3wk old Diagnosed 11/15

I

imagine04

New member
I'm not sure where to start or even what to say since this is all so new. I guess i'll start off with an introduction.

My name is Jeanne and my DH's name is Greg. We've been married for 8yrs and together for 11yrs. We live in Michigan and just had our first child, a son, born 3wks 1d early on 10/26/10. His name is Parker and he is the light of our lives.

We, much like everyone here i'm sure, never expected to have a child with any sort of Chronic Illness. We'd been trying for so many years to just become pregnant that when it finally happened we were thrilled! I'd gone through countless procedures and taken Clomid as well as Metformin as i was anovulatory. When they offered the gene testing to me during my pregnancy i passed it up because it wouldn't have changed anything at that point. I was already pregnant. My pregnancy was a hard one filled with bedrest and lots of extra trips to a Perinatologist as well as my midwife/ob team. But we pulled through and I delivered our beautiful son, Parker, @ 8:33pm on 10/26/10. He was 6lbs 12oz and 18inches long.

Our hospital did his NBS and on 11/5 we received word that he had 1 mutated gene for CF and had to get a Sweat Test done. Over the next 10 days i worried non-stop. Doing his salt intake (1/8tsp for 3 days) landed us in the ER on Saturday 11/13. He was not tolerating the salt well at all and my DH and I got so nervous that we rushed him to the ER at 3AM! They did a chest xray and tested for Influenza/RSV. The flu/rsv came back negative and his right lung showed some fuzziness. They sent us home and told us to just keep monitoring him and if he developed a fever, turned blue, etc to bring him back in ASAP. After that night my DH took over what we call the "yuck bottle" feeds because i get too emotional seeing my baby cough and choke on the salty breast milk mixture. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Finally, Sweat Test day arrived and we packed up our car and prepared to head 2hours south to Ann Arbor, MI for Parker's sweat test. We arrived an hour and a half early and they even got us in almost immediately! Luckily Parker produced enough sweat so we were now onto the last 25-30 minutes of waiting to hear the results. When the 30 minute mark passed and nobody had yet been in to speak with us I got this huge knot in my stomach -- i just knew at that point the news wasn't going to be what we wanted to hear. Finally 40 minutes later 4 people, 2 pulmonary specialists and 2 social workers came into our room. The minute i saw them all coming in I absolutely knew the results were bad news. Parkers chloride level was at 111. High enough to give him a diagnoses of Cystic Fibrosis. My heart sank and i cried and cried just holding onto my little miracle baby i started thinking about his future and what it meant to now be diagnosed with this life changing disease. I find myself constantly worrying about things like "How sick will he get?" "Will he need to be hospitalized a lot?" "Will he live to see 30? 40? 50? 60?" "Am i going to outlive my baby boy?" I've never been more scared and sad in my entire life. I can't help but feel responsible for a disease that is going to make him sick and possibly even someday cause death. I keep asking why us?! I'm angry and completely jaded right now. I, just like any parent, do not want to ever see my child sick or in any kind of pain.

As of now we're doing his salt intake again Wed - Fri morning and we have a repeat salt test on Friday morning at 11am to confirm the diagnoses even though our Pulmonary Specialist already said with a chloride number as high as Parker's that she's sure of the diagnoses already. After his sweat test we'll meet with our Clinic Team and get Parker set up on Enzymes and learn the chest clap. I feel so overwhelmed and completely alone. He is the first child on both sides of our families to have CF so nobody really understand what we are going through. And we're first time parents on top of it! I'm really hoping to get to know some other parents that can relate to us.

Thank you and hope to talk to some of you soon.

-Jeanne
 
I

imagine04

New member
I'm not sure where to start or even what to say since this is all so new. I guess i'll start off with an introduction.

My name is Jeanne and my DH's name is Greg. We've been married for 8yrs and together for 11yrs. We live in Michigan and just had our first child, a son, born 3wks 1d early on 10/26/10. His name is Parker and he is the light of our lives.

We, much like everyone here i'm sure, never expected to have a child with any sort of Chronic Illness. We'd been trying for so many years to just become pregnant that when it finally happened we were thrilled! I'd gone through countless procedures and taken Clomid as well as Metformin as i was anovulatory. When they offered the gene testing to me during my pregnancy i passed it up because it wouldn't have changed anything at that point. I was already pregnant. My pregnancy was a hard one filled with bedrest and lots of extra trips to a Perinatologist as well as my midwife/ob team. But we pulled through and I delivered our beautiful son, Parker, @ 8:33pm on 10/26/10. He was 6lbs 12oz and 18inches long.

Our hospital did his NBS and on 11/5 we received word that he had 1 mutated gene for CF and had to get a Sweat Test done. Over the next 10 days i worried non-stop. Doing his salt intake (1/8tsp for 3 days) landed us in the ER on Saturday 11/13. He was not tolerating the salt well at all and my DH and I got so nervous that we rushed him to the ER at 3AM! They did a chest xray and tested for Influenza/RSV. The flu/rsv came back negative and his right lung showed some fuzziness. They sent us home and told us to just keep monitoring him and if he developed a fever, turned blue, etc to bring him back in ASAP. After that night my DH took over what we call the "yuck bottle" feeds because i get too emotional seeing my baby cough and choke on the salty breast milk mixture. <img src="i/expressions/face-icon-small-sad.gif" border="0">

Finally, Sweat Test day arrived and we packed up our car and prepared to head 2hours south to Ann Arbor, MI for Parker's sweat test. We arrived an hour and a half early and they even got us in almost immediately! Luckily Parker produced enough sweat so we were now onto the last 25-30 minutes of waiting to hear the results. When the 30 minute mark passed and nobody had yet been in to speak with us I got this huge knot in my stomach -- i just knew at that point the news wasn't going to be what we wanted to hear. Finally 40 minutes later 4 people, 2 pulmonary specialists and 2 social workers came into our room. The minute i saw them all coming in I absolutely knew the results were bad news. Parkers chloride level was at 111. High enough to give him a diagnoses of Cystic Fibrosis. My heart sank and i cried and cried just holding onto my little miracle baby i started thinking about his future and what it meant to now be diagnosed with this life changing disease. I find myself constantly worrying about things like "How sick will he get?" "Will he need to be hospitalized a lot?" "Will he live to see 30? 40? 50? 60?" "Am i going to outlive my baby boy?" I've never been more scared and sad in my entire life. I can't help but feel responsible for a disease that is going to make him sick and possibly even someday cause death. I keep asking why us?! I'm angry and completely jaded right now. I, just like any parent, do not want to ever see my child sick or in any kind of pain.

As of now we're doing his salt intake again Wed - Fri morning and we have a repeat salt test on Friday morning at 11am to confirm the diagnoses even though our Pulmonary Specialist already said with a chloride number as high as Parker's that she's sure of the diagnoses already. After his sweat test we'll meet with our Clinic Team and get Parker set up on Enzymes and learn the chest clap. I feel so overwhelmed and completely alone. He is the first child on both sides of our families to have CF so nobody really understand what we are going through. And we're first time parents on top of it! I'm really hoping to get to know some other parents that can relate to us.

Thank you and hope to talk to some of you soon.

-Jeanne
 
I

imagine04

New member
I'm not sure where to start or even what to say since this is all so new. I guess i'll start off with an introduction.
<br />
<br />My name is Jeanne and my DH's name is Greg. We've been married for 8yrs and together for 11yrs. We live in Michigan and just had our first child, a son, born 3wks 1d early on 10/26/10. His name is Parker and he is the light of our lives.
<br />
<br />We, much like everyone here i'm sure, never expected to have a child with any sort of Chronic Illness. We'd been trying for so many years to just become pregnant that when it finally happened we were thrilled! I'd gone through countless procedures and taken Clomid as well as Metformin as i was anovulatory. When they offered the gene testing to me during my pregnancy i passed it up because it wouldn't have changed anything at that point. I was already pregnant. My pregnancy was a hard one filled with bedrest and lots of extra trips to a Perinatologist as well as my midwife/ob team. But we pulled through and I delivered our beautiful son, Parker, @ 8:33pm on 10/26/10. He was 6lbs 12oz and 18inches long.
<br />
<br />Our hospital did his NBS and on 11/5 we received word that he had 1 mutated gene for CF and had to get a Sweat Test done. Over the next 10 days i worried non-stop. Doing his salt intake (1/8tsp for 3 days) landed us in the ER on Saturday 11/13. He was not tolerating the salt well at all and my DH and I got so nervous that we rushed him to the ER at 3AM! They did a chest xray and tested for Influenza/RSV. The flu/rsv came back negative and his right lung showed some fuzziness. They sent us home and told us to just keep monitoring him and if he developed a fever, turned blue, etc to bring him back in ASAP. After that night my DH took over what we call the "yuck bottle" feeds because i get too emotional seeing my baby cough and choke on the salty breast milk mixture. <img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />Finally, Sweat Test day arrived and we packed up our car and prepared to head 2hours south to Ann Arbor, MI for Parker's sweat test. We arrived an hour and a half early and they even got us in almost immediately! Luckily Parker produced enough sweat so we were now onto the last 25-30 minutes of waiting to hear the results. When the 30 minute mark passed and nobody had yet been in to speak with us I got this huge knot in my stomach -- i just knew at that point the news wasn't going to be what we wanted to hear. Finally 40 minutes later 4 people, 2 pulmonary specialists and 2 social workers came into our room. The minute i saw them all coming in I absolutely knew the results were bad news. Parkers chloride level was at 111. High enough to give him a diagnoses of Cystic Fibrosis. My heart sank and i cried and cried just holding onto my little miracle baby i started thinking about his future and what it meant to now be diagnosed with this life changing disease. I find myself constantly worrying about things like "How sick will he get?" "Will he need to be hospitalized a lot?" "Will he live to see 30? 40? 50? 60?" "Am i going to outlive my baby boy?" I've never been more scared and sad in my entire life. I can't help but feel responsible for a disease that is going to make him sick and possibly even someday cause death. I keep asking why us?! I'm angry and completely jaded right now. I, just like any parent, do not want to ever see my child sick or in any kind of pain.
<br />
<br />As of now we're doing his salt intake again Wed - Fri morning and we have a repeat salt test on Friday morning at 11am to confirm the diagnoses even though our Pulmonary Specialist already said with a chloride number as high as Parker's that she's sure of the diagnoses already. After his sweat test we'll meet with our Clinic Team and get Parker set up on Enzymes and learn the chest clap. I feel so overwhelmed and completely alone. He is the first child on both sides of our families to have CF so nobody really understand what we are going through. And we're first time parents on top of it! I'm really hoping to get to know some other parents that can relate to us.
<br />
<br />Thank you and hope to talk to some of you soon.
<br />
<br />-Jeanne
 
M

momofcfprincess

New member
HI,

I know this is very hard. When I was reading your message it reminded me of how it was when we found out about our daughter. All I could do was look at her and cry and think what does the future hold? Well 11 years later I can tell you there is a happy future. My daughter is now 11 and doing well, if I did not tell you she had CF you wouldnt even know. She plays soccer, rides horses, and goes to school. She has been hospitalized 6 times but not until she was 7 years old. And she is a trooper about that. Of course she has grown up with CF so now its just apart of our lives. We just do her medicines each day, wash our hands ALOT and enjoy life. God Bless You

We now have a saying that I heard from another CFer.
God gave me this life, because he knows I am strong enough to live it!!
 
M

momofcfprincess

New member
HI,

I know this is very hard. When I was reading your message it reminded me of how it was when we found out about our daughter. All I could do was look at her and cry and think what does the future hold? Well 11 years later I can tell you there is a happy future. My daughter is now 11 and doing well, if I did not tell you she had CF you wouldnt even know. She plays soccer, rides horses, and goes to school. She has been hospitalized 6 times but not until she was 7 years old. And she is a trooper about that. Of course she has grown up with CF so now its just apart of our lives. We just do her medicines each day, wash our hands ALOT and enjoy life. God Bless You

We now have a saying that I heard from another CFer.
God gave me this life, because he knows I am strong enough to live it!!
 
M

momofcfprincess

New member
HI,
<br />
<br /> I know this is very hard. When I was reading your message it reminded me of how it was when we found out about our daughter. All I could do was look at her and cry and think what does the future hold? Well 11 years later I can tell you there is a happy future. My daughter is now 11 and doing well, if I did not tell you she had CF you wouldnt even know. She plays soccer, rides horses, and goes to school. She has been hospitalized 6 times but not until she was 7 years old. And she is a trooper about that. Of course she has grown up with CF so now its just apart of our lives. We just do her medicines each day, wash our hands ALOT and enjoy life. God Bless You
<br />
<br />We now have a saying that I heard from another CFer.
<br />God gave me this life, because he knows I am strong enough to live it!!
 
M

Mommafirst

Guest
Hello Jeanne,

Welcome to the place you never ever thought you would need so darned much. Your post made me cry because you brought me right back to the day of diagnosis for us. The not knowing, the diagnosis and the first year are really hard. It does get easier...I suppose you get more emotionally hardened as you learn to go through it all...but you also get to know your child, not the imagined dream you have for a child, but the real little guy who will be eons better than you ever could have dreamed. As you get to know him, CF won't be what you see. You'll see a wonderful, sweet, funny, smart, maybe a little bit devilish, boy who also happens to have CF. CF will be last in a long list of things to describe your son.

I've never heard of the whole salt intake thing. I mean I've done supplemental salt POST diagnosis, but never heard of giving days of salt supplements prior to sweat testing. Wouldn't this make the results of the testing questionable??? Do you know what the reasoning is?? Is this something new?

Once again, welcome. You will come to rely on the adult CF patients and other CF parents as you begin to learn the new language of CF. And someday, sooner than you think, you will be giving advice as readily as you ask for it. ((((HUGS)))) I know how hard this is.
 
M

Mommafirst

Guest
Hello Jeanne,

Welcome to the place you never ever thought you would need so darned much. Your post made me cry because you brought me right back to the day of diagnosis for us. The not knowing, the diagnosis and the first year are really hard. It does get easier...I suppose you get more emotionally hardened as you learn to go through it all...but you also get to know your child, not the imagined dream you have for a child, but the real little guy who will be eons better than you ever could have dreamed. As you get to know him, CF won't be what you see. You'll see a wonderful, sweet, funny, smart, maybe a little bit devilish, boy who also happens to have CF. CF will be last in a long list of things to describe your son.

I've never heard of the whole salt intake thing. I mean I've done supplemental salt POST diagnosis, but never heard of giving days of salt supplements prior to sweat testing. Wouldn't this make the results of the testing questionable??? Do you know what the reasoning is?? Is this something new?

Once again, welcome. You will come to rely on the adult CF patients and other CF parents as you begin to learn the new language of CF. And someday, sooner than you think, you will be giving advice as readily as you ask for it. ((((HUGS)))) I know how hard this is.
 
M

Mommafirst

Guest
Hello Jeanne,
<br />
<br />Welcome to the place you never ever thought you would need so darned much. Your post made me cry because you brought me right back to the day of diagnosis for us. The not knowing, the diagnosis and the first year are really hard. It does get easier...I suppose you get more emotionally hardened as you learn to go through it all...but you also get to know your child, not the imagined dream you have for a child, but the real little guy who will be eons better than you ever could have dreamed. As you get to know him, CF won't be what you see. You'll see a wonderful, sweet, funny, smart, maybe a little bit devilish, boy who also happens to have CF. CF will be last in a long list of things to describe your son.
<br />
<br />I've never heard of the whole salt intake thing. I mean I've done supplemental salt POST diagnosis, but never heard of giving days of salt supplements prior to sweat testing. Wouldn't this make the results of the testing questionable??? Do you know what the reasoning is?? Is this something new?
<br />
<br />Once again, welcome. You will come to rely on the adult CF patients and other CF parents as you begin to learn the new language of CF. And someday, sooner than you think, you will be giving advice as readily as you ask for it. ((((HUGS)))) I know how hard this is.
 
I

imagine04

New member
Brandy - Thank you for the encouraging words. It is so good to hear that while they may have CF this disease is not something that will define what they can do.

I guess i keep hearing about how much of a "normal" childhood CF'ers have but i've not heard about how "normal" their adulthoods are which is where a ton of my worry is coming in atm. For the time being i'm still trying to absorb the news and learn as much as i can about CF. I'm anxious to get back to the hospital on Friday and meet the rest of his clinic team and ask a ton of questions. I was pretty unable to ask much of anything on Monday and now i feel like i'll be going in with a notebook full of questions!

Thanks again for your story on your daughter! It does put some of my worries to rest knowing that they can still do some normal kid stuff but just have to adapt a bit differently.


Heather - I really am so thankful for the internet more then ever before at this very moment! It really helps being able to have someone know what i'm feeling. We live in a college town (my DH went to school here and we liked the area so much we ended up staying after he graduated) so there are not many local support groups for anything that i've found... yet! I'm really hoping to meet parents of CF children as well as meet other children and adults that are living with CF. I really think getting to know other families will be what does help both my husband and I.

My husband has been so positive which is good since i pretty much crumbled. I know i have to "put my big girl panties on" and push on, and i will in time i think, but it's all so new and so scary.

From what the doctor has said as far as the salt prep intake before his sweat test it's to help him sweat even more and they take this extra salt intake into account when they check for elevated chloride levels. Both my husband and I really do not want to do the salt at all. I can't give the bottles to him with the salt anymore as it breaks my heart hearing him cough and get so congested sounding after drinking the yuck mix. Plus, i'd much rather be breastfeeding him which i can't do if i have to give him this salt. We've been doing 1/2 of the 1/8tsp into bottles. So he essentially is getting 2 different bottles with salt in them.

Thank you for your reply and for welcoming me! It really means so much to me to be able to talk to others that have gone through the same thing.
 
I

imagine04

New member
Brandy - Thank you for the encouraging words. It is so good to hear that while they may have CF this disease is not something that will define what they can do.

I guess i keep hearing about how much of a "normal" childhood CF'ers have but i've not heard about how "normal" their adulthoods are which is where a ton of my worry is coming in atm. For the time being i'm still trying to absorb the news and learn as much as i can about CF. I'm anxious to get back to the hospital on Friday and meet the rest of his clinic team and ask a ton of questions. I was pretty unable to ask much of anything on Monday and now i feel like i'll be going in with a notebook full of questions!

Thanks again for your story on your daughter! It does put some of my worries to rest knowing that they can still do some normal kid stuff but just have to adapt a bit differently.


Heather - I really am so thankful for the internet more then ever before at this very moment! It really helps being able to have someone know what i'm feeling. We live in a college town (my DH went to school here and we liked the area so much we ended up staying after he graduated) so there are not many local support groups for anything that i've found... yet! I'm really hoping to meet parents of CF children as well as meet other children and adults that are living with CF. I really think getting to know other families will be what does help both my husband and I.

My husband has been so positive which is good since i pretty much crumbled. I know i have to "put my big girl panties on" and push on, and i will in time i think, but it's all so new and so scary.

From what the doctor has said as far as the salt prep intake before his sweat test it's to help him sweat even more and they take this extra salt intake into account when they check for elevated chloride levels. Both my husband and I really do not want to do the salt at all. I can't give the bottles to him with the salt anymore as it breaks my heart hearing him cough and get so congested sounding after drinking the yuck mix. Plus, i'd much rather be breastfeeding him which i can't do if i have to give him this salt. We've been doing 1/2 of the 1/8tsp into bottles. So he essentially is getting 2 different bottles with salt in them.

Thank you for your reply and for welcoming me! It really means so much to me to be able to talk to others that have gone through the same thing.
 
I

imagine04

New member
Brandy - Thank you for the encouraging words. It is so good to hear that while they may have CF this disease is not something that will define what they can do.
<br />
<br />I guess i keep hearing about how much of a "normal" childhood CF'ers have but i've not heard about how "normal" their adulthoods are which is where a ton of my worry is coming in atm. For the time being i'm still trying to absorb the news and learn as much as i can about CF. I'm anxious to get back to the hospital on Friday and meet the rest of his clinic team and ask a ton of questions. I was pretty unable to ask much of anything on Monday and now i feel like i'll be going in with a notebook full of questions!
<br />
<br />Thanks again for your story on your daughter! It does put some of my worries to rest knowing that they can still do some normal kid stuff but just have to adapt a bit differently.
<br />
<br />
<br />Heather - I really am so thankful for the internet more then ever before at this very moment! It really helps being able to have someone know what i'm feeling. We live in a college town (my DH went to school here and we liked the area so much we ended up staying after he graduated) so there are not many local support groups for anything that i've found... yet! I'm really hoping to meet parents of CF children as well as meet other children and adults that are living with CF. I really think getting to know other families will be what does help both my husband and I.
<br />
<br />My husband has been so positive which is good since i pretty much crumbled. I know i have to "put my big girl panties on" and push on, and i will in time i think, but it's all so new and so scary.
<br />
<br />From what the doctor has said as far as the salt prep intake before his sweat test it's to help him sweat even more and they take this extra salt intake into account when they check for elevated chloride levels. Both my husband and I really do not want to do the salt at all. I can't give the bottles to him with the salt anymore as it breaks my heart hearing him cough and get so congested sounding after drinking the yuck mix. Plus, i'd much rather be breastfeeding him which i can't do if i have to give him this salt. We've been doing 1/2 of the 1/8tsp into bottles. So he essentially is getting 2 different bottles with salt in them.
<br />
<br />Thank you for your reply and for welcoming me! It really means so much to me to be able to talk to others that have gone through the same thing.
 
R

Ratatosk

Administrator
Staff member
I too had similar feelings when DS was diagnosed at less than a week old. Someone compared it going thru the grief process -- anger, denial... I remember feeling so overwhelmed with whatifs. I'd walk to the cafeteria and see mom's coming from childbirth classes and I'd feel anger at their supposed perfect lives. At the unfairness of ds having cf.

DS was in the NICU recovering from surgery due to meconium illeus and when the blood test results came back they had a cf doctor come talk to us. DH's was afraid DS would be the sickly child that no one would play with, there was so much uncertainty. The doctor introduced us to one of his teenage patients and we were amazed at how normal she looked.

Basically we just took (take) it one day at a time. Got into a routine -- cpt, nebs, medicines, feedings and gained a little more confidence each day. Try to remember that your baby is pretty much a "normal little boy" who just needs a few extra things to keep him healthy. Try to ENJOY normal baby things. I was so worried and overwhelmed that first year that I regret missing out on so much, so many normal baby things.

Oh and we didn't have to add salt to the bottles, but they did have ds start on pregistimil formula which he HATED! Tasted like vomit and the way roadkill smells. Yes, I tasted it and then made DH taste it and then we demanded that he be switched to regular formula. After a week on that stuff DS had a dreadful bottle aversion which stressed us out to no end with his feeds.
 
R

Ratatosk

Administrator
Staff member
I too had similar feelings when DS was diagnosed at less than a week old. Someone compared it going thru the grief process -- anger, denial... I remember feeling so overwhelmed with whatifs. I'd walk to the cafeteria and see mom's coming from childbirth classes and I'd feel anger at their supposed perfect lives. At the unfairness of ds having cf.

DS was in the NICU recovering from surgery due to meconium illeus and when the blood test results came back they had a cf doctor come talk to us. DH's was afraid DS would be the sickly child that no one would play with, there was so much uncertainty. The doctor introduced us to one of his teenage patients and we were amazed at how normal she looked.

Basically we just took (take) it one day at a time. Got into a routine -- cpt, nebs, medicines, feedings and gained a little more confidence each day. Try to remember that your baby is pretty much a "normal little boy" who just needs a few extra things to keep him healthy. Try to ENJOY normal baby things. I was so worried and overwhelmed that first year that I regret missing out on so much, so many normal baby things.

Oh and we didn't have to add salt to the bottles, but they did have ds start on pregistimil formula which he HATED! Tasted like vomit and the way roadkill smells. Yes, I tasted it and then made DH taste it and then we demanded that he be switched to regular formula. After a week on that stuff DS had a dreadful bottle aversion which stressed us out to no end with his feeds.
 
R

Ratatosk

Administrator
Staff member
I too had similar feelings when DS was diagnosed at less than a week old. Someone compared it going thru the grief process -- anger, denial... I remember feeling so overwhelmed with whatifs. I'd walk to the cafeteria and see mom's coming from childbirth classes and I'd feel anger at their supposed perfect lives. At the unfairness of ds having cf.
<br />
<br />DS was in the NICU recovering from surgery due to meconium illeus and when the blood test results came back they had a cf doctor come talk to us. DH's was afraid DS would be the sickly child that no one would play with, there was so much uncertainty. The doctor introduced us to one of his teenage patients and we were amazed at how normal she looked.
<br />
<br />Basically we just took (take) it one day at a time. Got into a routine -- cpt, nebs, medicines, feedings and gained a little more confidence each day. Try to remember that your baby is pretty much a "normal little boy" who just needs a few extra things to keep him healthy. Try to ENJOY normal baby things. I was so worried and overwhelmed that first year that I regret missing out on so much, so many normal baby things.
<br />
<br />Oh and we didn't have to add salt to the bottles, but they did have ds start on pregistimil formula which he HATED! Tasted like vomit and the way roadkill smells. Yes, I tasted it and then made DH taste it and then we demanded that he be switched to regular formula. After a week on that stuff DS had a dreadful bottle aversion which stressed us out to no end with his feeds.
 
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