2 children in same grade with CF

sdelorenzo · Nov 13, 2008

So there is just one class and they have to share the same classroom even though it is at different times? That is a risk you are taking, especially for the child in the afternoon class.

Our family has a number of these dilemmas due to the fact that my nephew has cf as well as my son's best friends twelve yr-old brother down the street. Both of these boys now have MSRA and pseudomonas. Neither of my kids have cultured MSRA and my daughter has never cultured pseudomonas while my son has on occasion. So I have had to decide things like can my son go play at the neighbor's house while his brother is at school or ride in their car? I have decided no, his friend can come here. Can my kids see their cousin at Christmas? What my husband and I have decided is - is it worth the risk? The last few times my children spent time with their cousin, their cousin went to clinic a few days after that. Both times he was cultured the new bacteria (msra and pseudomonas). We didn't know it at the time, but we unknowingly put our kids at risk. So, while many kids do okay with MSRA there are others that have problems. Is spending a few hours with their cousins, worth a decline in their function, hospital stays, more antibiotics, treatments, etc? Sadly, the answer at this time is no. The same goes for my nephew. I don't want to expose him to my son's pseudomonas while he may have cleared the pseudomonas.

So, if it were me, I would make arrangements for my child to go to a different school next year if they can't be in separate rooms at the preschool. I remember reading a study that discuss how long bacteria live on books in the pediatricians office - quite a while. You just couldn't wipe everything down. Chances are your kids would be fine, but you are taking a chance.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Nov 13, 2008

So there is just one class and they have to share the same classroom even though it is at different times? That is a risk you are taking, especially for the child in the afternoon class.

Our family has a number of these dilemmas due to the fact that my nephew has cf as well as my son's best friends twelve yr-old brother down the street. Both of these boys now have MSRA and pseudomonas. Neither of my kids have cultured MSRA and my daughter has never cultured pseudomonas while my son has on occasion. So I have had to decide things like can my son go play at the neighbor's house while his brother is at school or ride in their car? I have decided no, his friend can come here. Can my kids see their cousin at Christmas? What my husband and I have decided is - is it worth the risk? The last few times my children spent time with their cousin, their cousin went to clinic a few days after that. Both times he was cultured the new bacteria (msra and pseudomonas). We didn't know it at the time, but we unknowingly put our kids at risk. So, while many kids do okay with MSRA there are others that have problems. Is spending a few hours with their cousins, worth a decline in their function, hospital stays, more antibiotics, treatments, etc? Sadly, the answer at this time is no. The same goes for my nephew. I don't want to expose him to my son's pseudomonas while he may have cleared the pseudomonas.

So, if it were me, I would make arrangements for my child to go to a different school next year if they can't be in separate rooms at the preschool. I remember reading a study that discuss how long bacteria live on books in the pediatricians office - quite a while. You just couldn't wipe everything down. Chances are your kids would be fine, but you are taking a chance.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Nov 13, 2008

So there is just one class and they have to share the same classroom even though it is at different times? That is a risk you are taking, especially for the child in the afternoon class.

Our family has a number of these dilemmas due to the fact that my nephew has cf as well as my son's best friends twelve yr-old brother down the street. Both of these boys now have MSRA and pseudomonas. Neither of my kids have cultured MSRA and my daughter has never cultured pseudomonas while my son has on occasion. So I have had to decide things like can my son go play at the neighbor's house while his brother is at school or ride in their car? I have decided no, his friend can come here. Can my kids see their cousin at Christmas? What my husband and I have decided is - is it worth the risk? The last few times my children spent time with their cousin, their cousin went to clinic a few days after that. Both times he was cultured the new bacteria (msra and pseudomonas). We didn't know it at the time, but we unknowingly put our kids at risk. So, while many kids do okay with MSRA there are others that have problems. Is spending a few hours with their cousins, worth a decline in their function, hospital stays, more antibiotics, treatments, etc? Sadly, the answer at this time is no. The same goes for my nephew. I don't want to expose him to my son's pseudomonas while he may have cleared the pseudomonas.

So, if it were me, I would make arrangements for my child to go to a different school next year if they can't be in separate rooms at the preschool. I remember reading a study that discuss how long bacteria live on books in the pediatricians office - quite a while. You just couldn't wipe everything down. Chances are your kids would be fine, but you are taking a chance.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Nov 13, 2008

So there is just one class and they have to share the same classroom even though it is at different times? That is a risk you are taking, especially for the child in the afternoon class.

Our family has a number of these dilemmas due to the fact that my nephew has cf as well as my son's best friends twelve yr-old brother down the street. Both of these boys now have MSRA and pseudomonas. Neither of my kids have cultured MSRA and my daughter has never cultured pseudomonas while my son has on occasion. So I have had to decide things like can my son go play at the neighbor's house while his brother is at school or ride in their car? I have decided no, his friend can come here. Can my kids see their cousin at Christmas? What my husband and I have decided is - is it worth the risk? The last few times my children spent time with their cousin, their cousin went to clinic a few days after that. Both times he was cultured the new bacteria (msra and pseudomonas). We didn't know it at the time, but we unknowingly put our kids at risk. So, while many kids do okay with MSRA there are others that have problems. Is spending a few hours with their cousins, worth a decline in their function, hospital stays, more antibiotics, treatments, etc? Sadly, the answer at this time is no. The same goes for my nephew. I don't want to expose him to my son's pseudomonas while he may have cleared the pseudomonas.

So, if it were me, I would make arrangements for my child to go to a different school next year if they can't be in separate rooms at the preschool. I remember reading a study that discuss how long bacteria live on books in the pediatricians office - quite a while. You just couldn't wipe everything down. Chances are your kids would be fine, but you are taking a chance.
Sharon, mom of Sophia, 7 and Jack, 5 both with cf

sdelorenzo · Nov 13, 2008

So there is just one class and they have to share the same classroom even though it is at different times? That is a risk you are taking, especially for the child in the afternoon class.
 
 Our family has a number of these dilemmas due to the fact that my nephew has cf as well as my son's best friends twelve yr-old brother down the street. Both of these boys now have MSRA and pseudomonas. Neither of my kids have cultured MSRA and my daughter has never cultured pseudomonas while my son has on occasion. So I have had to decide things like can my son go play at the neighbor's house while his brother is at school or ride in their car? I have decided no, his friend can come here. Can my kids see their cousin at Christmas? What my husband and I have decided is - is it worth the risk? The last few times my children spent time with their cousin, their cousin went to clinic a few days after that. Both times he was cultured the new bacteria (msra and pseudomonas). We didn't know it at the time, but we unknowingly put our kids at risk. So, while many kids do okay with MSRA there are others that have problems. Is spending a few hours with their cousins, worth a decline in their function, hospital stays, more antibiotics, treatments, etc? Sadly, the answer at this time is no. The same goes for my nephew. I don't want to expose him to my son's pseudomonas while he may have cleared the pseudomonas.
 
 So, if it were me, I would make arrangements for my child to go to a different school next year if they can't be in separate rooms at the preschool. I remember reading a study that discuss how long bacteria live on books in the pediatricians office - quite a while. You just couldn't wipe everything down. Chances are your kids would be fine, but you are taking a chance.
 Sharon, mom of Sophia, 7 and Jack, 5 both with cf

mom4holly · Nov 13, 2008

Holly attends school with another CFer and they are in the same grade. they are never in contact with each other unless they come around each other on the playground. we actually worked with the guidance counselor, the teacher & our clinic to make sure we keep them apart <img src="i/expressions/face-icon-small-smile.gif" border="0"> the other mother & I are in agreeance that this is the best for our children! it hasn't been a problem so far this year. if this couldn't be accomplished the clinic & i had decided to enroll holly in another school district & i would drive her to school every day but fortunately we were able to work it out <img src="i/expressions/face-icon-small-smile.gif" border="0">

mom4holly · Nov 13, 2008

Holly attends school with another CFer and they are in the same grade. they are never in contact with each other unless they come around each other on the playground. we actually worked with the guidance counselor, the teacher & our clinic to make sure we keep them apart <img src="i/expressions/face-icon-small-smile.gif" border="0"> the other mother & I are in agreeance that this is the best for our children! it hasn't been a problem so far this year. if this couldn't be accomplished the clinic & i had decided to enroll holly in another school district & i would drive her to school every day but fortunately we were able to work it out <img src="i/expressions/face-icon-small-smile.gif" border="0">

mom4holly · Nov 13, 2008

Holly attends school with another CFer and they are in the same grade. they are never in contact with each other unless they come around each other on the playground. we actually worked with the guidance counselor, the teacher & our clinic to make sure we keep them apart <img src="i/expressions/face-icon-small-smile.gif" border="0"> the other mother & I are in agreeance that this is the best for our children! it hasn't been a problem so far this year. if this couldn't be accomplished the clinic & i had decided to enroll holly in another school district & i would drive her to school every day but fortunately we were able to work it out <img src="i/expressions/face-icon-small-smile.gif" border="0">

mom4holly · Nov 13, 2008

Holly attends school with another CFer and they are in the same grade. they are never in contact with each other unless they come around each other on the playground. we actually worked with the guidance counselor, the teacher & our clinic to make sure we keep them apart <img src="i/expressions/face-icon-small-smile.gif" border="0"> the other mother & I are in agreeance that this is the best for our children! it hasn't been a problem so far this year. if this couldn't be accomplished the clinic & i had decided to enroll holly in another school district & i would drive her to school every day but fortunately we were able to work it out <img src="i/expressions/face-icon-small-smile.gif" border="0">

mom4holly · Nov 13, 2008

Holly attends school with another CFer and they are in the same grade. they are never in contact with each other unless they come around each other on the playground. we actually worked with the guidance counselor, the teacher & our clinic to make sure we keep them apart <img src="i/expressions/face-icon-small-smile.gif" border="0"> the other mother & I are in agreeance that this is the best for our children! it hasn't been a problem so far this year. if this couldn't be accomplished the clinic & i had decided to enroll holly in another school district & i would drive her to school every day but fortunately we were able to work it out <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sheridan · Nov 14, 2008

I would definetly get them into 2 different classes altogether and if that isn't possilbe I would move schools. I think that it is a reasonable solution otherwise you have the problem of the endless wipedown and the what if factor - what if one get something on a day when the other is wiping down you wont be able to stop thinking that the other person is not doing it properly and it will build up resentment.

I am not even a germ a phobic CF parent and i have 2 CF boys but this would definetly be a no go situation for me.

Sheridan · Nov 14, 2008

I would definetly get them into 2 different classes altogether and if that isn't possilbe I would move schools. I think that it is a reasonable solution otherwise you have the problem of the endless wipedown and the what if factor - what if one get something on a day when the other is wiping down you wont be able to stop thinking that the other person is not doing it properly and it will build up resentment.

I am not even a germ a phobic CF parent and i have 2 CF boys but this would definetly be a no go situation for me.

Sheridan · Nov 14, 2008

I would definetly get them into 2 different classes altogether and if that isn't possilbe I would move schools. I think that it is a reasonable solution otherwise you have the problem of the endless wipedown and the what if factor - what if one get something on a day when the other is wiping down you wont be able to stop thinking that the other person is not doing it properly and it will build up resentment.

I am not even a germ a phobic CF parent and i have 2 CF boys but this would definetly be a no go situation for me.

Sheridan · Nov 14, 2008

I would definetly get them into 2 different classes altogether and if that isn't possilbe I would move schools. I think that it is a reasonable solution otherwise you have the problem of the endless wipedown and the what if factor - what if one get something on a day when the other is wiping down you wont be able to stop thinking that the other person is not doing it properly and it will build up resentment.

I am not even a germ a phobic CF parent and i have 2 CF boys but this would definetly be a no go situation for me.

Sheridan · Nov 14, 2008

I would definetly get them into 2 different classes altogether and if that isn't possilbe I would move schools. I think that it is a reasonable solution otherwise you have the problem of the endless wipedown and the what if factor - what if one get something on a day when the other is wiping down you wont be able to stop thinking that the other person is not doing it properly and it will build up resentment.
 
 I am not even a germ a phobic CF parent and i have 2 CF boys but this would definetly be a no go situation for me.

AnD · Nov 14, 2008

I have a question...if it is deemed medically necessary by the cf doctor(s) (like a letter to the school system powers that be, etc.) and especially if one parent is willing to drive their child to school, aren't they (the school system) obligated to make a space available in another school in the system, since it's a medical necessity? Would this not fall somewhere under the same medical/legal arena as the 504 plan? (I am clueless, as they didn't have any of this when I was kid <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I would think that it would be less important if they were teenagers (since they are capable of not putting crayons in their mouths and remembering the 3 foot rule, lol), but kindergarten age...

AnD · Nov 14, 2008

I have a question...if it is deemed medically necessary by the cf doctor(s) (like a letter to the school system powers that be, etc.) and especially if one parent is willing to drive their child to school, aren't they (the school system) obligated to make a space available in another school in the system, since it's a medical necessity? Would this not fall somewhere under the same medical/legal arena as the 504 plan? (I am clueless, as they didn't have any of this when I was kid <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I would think that it would be less important if they were teenagers (since they are capable of not putting crayons in their mouths and remembering the 3 foot rule, lol), but kindergarten age...

AnD · Nov 14, 2008

I have a question...if it is deemed medically necessary by the cf doctor(s) (like a letter to the school system powers that be, etc.) and especially if one parent is willing to drive their child to school, aren't they (the school system) obligated to make a space available in another school in the system, since it's a medical necessity? Would this not fall somewhere under the same medical/legal arena as the 504 plan? (I am clueless, as they didn't have any of this when I was kid <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I would think that it would be less important if they were teenagers (since they are capable of not putting crayons in their mouths and remembering the 3 foot rule, lol), but kindergarten age...

AnD · Nov 14, 2008

I have a question...if it is deemed medically necessary by the cf doctor(s) (like a letter to the school system powers that be, etc.) and especially if one parent is willing to drive their child to school, aren't they (the school system) obligated to make a space available in another school in the system, since it's a medical necessity? Would this not fall somewhere under the same medical/legal arena as the 504 plan? (I am clueless, as they didn't have any of this when I was kid <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I would think that it would be less important if they were teenagers (since they are capable of not putting crayons in their mouths and remembering the 3 foot rule, lol), but kindergarten age...

AnD · Nov 14, 2008

I have a question...if it is deemed medically necessary by the cf doctor(s) (like a letter to the school system powers that be, etc.) and especially if one parent is willing to drive their child to school, aren't they (the school system) obligated to make a space available in another school in the system, since it's a medical necessity? Would this not fall somewhere under the same medical/legal arena as the 504 plan? (I am clueless, as they didn't have any of this when I was kid <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).
 
 I would think that it would be less important if they were teenagers (since they are capable of not putting crayons in their mouths and remembering the 3 foot rule, lol), but kindergarten age...

2 children in same grade with CF

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