my son. My son and his aunt were very close and she passed away when he was about 4 years old. Allan has always been a 'worry wart', meaning he always looks at the gloomy side of things and dwells on them. I guess you can't blame him for it as one of his best friends (his aunt) actually died from this disease. Allan has grown depressed off and on and now has a G-tube put in a little over a year now. He takes his medication pretty regularly without too much fuss and I give him alot of credit for not arguing with his mother and I about doing his breathing treatments or being hooked up at night.


My son says he has no friends, but when my wife or I visit the school we see tons of kids talking with him and high fiveing him and laughing, so I kinda doubt this to be the case. The last year all he wants to do is stay inside and play video games. This last summer Allan was surprised to find two older kids down the street come to our door and want Allan to play football. He looked very thrilled and went right outside. He played for almost 2 hours and was laughing and having what appeared to be a good Ol'time. Then when Allan came into the house, he immediately went into negative mode and started saying "they never gave me the ball, and I never make touchdowns". My wife and I try to encourage him but he will have none of it. He just focuses on the bad things. I try and get him outside and play something but he is so unmotivated I do not know what to do for him.

The last 6 months my son has now had to deal with another condition on top of his CF. His neurologist has diagnosed him with Tourettes syndrome. His 'Ticks' are not terrible but they are definitely noticeable. He feels like everyone is making fun of him and of course this makes his ticks worse when he talks about it openly.

My mother use to tell me that I was a very negative kid all the time and I do remember being negative quit often when I was young. Perhaps he inherited this from me? I just hate seeing him like this. He talks to school counselors alot and I think it helps. I DO NOT want to put him on a medication for his moods, I know what those things can do and I do not want to see him a zombie on top of all this.

I understand I didn't really ask alot of questions but rather wanted to vent my frustrations. Any suggestions or comments?

Thanks for you reading <img src="">

 

[Housepharmacy]

Hi everyone,

I am new to this site. However, I am not new to dealing with CF. First I would like to explain my situation.

My wife and I have been married for 12 years now. We have 3 wonderful children. Abigail 14, Allan 11, and Austin 10. Allan is the only one with CF.

My son Allan was diagnosed with CF when he was 4mths old. He was diagnosed by his pediatrician who just happened to be the CF specialist at Children's hospital in Dallas. I guess we were lucky to catch it early. Unlike Allan's aunt, my wife's sister who passed away from CF at the age of 27 (they did not detect her CF until she was 10 years old - despite all the symptoms).

Sorry I got off topic a bit but what I mentioned might give you some insight with my son. My son and his aunt were very close and she passed away when he was about 4 years old. Allan has always been a 'worry wart', meaning he always looks at the gloomy side of things and dwells on them. I guess you can't blame him for it as one of his best friends (his aunt) actually died from this disease. Allan has grown depressed off and on and now has a G-tube put in a little over a year now. He takes his medication pretty regularly without too much fuss and I give him alot of credit for not arguing with his mother and I about doing his breathing treatments or being hooked up at night.


My son says he has no friends, but when my wife or I visit the school we see tons of kids talking with him and high fiveing him and laughing, so I kinda doubt this to be the case. The last year all he wants to do is stay inside and play video games. This last summer Allan was surprised to find two older kids down the street come to our door and want Allan to play football. He looked very thrilled and went right outside. He played for almost 2 hours and was laughing and having what appeared to be a good Ol'time. Then when Allan came into the house, he immediately went into negative mode and started saying "they never gave me the ball, and I never make touchdowns". My wife and I try to encourage him but he will have none of it. He just focuses on the bad things. I try and get him outside and play something but he is so unmotivated I do not know what to do for him.

The last 6 months my son has now had to deal with another condition on top of his CF. His neurologist has diagnosed him with Tourettes syndrome. His 'Ticks' are not terrible but they are definitely noticeable. He feels like everyone is making fun of him and of course this makes his ticks worse when he talks about it openly.

My mother use to tell me that I was a very negative kid all the time and I do remember being negative quit often when I was young. Perhaps he inherited this from me? I just hate seeing him like this. He talks to school counselors alot and I think it helps. I DO NOT want to put him on a medication for his moods, I know what those things can do and I do not want to see him a zombie on top of all this.

I understand I didn't really ask alot of questions but rather wanted to vent my frustrations. Any suggestions or comments?

Thanks for you reading <img src="">

 

[Housepharmacy]

Hi everyone,

I am new to this site. However, I am not new to dealing with CF. First I would like to explain my situation.

My wife and I have been married for 12 years now. We have 3 wonderful children. Abigail 14, Allan 11, and Austin 10. Allan is the only one with CF.

My son Allan was diagnosed with CF when he was 4mths old. He was diagnosed by his pediatrician who just happened to be the CF specialist at Children's hospital in Dallas. I guess we were lucky to catch it early. Unlike Allan's aunt, my wife's sister who passed away from CF at the age of 27 (they did not detect her CF until she was 10 years old - despite all the symptoms).

Sorry I got off topic a bit but what I mentioned might give you some insight with my son. My son and his aunt were very close and she passed away when he was about 4 years old. Allan has always been a 'worry wart', meaning he always looks at the gloomy side of things and dwells on them. I guess you can't blame him for it as one of his best friends (his aunt) actually died from this disease. Allan has grown depressed off and on and now has a G-tube put in a little over a year now. He takes his medication pretty regularly without too much fuss and I give him alot of credit for not arguing with his mother and I about doing his breathing treatments or being hooked up at night.


My son says he has no friends, but when my wife or I visit the school we see tons of kids talking with him and high fiveing him and laughing, so I kinda doubt this to be the case. The last year all he wants to do is stay inside and play video games. This last summer Allan was surprised to find two older kids down the street come to our door and want Allan to play football. He looked very thrilled and went right outside. He played for almost 2 hours and was laughing and having what appeared to be a good Ol'time. Then when Allan came into the house, he immediately went into negative mode and started saying "they never gave me the ball, and I never make touchdowns". My wife and I try to encourage him but he will have none of it. He just focuses on the bad things. I try and get him outside and play something but he is so unmotivated I do not know what to do for him.

The last 6 months my son has now had to deal with another condition on top of his CF. His neurologist has diagnosed him with Tourettes syndrome. His 'Ticks' are not terrible but they are definitely noticeable. He feels like everyone is making fun of him and of course this makes his ticks worse when he talks about it openly.

My mother use to tell me that I was a very negative kid all the time and I do remember being negative quit often when I was young. Perhaps he inherited this from me? I just hate seeing him like this. He talks to school counselors alot and I think it helps. I DO NOT want to put him on a medication for his moods, I know what those things can do and I do not want to see him a zombie on top of all this.

I understand I didn't really ask alot of questions but rather wanted to vent my frustrations. Any suggestions or comments?

Thanks for you reading <img src="">

 

[Housepharmacy]

Hi everyone,

I am new to this site. However, I am not new to dealing with CF. First I would like to explain my situation.

My wife and I have been married for 12 years now. We have 3 wonderful children. Abigail 14, Allan 11, and Austin 10. Allan is the only one with CF.

My son Allan was diagnosed with CF when he was 4mths old. He was diagnosed by his pediatrician who just happened to be the CF specialist at Children's hospital in Dallas. I guess we were lucky to catch it early. Unlike Allan's aunt, my wife's sister who passed away from CF at the age of 27 (they did not detect her CF until she was 10 years old - despite all the symptoms).

Sorry I got off topic a bit but what I mentioned might give you some insight with my son. My son and his aunt were very close and she passed away when he was about 4 years old. Allan has always been a 'worry wart', meaning he always looks at the gloomy side of things and dwells on them. I guess you can't blame him for it as one of his best friends (his aunt) actually died from this disease. Allan has grown depressed off and on and now has a G-tube put in a little over a year now. He takes his medication pretty regularly without too much fuss and I give him alot of credit for not arguing with his mother and I about doing his breathing treatments or being hooked up at night.


My son says he has no friends, but when my wife or I visit the school we see tons of kids talking with him and high fiveing him and laughing, so I kinda doubt this to be the case. The last year all he wants to do is stay inside and play video games. This last summer Allan was surprised to find two older kids down the street come to our door and want Allan to play football. He looked very thrilled and went right outside. He played for almost 2 hours and was laughing and having what appeared to be a good Ol'time. Then when Allan came into the house, he immediately went into negative mode and started saying "they never gave me the ball, and I never make touchdowns". My wife and I try to encourage him but he will have none of it. He just focuses on the bad things. I try and get him outside and play something but he is so unmotivated I do not know what to do for him.

The last 6 months my son has now had to deal with another condition on top of his CF. His neurologist has diagnosed him with Tourettes syndrome. His 'Ticks' are not terrible but they are definitely noticeable. He feels like everyone is making fun of him and of course this makes his ticks worse when he talks about it openly.

My mother use to tell me that I was a very negative kid all the time and I do remember being negative quit often when I was young. Perhaps he inherited this from me? I just hate seeing him like this. He talks to school counselors alot and I think it helps. I DO NOT want to put him on a medication for his moods, I know what those things can do and I do not want to see him a zombie on top of all this.

I understand I didn't really ask alot of questions but rather wanted to vent my frustrations. Any suggestions or comments?

Thanks for you reading <img src="">

 

[Housepharmacy]

Hi everyone,

I am new to this site. However, I am not new to dealing with CF. First I would like to explain my situation.

My wife and I have been married for 12 years now. We have 3 wonderful children. Abigail 14, Allan 11, and Austin 10. Allan is the only one with CF.

My son Allan was diagnosed with CF when he was 4mths old. He was diagnosed by his pediatrician who just happened to be the CF specialist at Children's hospital in Dallas. I guess we were lucky to catch it early. Unlike Allan's aunt, my wife's sister who passed away from CF at the age of 27 (they did not detect her CF until she was 10 years old - despite all the symptoms).

Sorry I got off topic a bit but what I mentioned might give you some insight with my son. My son and his aunt were very close and she passed away when he was about 4 years old. Allan has always been a 'worry wart', meaning he always looks at the gloomy side of things and dwells on them. I guess you can't blame him for it as one of his best friends (his aunt) actually died from this disease. Allan has grown depressed off and on and now has a G-tube put in a little over a year now. He takes his medication pretty regularly without too much fuss and I give him alot of credit for not arguing with his mother and I about doing his breathing treatments or being hooked up at night.


My son says he has no friends, but when my wife or I visit the school we see tons of kids talking with him and high fiveing him and laughing, so I kinda doubt this to be the case. The last year all he wants to do is stay inside and play video games. This last summer Allan was surprised to find two older kids down the street come to our door and want Allan to play football. He looked very thrilled and went right outside. He played for almost 2 hours and was laughing and having what appeared to be a good Ol'time. Then when Allan came into the house, he immediately went into negative mode and started saying "they never gave me the ball, and I never make touchdowns". My wife and I try to encourage him but he will have none of it. He just focuses on the bad things. I try and get him outside and play something but he is so unmotivated I do not know what to do for him.

The last 6 months my son has now had to deal with another condition on top of his CF. His neurologist has diagnosed him with Tourettes syndrome. His 'Ticks' are not terrible but they are definitely noticeable. He feels like everyone is making fun of him and of course this makes his ticks worse when he talks about it openly.

My mother use to tell me that I was a very negative kid all the time and I do remember being negative quit often when I was young. Perhaps he inherited this from me? I just hate seeing him like this. He talks to school counselors alot and I think it helps. I DO NOT want to put him on a medication for his moods, I know what those things can do and I do not want to see him a zombie on top of all this.

I understand I didn't really ask alot of questions but rather wanted to vent my frustrations. Any suggestions or comments?

Thanks for you reading <img src="">

 

[sullihs]

I don't have any suggestions, but I just wanted to say that my son (who is only 6) sounds just like your son. He was diagnosed with CF at 4 and TS about a year ago. He is very moody and getting more negative by the day (he was not like this when he was younger). He will say the same things about no one playing with him right after I seeing him playing on the playground and having fun with his friends. He gets really anxious and seems to really dwell on things. I have read a lot about TS and it says that obsessive - compulsive behavior seems to go hand in hand with it. I have been wondering if this could be the cause of my son's anxiety/negativity/moodiness. Has you heard anything about this?

 

[sullihs]

I don't have any suggestions, but I just wanted to say that my son (who is only 6) sounds just like your son. He was diagnosed with CF at 4 and TS about a year ago. He is very moody and getting more negative by the day (he was not like this when he was younger). He will say the same things about no one playing with him right after I seeing him playing on the playground and having fun with his friends. He gets really anxious and seems to really dwell on things. I have read a lot about TS and it says that obsessive - compulsive behavior seems to go hand in hand with it. I have been wondering if this could be the cause of my son's anxiety/negativity/moodiness. Has you heard anything about this?

 

[sullihs]

I don't have any suggestions, but I just wanted to say that my son (who is only 6) sounds just like your son. He was diagnosed with CF at 4 and TS about a year ago. He is very moody and getting more negative by the day (he was not like this when he was younger). He will say the same things about no one playing with him right after I seeing him playing on the playground and having fun with his friends. He gets really anxious and seems to really dwell on things. I have read a lot about TS and it says that obsessive - compulsive behavior seems to go hand in hand with it. I have been wondering if this could be the cause of my son's anxiety/negativity/moodiness. Has you heard anything about this?

 

[sullihs]

I don't have any suggestions, but I just wanted to say that my son (who is only 6) sounds just like your son. He was diagnosed with CF at 4 and TS about a year ago. He is very moody and getting more negative by the day (he was not like this when he was younger). He will say the same things about no one playing with him right after I seeing him playing on the playground and having fun with his friends. He gets really anxious and seems to really dwell on things. I have read a lot about TS and it says that obsessive - compulsive behavior seems to go hand in hand with it. I have been wondering if this could be the cause of my son's anxiety/negativity/moodiness. Has you heard anything about this?

 

[sullihs]

I don't have any suggestions, but I just wanted to say that my son (who is only 6) sounds just like your son. He was diagnosed with CF at 4 and TS about a year ago. He is very moody and getting more negative by the day (he was not like this when he was younger). He will say the same things about no one playing with him right after I seeing him playing on the playground and having fun with his friends. He gets really anxious and seems to really dwell on things. I have read a lot about TS and it says that obsessive - compulsive behavior seems to go hand in hand with it. I have been wondering if this could be the cause of my son's anxiety/negativity/moodiness. Has you heard anything about this?

 

[jimiv]

Welcome to the site. I found this site in November last year and it has been a Godsend of support for me. My son is 9 and was dxed when he was 6 months old. One way I have tried to address the prognosis of CF is pointing out how if Parker (my son) takes care of himself and follows his treatment plan, then he does not have a lot of problems and there have been no real restrictions on his activity. I try as hard as I can to not make his treatment be the center of his life. We argued a lot about weight and eating untill he got a g-tube placed two weeks ago (these people young and old offered a lot of support and insight). I have also pointed out how medical research is always growing. I had a friend pass from CF when I was in my 20s and she did not care for herself. The year before my son was born, I had two aortic annurysms (spelling???) removed leaving me with some cool scars in my son's eyes. I pointed out to him that 20 years ago, my surgucal repairs were not really possible and now it was almost routine. Early detection and consistant care are the keys. One factor I am looking at this year is to address Parker's feeling that he is the only one dealing with this. We participate in Great Strides every year which helps some. This year I am looking at a few summer programs that have a camping experience for children with CF. I am also looking at a two week summer camp in East Texas (where I went as a child) so he can learn that he is not alone in coping with CF but he can also do almost anything he sets his mind to if he takes care of his health. I hope this helps. Good Luck!!

 

[jimiv]

Welcome to the site. I found this site in November last year and it has been a Godsend of support for me. My son is 9 and was dxed when he was 6 months old. One way I have tried to address the prognosis of CF is pointing out how if Parker (my son) takes care of himself and follows his treatment plan, then he does not have a lot of problems and there have been no real restrictions on his activity. I try as hard as I can to not make his treatment be the center of his life. We argued a lot about weight and eating untill he got a g-tube placed two weeks ago (these people young and old offered a lot of support and insight). I have also pointed out how medical research is always growing. I had a friend pass from CF when I was in my 20s and she did not care for herself. The year before my son was born, I had two aortic annurysms (spelling???) removed leaving me with some cool scars in my son's eyes. I pointed out to him that 20 years ago, my surgucal repairs were not really possible and now it was almost routine. Early detection and consistant care are the keys. One factor I am looking at this year is to address Parker's feeling that he is the only one dealing with this. We participate in Great Strides every year which helps some. This year I am looking at a few summer programs that have a camping experience for children with CF. I am also looking at a two week summer camp in East Texas (where I went as a child) so he can learn that he is not alone in coping with CF but he can also do almost anything he sets his mind to if he takes care of his health. I hope this helps. Good Luck!!

 

[jimiv]

Welcome to the site. I found this site in November last year and it has been a Godsend of support for me. My son is 9 and was dxed when he was 6 months old. One way I have tried to address the prognosis of CF is pointing out how if Parker (my son) takes care of himself and follows his treatment plan, then he does not have a lot of problems and there have been no real restrictions on his activity. I try as hard as I can to not make his treatment be the center of his life. We argued a lot about weight and eating untill he got a g-tube placed two weeks ago (these people young and old offered a lot of support and insight). I have also pointed out how medical research is always growing. I had a friend pass from CF when I was in my 20s and she did not care for herself. The year before my son was born, I had two aortic annurysms (spelling???) removed leaving me with some cool scars in my son's eyes. I pointed out to him that 20 years ago, my surgucal repairs were not really possible and now it was almost routine. Early detection and consistant care are the keys. One factor I am looking at this year is to address Parker's feeling that he is the only one dealing with this. We participate in Great Strides every year which helps some. This year I am looking at a few summer programs that have a camping experience for children with CF. I am also looking at a two week summer camp in East Texas (where I went as a child) so he can learn that he is not alone in coping with CF but he can also do almost anything he sets his mind to if he takes care of his health. I hope this helps. Good Luck!!

 

[jimiv]

Welcome to the site. I found this site in November last year and it has been a Godsend of support for me. My son is 9 and was dxed when he was 6 months old. One way I have tried to address the prognosis of CF is pointing out how if Parker (my son) takes care of himself and follows his treatment plan, then he does not have a lot of problems and there have been no real restrictions on his activity. I try as hard as I can to not make his treatment be the center of his life. We argued a lot about weight and eating untill he got a g-tube placed two weeks ago (these people young and old offered a lot of support and insight). I have also pointed out how medical research is always growing. I had a friend pass from CF when I was in my 20s and she did not care for herself. The year before my son was born, I had two aortic annurysms (spelling???) removed leaving me with some cool scars in my son's eyes. I pointed out to him that 20 years ago, my surgucal repairs were not really possible and now it was almost routine. Early detection and consistant care are the keys. One factor I am looking at this year is to address Parker's feeling that he is the only one dealing with this. We participate in Great Strides every year which helps some. This year I am looking at a few summer programs that have a camping experience for children with CF. I am also looking at a two week summer camp in East Texas (where I went as a child) so he can learn that he is not alone in coping with CF but he can also do almost anything he sets his mind to if he takes care of his health. I hope this helps. Good Luck!!

 

[jimiv]

Welcome to the site. I found this site in November last year and it has been a Godsend of support for me. My son is 9 and was dxed when he was 6 months old. One way I have tried to address the prognosis of CF is pointing out how if Parker (my son) takes care of himself and follows his treatment plan, then he does not have a lot of problems and there have been no real restrictions on his activity. I try as hard as I can to not make his treatment be the center of his life. We argued a lot about weight and eating untill he got a g-tube placed two weeks ago (these people young and old offered a lot of support and insight). I have also pointed out how medical research is always growing. I had a friend pass from CF when I was in my 20s and she did not care for herself. The year before my son was born, I had two aortic annurysms (spelling???) removed leaving me with some cool scars in my son's eyes. I pointed out to him that 20 years ago, my surgucal repairs were not really possible and now it was almost routine. Early detection and consistant care are the keys. One factor I am looking at this year is to address Parker's feeling that he is the only one dealing with this. We participate in Great Strides every year which helps some. This year I am looking at a few summer programs that have a camping experience for children with CF. I am also looking at a two week summer camp in East Texas (where I went as a child) so he can learn that he is not alone in coping with CF but he can also do almost anything he sets his mind to if he takes care of his health. I hope this helps. Good Luck!!

 

[OperaMama]

What about psychotherapy to learn coping skills? They're real skills. It seems like the advisors/councilors at school must have some of those tools at hand to be in their positions. Here in Chicago we have a few FABULOUS child therapists, really, really helpful. No stigma or any of that. GOOD LUCK AND STAY POSITIVE YOURSELF!

 

[OperaMama]

What about psychotherapy to learn coping skills? They're real skills. It seems like the advisors/councilors at school must have some of those tools at hand to be in their positions. Here in Chicago we have a few FABULOUS child therapists, really, really helpful. No stigma or any of that. GOOD LUCK AND STAY POSITIVE YOURSELF!

 

[OperaMama]

What about psychotherapy to learn coping skills? They're real skills. It seems like the advisors/councilors at school must have some of those tools at hand to be in their positions. Here in Chicago we have a few FABULOUS child therapists, really, really helpful. No stigma or any of that. GOOD LUCK AND STAY POSITIVE YOURSELF!

 

[OperaMama]

What about psychotherapy to learn coping skills? They're real skills. It seems like the advisors/councilors at school must have some of those tools at hand to be in their positions. Here in Chicago we have a few FABULOUS child therapists, really, really helpful. No stigma or any of that. GOOD LUCK AND STAY POSITIVE YOURSELF!

 

[OperaMama]

What about psychotherapy to learn coping skills? They're real skills. It seems like the advisors/councilors at school must have some of those tools at hand to be in their positions. Here in Chicago we have a few FABULOUS child therapists, really, really helpful. No stigma or any of that. GOOD LUCK AND STAY POSITIVE YOURSELF!