3 week old just diagnosed

fsuapril · Oct 4, 2007

oh, i didnt think you werent..i was just saying why they push applesauce...it was something i didnt understand at first myself...since my son doesnt like it i was in a panic at first about what to give it to him with.... we cant give it with dairy, but the peaches are fine...

as far as the vaccines...no debate needed for me...just another thing that will probably be pushed... but a slower sched would be fine too... i have several friends that do that as well.... my mom is allergic to eggs nad cant have any...so it's not soemthing i have major issues with...

fsuapril · Oct 4, 2007

oh, i didnt think you werent..i was just saying why they push applesauce...it was something i didnt understand at first myself...since my son doesnt like it i was in a panic at first about what to give it to him with.... we cant give it with dairy, but the peaches are fine...

as far as the vaccines...no debate needed for me...just another thing that will probably be pushed... but a slower sched would be fine too... i have several friends that do that as well.... my mom is allergic to eggs nad cant have any...so it's not soemthing i have major issues with...

fsuapril · Oct 4, 2007

oh, i didnt think you werent..i was just saying why they push applesauce...it was something i didnt understand at first myself...since my son doesnt like it i was in a panic at first about what to give it to him with.... we cant give it with dairy, but the peaches are fine...

as far as the vaccines...no debate needed for me...just another thing that will probably be pushed... but a slower sched would be fine too... i have several friends that do that as well.... my mom is allergic to eggs nad cant have any...so it's not soemthing i have major issues with...

fsuapril · Oct 4, 2007

oh, i didnt think you werent..i was just saying why they push applesauce...it was something i didnt understand at first myself...since my son doesnt like it i was in a panic at first about what to give it to him with.... we cant give it with dairy, but the peaches are fine...

as far as the vaccines...no debate needed for me...just another thing that will probably be pushed... but a slower sched would be fine too... i have several friends that do that as well.... my mom is allergic to eggs nad cant have any...so it's not soemthing i have major issues with...

fsuapril · Oct 4, 2007

oh, i didnt think you werent..i was just saying why they push applesauce...it was something i didnt understand at first myself...since my son doesnt like it i was in a panic at first about what to give it to him with.... we cant give it with dairy, but the peaches are fine...

as far as the vaccines...no debate needed for me...just another thing that will probably be pushed... but a slower sched would be fine too... i have several friends that do that as well.... my mom is allergic to eggs nad cant have any...so it's not soemthing i have major issues with...

ktsmom · Oct 4, 2007

Welcome! You will find plenty of support here, so I'm glad you found us. I understand, without passing judgement, that it can be hard to comprehend and/or believe in the medical treatments that have been or will be recommended for your child. However, the median age for CF'ers has been extended to 38 years.

Take it all at your own pace because there is so much to know, and feel free to post questions. We may not all agree, but we're not all necessarily "blind followers" either. And, we ARE all in CF Land and we know where you are coming from.

BTW the part about the enzyme microbeads needing acid to help preserve them until they get to the small intestine is correct - it does help their effectiveness, as far as I can tell.

ktsmom · Oct 4, 2007

Welcome! You will find plenty of support here, so I'm glad you found us. I understand, without passing judgement, that it can be hard to comprehend and/or believe in the medical treatments that have been or will be recommended for your child. However, the median age for CF'ers has been extended to 38 years.

Take it all at your own pace because there is so much to know, and feel free to post questions. We may not all agree, but we're not all necessarily "blind followers" either. And, we ARE all in CF Land and we know where you are coming from.

BTW the part about the enzyme microbeads needing acid to help preserve them until they get to the small intestine is correct - it does help their effectiveness, as far as I can tell.

ktsmom · Oct 4, 2007

Welcome! You will find plenty of support here, so I'm glad you found us. I understand, without passing judgement, that it can be hard to comprehend and/or believe in the medical treatments that have been or will be recommended for your child. However, the median age for CF'ers has been extended to 38 years.

Take it all at your own pace because there is so much to know, and feel free to post questions. We may not all agree, but we're not all necessarily "blind followers" either. And, we ARE all in CF Land and we know where you are coming from.

BTW the part about the enzyme microbeads needing acid to help preserve them until they get to the small intestine is correct - it does help their effectiveness, as far as I can tell.

ktsmom · Oct 4, 2007

Welcome! You will find plenty of support here, so I'm glad you found us. I understand, without passing judgement, that it can be hard to comprehend and/or believe in the medical treatments that have been or will be recommended for your child. However, the median age for CF'ers has been extended to 38 years.

Take it all at your own pace because there is so much to know, and feel free to post questions. We may not all agree, but we're not all necessarily "blind followers" either. And, we ARE all in CF Land and we know where you are coming from.

BTW the part about the enzyme microbeads needing acid to help preserve them until they get to the small intestine is correct - it does help their effectiveness, as far as I can tell.

ktsmom · Oct 4, 2007

Welcome! You will find plenty of support here, so I'm glad you found us. I understand, without passing judgement, that it can be hard to comprehend and/or believe in the medical treatments that have been or will be recommended for your child. However, the median age for CF'ers has been extended to 38 years.

Take it all at your own pace because there is so much to know, and feel free to post questions. We may not all agree, but we're not all necessarily "blind followers" either. And, we ARE all in CF Land and we know where you are coming from.

BTW the part about the enzyme microbeads needing acid to help preserve them until they get to the small intestine is correct - it does help their effectiveness, as far as I can tell.

Rebjane · Oct 4, 2007

Hopefulmommy,

You've come to great place for support and info on CF for your baby. I am one of those pro-breastfeeding moms. I breastfed my daughter with CF for 3 1/2 years and she exclusively nursed for the 1st 6 1/2 months. I did not use applesauce with enzynes til she was about 6-7 months. I would like Liza said use a moistened pickie finger and stick the enzymes on the inside of her cheek and pop her on the breast and it would wash those enzymes down. I would check her inside of her mouth to make sure they went down after, repeatedly leaving enzymes the mouth can sometimes irritate and breakdown the skin inside the mouth.

Having a child with CF can change your parenting style. I never thought I would have to bribe my daughter with M&M's to please take a syringe full of antibiotics. Or let mommy please bang you on the back one more time(chest PT <img src="i/expressions/face-icon-small-wink.gif" border="0">) Your perspective changes a bit. I always was pro-vaccination. I'm glad we have the medicines available for CF'ers we do now, if we didn't I know my daughter's health would decline.

Anyway, I'm here if you have questions about brestfeeding a baby with CF. It can be challenging.

Rebjane · Oct 4, 2007

Hopefulmommy,

You've come to great place for support and info on CF for your baby. I am one of those pro-breastfeeding moms. I breastfed my daughter with CF for 3 1/2 years and she exclusively nursed for the 1st 6 1/2 months. I did not use applesauce with enzynes til she was about 6-7 months. I would like Liza said use a moistened pickie finger and stick the enzymes on the inside of her cheek and pop her on the breast and it would wash those enzymes down. I would check her inside of her mouth to make sure they went down after, repeatedly leaving enzymes the mouth can sometimes irritate and breakdown the skin inside the mouth.

Having a child with CF can change your parenting style. I never thought I would have to bribe my daughter with M&M's to please take a syringe full of antibiotics. Or let mommy please bang you on the back one more time(chest PT <img src="i/expressions/face-icon-small-wink.gif" border="0">) Your perspective changes a bit. I always was pro-vaccination. I'm glad we have the medicines available for CF'ers we do now, if we didn't I know my daughter's health would decline.

Anyway, I'm here if you have questions about brestfeeding a baby with CF. It can be challenging.

Rebjane · Oct 4, 2007

Hopefulmommy,

You've come to great place for support and info on CF for your baby. I am one of those pro-breastfeeding moms. I breastfed my daughter with CF for 3 1/2 years and she exclusively nursed for the 1st 6 1/2 months. I did not use applesauce with enzynes til she was about 6-7 months. I would like Liza said use a moistened pickie finger and stick the enzymes on the inside of her cheek and pop her on the breast and it would wash those enzymes down. I would check her inside of her mouth to make sure they went down after, repeatedly leaving enzymes the mouth can sometimes irritate and breakdown the skin inside the mouth.

Having a child with CF can change your parenting style. I never thought I would have to bribe my daughter with M&M's to please take a syringe full of antibiotics. Or let mommy please bang you on the back one more time(chest PT <img src="i/expressions/face-icon-small-wink.gif" border="0">) Your perspective changes a bit. I always was pro-vaccination. I'm glad we have the medicines available for CF'ers we do now, if we didn't I know my daughter's health would decline.

Anyway, I'm here if you have questions about brestfeeding a baby with CF. It can be challenging.

Rebjane · Oct 4, 2007

Hopefulmommy,

You've come to great place for support and info on CF for your baby. I am one of those pro-breastfeeding moms. I breastfed my daughter with CF for 3 1/2 years and she exclusively nursed for the 1st 6 1/2 months. I did not use applesauce with enzynes til she was about 6-7 months. I would like Liza said use a moistened pickie finger and stick the enzymes on the inside of her cheek and pop her on the breast and it would wash those enzymes down. I would check her inside of her mouth to make sure they went down after, repeatedly leaving enzymes the mouth can sometimes irritate and breakdown the skin inside the mouth.

Having a child with CF can change your parenting style. I never thought I would have to bribe my daughter with M&M's to please take a syringe full of antibiotics. Or let mommy please bang you on the back one more time(chest PT <img src="i/expressions/face-icon-small-wink.gif" border="0">) Your perspective changes a bit. I always was pro-vaccination. I'm glad we have the medicines available for CF'ers we do now, if we didn't I know my daughter's health would decline.

Anyway, I'm here if you have questions about brestfeeding a baby with CF. It can be challenging.

Rebjane · Oct 4, 2007

Hopefulmommy,

You've come to great place for support and info on CF for your baby. I am one of those pro-breastfeeding moms. I breastfed my daughter with CF for 3 1/2 years and she exclusively nursed for the 1st 6 1/2 months. I did not use applesauce with enzynes til she was about 6-7 months. I would like Liza said use a moistened pickie finger and stick the enzymes on the inside of her cheek and pop her on the breast and it would wash those enzymes down. I would check her inside of her mouth to make sure they went down after, repeatedly leaving enzymes the mouth can sometimes irritate and breakdown the skin inside the mouth.

Having a child with CF can change your parenting style. I never thought I would have to bribe my daughter with M&M's to please take a syringe full of antibiotics. Or let mommy please bang you on the back one more time(chest PT <img src="i/expressions/face-icon-small-wink.gif" border="0">) Your perspective changes a bit. I always was pro-vaccination. I'm glad we have the medicines available for CF'ers we do now, if we didn't I know my daughter's health would decline.

Anyway, I'm here if you have questions about brestfeeding a baby with CF. It can be challenging.

DEES4 · Oct 7, 2007