grandmaoftwo
New member
Good Afternoon! My granddaughter is 6 years old and has been seen by several doctors and has had many tests. Originally they said she has CF. Then they changed and said her pancreas wasn't working right and she needed to take enzymes. After seeing another doctor 2 years later because she still wasn't gaining weight even with the enzymes, he said her pancreas was working fine and that she just had chronic growth delay syndrome. She had two episodes of rectal prolapse when she was 3, she has weighed only 31 pounds for the last two years, she now vomits on a monthly basis, she still has issues with constipation and she basically looks like she never eats although she does have a good appetite. Her sweat tests were positive, borderline and negative. Her genetic test was negative. We are taking her to yet another doctor who, based on what my daughter told him, believes she does have CF. Any thoughts or information would be greatly appreciated!!!