4 and a half year old daughter

elise · Dec 7, 2007

She has been very healthy until a month ago when she had a asmha attack.
Hospitalized for 3 days then sent home, after the doctor requested a sweat test done to her.
So we did the first one, not enough sweat.
Went back the next week test was good and result was 61
I'm new here and what does that mean??
We are going next week for another sweat test
They referred her to cf specialist next month for further tests
What should i expect?
Thank you all

elise · Dec 7, 2007

She has been very healthy until a month ago when she had a asmha attack.
Hospitalized for 3 days then sent home, after the doctor requested a sweat test done to her.
So we did the first one, not enough sweat.
Went back the next week test was good and result was 61
I'm new here and what does that mean??
We are going next week for another sweat test
They referred her to cf specialist next month for further tests
What should i expect?
Thank you all

elise · Dec 7, 2007

She has been very healthy until a month ago when she had a asmha attack.
Hospitalized for 3 days then sent home, after the doctor requested a sweat test done to her.
So we did the first one, not enough sweat.
Went back the next week test was good and result was 61
I'm new here and what does that mean??
We are going next week for another sweat test
They referred her to cf specialist next month for further tests
What should i expect?
Thank you all

elise · Dec 7, 2007

She has been very healthy until a month ago when she had a asmha attack.
Hospitalized for 3 days then sent home, after the doctor requested a sweat test done to her.
So we did the first one, not enough sweat.
Went back the next week test was good and result was 61
I'm new here and what does that mean??
We are going next week for another sweat test
They referred her to cf specialist next month for further tests
What should i expect?
Thank you all

elise · Dec 7, 2007

She has been very healthy until a month ago when she had a asmha attack.
Hospitalized for 3 days then sent home, after the doctor requested a sweat test done to her.
So we did the first one, not enough sweat.
Went back the next week test was good and result was 61
I'm new here and what does that mean??
We are going next week for another sweat test
They referred her to cf specialist next month for further tests
What should i expect?
Thank you all

SHUZEN · Dec 7, 2007

I have a daughter 6years old and a Son not yet 1years old...both have CF, I rarely give them sweet things, although the specialist recommend it! Fruit is best, however, a little bit of candy/chocolate can go a long way!

There are people who say that people/children/infants suffering Cystic Fibrosis don't need to wear a "mouth shield" (MASK) however, I have discovered that it is appropriate to do so, even around parents/relatives/ (everyone) during continual close contact!

To avoid too many stays in hospital/s, the environment surrounding the CF sufferer must be kept as clean as possible (kill germs)
At least 2~3 times per week, use a mop soaked in "bleach ratio 20%" to clean the home floors (especially the bathroom, which is the major cause of prolonged CF suffering ! The bathroom+Toilet should be kept as clean as the dishes You eat from! Note! A home with "carpeted floors" and/or too much cloth, such as curtains, clothing lying around, books, paper etc will also contribute to "Suffering"!

"Water" never drink tap/faucet water...buy by bulk mineral water that has been approved by governmental bodies to be safe!

CF people/children need extra attention in every way!

Their immune system not only depends on the "drugs" prescribed to them but also on their/self own ability to participate with-in society while taking all precautions at the same time! (try to hide your precautions so as to not insult the ignorant who maybe will be there for You?)!

Exercise at least twice a week! (mild exercise preferred)

Try to prevent any negativity to Yourself/child/infant etc.

REMEMBER THIS! It is not Your fault or Your parents fault that You or Your Child etc has CF!

Hopefully, when Governments get their "act together" then their will quickly be found a cure for CF but not "WAR"

SHUZEN · Dec 7, 2007

I have a daughter 6years old and a Son not yet 1years old...both have CF, I rarely give them sweet things, although the specialist recommend it! Fruit is best, however, a little bit of candy/chocolate can go a long way!

There are people who say that people/children/infants suffering Cystic Fibrosis don't need to wear a "mouth shield" (MASK) however, I have discovered that it is appropriate to do so, even around parents/relatives/ (everyone) during continual close contact!

To avoid too many stays in hospital/s, the environment surrounding the CF sufferer must be kept as clean as possible (kill germs)
At least 2~3 times per week, use a mop soaked in "bleach ratio 20%" to clean the home floors (especially the bathroom, which is the major cause of prolonged CF suffering ! The bathroom+Toilet should be kept as clean as the dishes You eat from! Note! A home with "carpeted floors" and/or too much cloth, such as curtains, clothing lying around, books, paper etc will also contribute to "Suffering"!

"Water" never drink tap/faucet water...buy by bulk mineral water that has been approved by governmental bodies to be safe!

CF people/children need extra attention in every way!

Their immune system not only depends on the "drugs" prescribed to them but also on their/self own ability to participate with-in society while taking all precautions at the same time! (try to hide your precautions so as to not insult the ignorant who maybe will be there for You?)!

Exercise at least twice a week! (mild exercise preferred)

Try to prevent any negativity to Yourself/child/infant etc.

REMEMBER THIS! It is not Your fault or Your parents fault that You or Your Child etc has CF!

Hopefully, when Governments get their "act together" then their will quickly be found a cure for CF but not "WAR"

SHUZEN · Dec 7, 2007

I have a daughter 6years old and a Son not yet 1years old...both have CF, I rarely give them sweet things, although the specialist recommend it! Fruit is best, however, a little bit of candy/chocolate can go a long way!

There are people who say that people/children/infants suffering Cystic Fibrosis don't need to wear a "mouth shield" (MASK) however, I have discovered that it is appropriate to do so, even around parents/relatives/ (everyone) during continual close contact!

To avoid too many stays in hospital/s, the environment surrounding the CF sufferer must be kept as clean as possible (kill germs)
At least 2~3 times per week, use a mop soaked in "bleach ratio 20%" to clean the home floors (especially the bathroom, which is the major cause of prolonged CF suffering ! The bathroom+Toilet should be kept as clean as the dishes You eat from! Note! A home with "carpeted floors" and/or too much cloth, such as curtains, clothing lying around, books, paper etc will also contribute to "Suffering"!

"Water" never drink tap/faucet water...buy by bulk mineral water that has been approved by governmental bodies to be safe!

CF people/children need extra attention in every way!

Their immune system not only depends on the "drugs" prescribed to them but also on their/self own ability to participate with-in society while taking all precautions at the same time! (try to hide your precautions so as to not insult the ignorant who maybe will be there for You?)!

Exercise at least twice a week! (mild exercise preferred)

Try to prevent any negativity to Yourself/child/infant etc.

REMEMBER THIS! It is not Your fault or Your parents fault that You or Your Child etc has CF!

Hopefully, when Governments get their "act together" then their will quickly be found a cure for CF but not "WAR"

SHUZEN · Dec 7, 2007

I have a daughter 6years old and a Son not yet 1years old...both have CF, I rarely give them sweet things, although the specialist recommend it! Fruit is best, however, a little bit of candy/chocolate can go a long way!

There are people who say that people/children/infants suffering Cystic Fibrosis don't need to wear a "mouth shield" (MASK) however, I have discovered that it is appropriate to do so, even around parents/relatives/ (everyone) during continual close contact!

To avoid too many stays in hospital/s, the environment surrounding the CF sufferer must be kept as clean as possible (kill germs)
At least 2~3 times per week, use a mop soaked in "bleach ratio 20%" to clean the home floors (especially the bathroom, which is the major cause of prolonged CF suffering ! The bathroom+Toilet should be kept as clean as the dishes You eat from! Note! A home with "carpeted floors" and/or too much cloth, such as curtains, clothing lying around, books, paper etc will also contribute to "Suffering"!

"Water" never drink tap/faucet water...buy by bulk mineral water that has been approved by governmental bodies to be safe!

CF people/children need extra attention in every way!

Their immune system not only depends on the "drugs" prescribed to them but also on their/self own ability to participate with-in society while taking all precautions at the same time! (try to hide your precautions so as to not insult the ignorant who maybe will be there for You?)!

Exercise at least twice a week! (mild exercise preferred)

Try to prevent any negativity to Yourself/child/infant etc.

REMEMBER THIS! It is not Your fault or Your parents fault that You or Your Child etc has CF!

Hopefully, when Governments get their "act together" then their will quickly be found a cure for CF but not "WAR"

SHUZEN · Dec 7, 2007

I have a daughter 6years old and a Son not yet 1years old...both have CF, I rarely give them sweet things, although the specialist recommend it! Fruit is best, however, a little bit of candy/chocolate can go a long way!

There are people who say that people/children/infants suffering Cystic Fibrosis don't need to wear a "mouth shield" (MASK) however, I have discovered that it is appropriate to do so, even around parents/relatives/ (everyone) during continual close contact!

To avoid too many stays in hospital/s, the environment surrounding the CF sufferer must be kept as clean as possible (kill germs)
At least 2~3 times per week, use a mop soaked in "bleach ratio 20%" to clean the home floors (especially the bathroom, which is the major cause of prolonged CF suffering ! The bathroom+Toilet should be kept as clean as the dishes You eat from! Note! A home with "carpeted floors" and/or too much cloth, such as curtains, clothing lying around, books, paper etc will also contribute to "Suffering"!

"Water" never drink tap/faucet water...buy by bulk mineral water that has been approved by governmental bodies to be safe!

CF people/children need extra attention in every way!

Their immune system not only depends on the "drugs" prescribed to them but also on their/self own ability to participate with-in society while taking all precautions at the same time! (try to hide your precautions so as to not insult the ignorant who maybe will be there for You?)!

Exercise at least twice a week! (mild exercise preferred)

Try to prevent any negativity to Yourself/child/infant etc.

REMEMBER THIS! It is not Your fault or Your parents fault that You or Your Child etc has CF!

Hopefully, when Governments get their "act together" then their will quickly be found a cure for CF but not "WAR"

TonyaH · Dec 7, 2007

Hi there, and Welcome to the site,

Your first sweat test came back with a borderline number, so they are probably redoing the sweat test to see if they can get a more difinitive test score. Either way, if your daughter is showing signs of CF, you will want to ask for an Ambry test to check for genetic mutations. (Sweat tests have been known to give false negatives.)

I am sure this is all very overwhelming right now. How old is your daughter? What, other than what looked like an asthma attack, are the other symptom that lead the doctors to a sweat test?

Should your results come back positive, please know that you have found a wonderful community of people who are able to share their stories and help you with what you need to know to care for her. The majority of children with CF live very normal lives. Your day will consist of medications and therapies to keep her lungs and digestive system healthy but she will be able to exercise as much as she can, eat anything she wants, focusing on a high calorie diet that covers all of the food groups, go to school, play sports, anything she wants...The sky is the limit!

Try to take things a day at a time. If you are going to an accredited CF center, which you can find on www.CFF.org, you will recieve all of the latest information about CF care. And you can always come here to ask questions, too! Feel free to look around at the other threads and see what other families are talking about. You may get an idea of what type of maintenance is involved for CF. I might also suggest you visit the family section. There are many wonderful parents there who have experienced all of this.

Good luck and keep us posted!

TonyaH · Dec 7, 2007

Hi there, and Welcome to the site,

Your first sweat test came back with a borderline number, so they are probably redoing the sweat test to see if they can get a more difinitive test score. Either way, if your daughter is showing signs of CF, you will want to ask for an Ambry test to check for genetic mutations. (Sweat tests have been known to give false negatives.)

I am sure this is all very overwhelming right now. How old is your daughter? What, other than what looked like an asthma attack, are the other symptom that lead the doctors to a sweat test?

Should your results come back positive, please know that you have found a wonderful community of people who are able to share their stories and help you with what you need to know to care for her. The majority of children with CF live very normal lives. Your day will consist of medications and therapies to keep her lungs and digestive system healthy but she will be able to exercise as much as she can, eat anything she wants, focusing on a high calorie diet that covers all of the food groups, go to school, play sports, anything she wants...The sky is the limit!

Try to take things a day at a time. If you are going to an accredited CF center, which you can find on www.CFF.org, you will recieve all of the latest information about CF care. And you can always come here to ask questions, too! Feel free to look around at the other threads and see what other families are talking about. You may get an idea of what type of maintenance is involved for CF. I might also suggest you visit the family section. There are many wonderful parents there who have experienced all of this.

Good luck and keep us posted!

TonyaH · Dec 7, 2007

Hi there, and Welcome to the site,

Your first sweat test came back with a borderline number, so they are probably redoing the sweat test to see if they can get a more difinitive test score. Either way, if your daughter is showing signs of CF, you will want to ask for an Ambry test to check for genetic mutations. (Sweat tests have been known to give false negatives.)

I am sure this is all very overwhelming right now. How old is your daughter? What, other than what looked like an asthma attack, are the other symptom that lead the doctors to a sweat test?

Should your results come back positive, please know that you have found a wonderful community of people who are able to share their stories and help you with what you need to know to care for her. The majority of children with CF live very normal lives. Your day will consist of medications and therapies to keep her lungs and digestive system healthy but she will be able to exercise as much as she can, eat anything she wants, focusing on a high calorie diet that covers all of the food groups, go to school, play sports, anything she wants...The sky is the limit!

Try to take things a day at a time. If you are going to an accredited CF center, which you can find on www.CFF.org, you will recieve all of the latest information about CF care. And you can always come here to ask questions, too! Feel free to look around at the other threads and see what other families are talking about. You may get an idea of what type of maintenance is involved for CF. I might also suggest you visit the family section. There are many wonderful parents there who have experienced all of this.

Good luck and keep us posted!

TonyaH · Dec 7, 2007

Hi there, and Welcome to the site,

Your first sweat test came back with a borderline number, so they are probably redoing the sweat test to see if they can get a more difinitive test score. Either way, if your daughter is showing signs of CF, you will want to ask for an Ambry test to check for genetic mutations. (Sweat tests have been known to give false negatives.)

I am sure this is all very overwhelming right now. How old is your daughter? What, other than what looked like an asthma attack, are the other symptom that lead the doctors to a sweat test?

Should your results come back positive, please know that you have found a wonderful community of people who are able to share their stories and help you with what you need to know to care for her. The majority of children with CF live very normal lives. Your day will consist of medications and therapies to keep her lungs and digestive system healthy but she will be able to exercise as much as she can, eat anything she wants, focusing on a high calorie diet that covers all of the food groups, go to school, play sports, anything she wants...The sky is the limit!

Try to take things a day at a time. If you are going to an accredited CF center, which you can find on www.CFF.org, you will recieve all of the latest information about CF care. And you can always come here to ask questions, too! Feel free to look around at the other threads and see what other families are talking about. You may get an idea of what type of maintenance is involved for CF. I might also suggest you visit the family section. There are many wonderful parents there who have experienced all of this.

Good luck and keep us posted!

TonyaH · Dec 7, 2007

Hi there, and Welcome to the site,

Your first sweat test came back with a borderline number, so they are probably redoing the sweat test to see if they can get a more difinitive test score. Either way, if your daughter is showing signs of CF, you will want to ask for an Ambry test to check for genetic mutations. (Sweat tests have been known to give false negatives.)

I am sure this is all very overwhelming right now. How old is your daughter? What, other than what looked like an asthma attack, are the other symptom that lead the doctors to a sweat test?

Should your results come back positive, please know that you have found a wonderful community of people who are able to share their stories and help you with what you need to know to care for her. The majority of children with CF live very normal lives. Your day will consist of medications and therapies to keep her lungs and digestive system healthy but she will be able to exercise as much as she can, eat anything she wants, focusing on a high calorie diet that covers all of the food groups, go to school, play sports, anything she wants...The sky is the limit!

Try to take things a day at a time. If you are going to an accredited CF center, which you can find on www.CFF.org, you will recieve all of the latest information about CF care. And you can always come here to ask questions, too! Feel free to look around at the other threads and see what other families are talking about. You may get an idea of what type of maintenance is involved for CF. I might also suggest you visit the family section. There are many wonderful parents there who have experienced all of this.

Good luck and keep us posted!

elise · Dec 7, 2007