Hi! Welcome to the site and congratulations on the birth of your son! As you can tell from the amount of responses you've received, this site will be your best resource as you navigate through the CF world.
My daughter was born in Jan of 09 and diagnosed at 6 days old with CF. She is our first and there isn't a family history of CF, as is true for most families.
I cried when I read your post because it took me back to those horrible days and weeks surrounding Maggie's diagnosis. The guilt, the fear, the unknown. All I can say is that it does get better.
Maggie is a happy, healthy almost two year old who brightens our lives everyday. We have all the hope in the world that she will outlive us.
It is all overwhelming for you right now I'm sure. It hasn't been that long since I was in your spot. Please ask any questions you have. Don't hestitate if you need to vent. CF sucks and it takes getting use to and you'll have to make adjustments to the life you had planned and envisioned for your son and as a family. But you will still have a normal life - just different.
I'll be thinking of you. Please keep us posted on how you are all doing.
My daughter was born in Jan of 09 and diagnosed at 6 days old with CF. She is our first and there isn't a family history of CF, as is true for most families.
I cried when I read your post because it took me back to those horrible days and weeks surrounding Maggie's diagnosis. The guilt, the fear, the unknown. All I can say is that it does get better.
Maggie is a happy, healthy almost two year old who brightens our lives everyday. We have all the hope in the world that she will outlive us.
It is all overwhelming for you right now I'm sure. It hasn't been that long since I was in your spot. Please ask any questions you have. Don't hestitate if you need to vent. CF sucks and it takes getting use to and you'll have to make adjustments to the life you had planned and envisioned for your son and as a family. But you will still have a normal life - just different.
I'll be thinking of you. Please keep us posted on how you are all doing.