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3 month old with cf
- Thread starter LuvLogan
- Start date
Andrea,
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
Andrea,
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
Andrea,
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
I wanted to say you have every right to feel angry. Anger is normal, I felt it. I was so angry; why did this happen to my family, my daughter. i am/ was a good person(overall). I was a nurse. i spent all my time making people well(or trying to) I turned it around in my head as to why I have a child with CF. It is because I am a good person, as are you. Who better to raise a child who needs that attentive loving parent who will fight for the health care your child deserves.
i am blessed to have my Daughter, Maggie, in my life. She got the family she deserves, loving parents and brother. Your child has that special family too.
Rebecca(mom to Sammy 8 no CF and MAggie 3 1/2 with CF)
D
Di
Guest
Hi, my son turns one in a week, and he was diagnosed at 3 weeks of
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
D
Di
Guest
Hi, my son turns one in a week, and he was diagnosed at 3 weeks of
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
D
Di
Guest
Hi, my son turns one in a week, and he was diagnosed at 3 weeks of
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
age. Our stories are very similar. We went to neo-natal unit when
he was 10 days old due to extreme lethargy and failure to gain
weight, very thick hard-to-pass meconium & jaundice. We were
also sent home with a clean bill of health and being told we had a
very healthy baby. After some research on the internet and not
giving up, knowing that there was something very wrong with my
baby, a sweat test was done at 3 weeks. We suffered from all
the usual things, complete devastation, anger, etc, etc. You all
know.<br>
<br>
Anyway, as I said he is almost one now. As soon as he started
on the enzymes he started piling on the weight. He is now in the
90th plus percentiles, very well, started walking at 10 months and
now says about 10 words. He is a gorgeous boy who loves everyone
and everything around him. I remember feeling and
thinking awful things when he was first diagnosed. Almost
things like I wish we never had him. It was a very dark time and I
will never forget it.<br>
<br>
I know it's still very early days for us, but as time goes on each
day gets a little easier. You can start to see your baby for who
they are and not just see this awful disease. I still cry a lot,
and I know that that is fine to do, must be done, but the pain is
not as bad as it was.<br>
<br>
Thank you all for this wonderful site and you are in my
thoughts.<br>
debs2girls
New member
Angela, I am so sorry for your loss. My son was born exactly one week after your daughter on 3-19-83.
debs2girls
New member
Angela, I am so sorry for your loss. My son was born exactly one week after your daughter on 3-19-83.
debs2girls
New member
Angela, I am so sorry for your loss. My son was born exactly one week after your daughter on 3-19-83.