heatherrose415
New member
Hello everyone, I dont know if i belong here, but im curious as to what others think and have gone through while i wait!
My son Kaiden is 18 months old and has had GI issues since birth and has gone through all kinds of different tests.
A few months ago they ordered the sweat test, which they told me was negative, didnt give me a number. Since then he has had a colonoscopy, endoscopy, and pancreatic function test. His Pancreatic Function Test showed his pancreas wasnt releasing his Amylase enzyme. So our Dr. called and said he would need the enzyme put in his food and he might outgrow it. anyone heard of outgrowing it?
Anyway, a friend called whos son has CF and has a very similar situation, (she might be on here, lol) and told me to call my Dr. and ask what his sweat test number was. It was 44. which is borderline.
So with it being 44 and having pancreatic amylase deficiency, i asked to do the genetic test now, rather than 6 months from now like they were going to do, and thankfully the Dr. agreed. so we will be getting that done when the lab gets his order.
What do you guys think? is there a chance he doesnt have it, even with both of those things? please be honest with me. Im already as scared as i can be, so you wont be able to scare me anymore. I just want to know what im looking at.
and how long does it generally take to get the results? oh, and i asked for the ambry test <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thank you all soooooooooooooooooooooooooo much!!!
My son Kaiden is 18 months old and has had GI issues since birth and has gone through all kinds of different tests.
A few months ago they ordered the sweat test, which they told me was negative, didnt give me a number. Since then he has had a colonoscopy, endoscopy, and pancreatic function test. His Pancreatic Function Test showed his pancreas wasnt releasing his Amylase enzyme. So our Dr. called and said he would need the enzyme put in his food and he might outgrow it. anyone heard of outgrowing it?
Anyway, a friend called whos son has CF and has a very similar situation, (she might be on here, lol) and told me to call my Dr. and ask what his sweat test number was. It was 44. which is borderline.
So with it being 44 and having pancreatic amylase deficiency, i asked to do the genetic test now, rather than 6 months from now like they were going to do, and thankfully the Dr. agreed. so we will be getting that done when the lab gets his order.
What do you guys think? is there a chance he doesnt have it, even with both of those things? please be honest with me. Im already as scared as i can be, so you wont be able to scare me anymore. I just want to know what im looking at.
and how long does it generally take to get the results? oh, and i asked for the ambry test <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thank you all soooooooooooooooooooooooooo much!!!