4 yr old has another sweat test tomorrow

[em7729]

Hello - my 4 year old daughter was tested at Mayo Clinic last summer and it was negative (number was 6). We're going tomorrow to retest her due to the fact that she's had 2 serious lung infections within 6 months (pneumonia in April '08 and then a slightly collapsed lung a couple of weeks ago), sinus infections, and still sweats like crazy when she sleeps or exercises.

Am wondering what to do if she tests negative again...should I push for genetic testing?

 

[em7729]

Hello - my 4 year old daughter was tested at Mayo Clinic last summer and it was negative (number was 6). We're going tomorrow to retest her due to the fact that she's had 2 serious lung infections within 6 months (pneumonia in April '08 and then a slightly collapsed lung a couple of weeks ago), sinus infections, and still sweats like crazy when she sleeps or exercises.

Am wondering what to do if she tests negative again...should I push for genetic testing?

 

[em7729]

Hello - my 4 year old daughter was tested at Mayo Clinic last summer and it was negative (number was 6). We're going tomorrow to retest her due to the fact that she's had 2 serious lung infections within 6 months (pneumonia in April '08 and then a slightly collapsed lung a couple of weeks ago), sinus infections, and still sweats like crazy when she sleeps or exercises.

Am wondering what to do if she tests negative again...should I push for genetic testing?

 

[em7729]

Hello - my 4 year old daughter was tested at Mayo Clinic last summer and it was negative (number was 6). We're going tomorrow to retest her due to the fact that she's had 2 serious lung infections within 6 months (pneumonia in April '08 and then a slightly collapsed lung a couple of weeks ago), sinus infections, and still sweats like crazy when she sleeps or exercises.

Am wondering what to do if she tests negative again...should I push for genetic testing?

 

[em7729]

Hello - my 4 year old daughter was tested at Mayo Clinic last summer and it was negative (number was 6). We're going tomorrow to retest her due to the fact that she's had 2 serious lung infections within 6 months (pneumonia in April '08 and then a slightly collapsed lung a couple of weeks ago), sinus infections, and still sweats like crazy when she sleeps or exercises.
<br />
<br />Am wondering what to do if she tests negative again...should I push for genetic testing?

 

[just1more]

I would say you need the genetic screen regardless.

Sweat tests, while the standard, are not 100%. If she is showing signs, and they can't give you a clear explaination otherwise, then you need the genetic screen.

The full genetic panel would test and should give you a clear yes/no on CF. If yes, then you know what you are dealing with, if no then they (the Dr's) owe you more investigation and answers.

 

[just1more]

I would say you need the genetic screen regardless.

Sweat tests, while the standard, are not 100%. If she is showing signs, and they can't give you a clear explaination otherwise, then you need the genetic screen.

The full genetic panel would test and should give you a clear yes/no on CF. If yes, then you know what you are dealing with, if no then they (the Dr's) owe you more investigation and answers.

 

[just1more]

I would say you need the genetic screen regardless.

Sweat tests, while the standard, are not 100%. If she is showing signs, and they can't give you a clear explaination otherwise, then you need the genetic screen.

The full genetic panel would test and should give you a clear yes/no on CF. If yes, then you know what you are dealing with, if no then they (the Dr's) owe you more investigation and answers.

 

[just1more]

I would say you need the genetic screen regardless.

Sweat tests, while the standard, are not 100%. If she is showing signs, and they can't give you a clear explaination otherwise, then you need the genetic screen.

The full genetic panel would test and should give you a clear yes/no on CF. If yes, then you know what you are dealing with, if no then they (the Dr's) owe you more investigation and answers.

 

[just1more]

I would say you need the genetic screen regardless.
<br />
<br />Sweat tests, while the standard, are not 100%. If she is showing signs, and they can't give you a clear explaination otherwise, then you need the genetic screen.
<br />
<br />The full genetic panel would test and should give you a clear yes/no on CF. If yes, then you know what you are dealing with, if no then they (the Dr's) owe you more investigation and answers.

 

[em7729]

Thanks Tom - my gut says to push for the genetic testing regardless of what the sweat test comes out as. Her pediatrician said she didn't feel it was necessary to re-test for CF after her lung issues this last time, but her endo disagreed and ordered it. I mentioned the genetic testing to him, but he wanted to do the sweat test first, so not sure if it comes out negative, if he'll just not pursue it any longer.

 

[em7729]

Thanks Tom - my gut says to push for the genetic testing regardless of what the sweat test comes out as. Her pediatrician said she didn't feel it was necessary to re-test for CF after her lung issues this last time, but her endo disagreed and ordered it. I mentioned the genetic testing to him, but he wanted to do the sweat test first, so not sure if it comes out negative, if he'll just not pursue it any longer.

 

[em7729]

Thanks Tom - my gut says to push for the genetic testing regardless of what the sweat test comes out as. Her pediatrician said she didn't feel it was necessary to re-test for CF after her lung issues this last time, but her endo disagreed and ordered it. I mentioned the genetic testing to him, but he wanted to do the sweat test first, so not sure if it comes out negative, if he'll just not pursue it any longer.

 

[em7729]

Thanks Tom - my gut says to push for the genetic testing regardless of what the sweat test comes out as. Her pediatrician said she didn't feel it was necessary to re-test for CF after her lung issues this last time, but her endo disagreed and ordered it. I mentioned the genetic testing to him, but he wanted to do the sweat test first, so not sure if it comes out negative, if he'll just not pursue it any longer.

 

[em7729]

Thanks Tom - my gut says to push for the genetic testing regardless of what the sweat test comes out as. Her pediatrician said she didn't feel it was necessary to re-test for CF after her lung issues this last time, but her endo disagreed and ordered it. I mentioned the genetic testing to him, but he wanted to do the sweat test first, so not sure if it comes out negative, if he'll just not pursue it any longer.

 

[Alyssa]

dueling doctors... I love it

Count your blessings for the endo doc who wants to pursue the sweat test again.

Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility.

Best of luck!

 

[Alyssa]

dueling doctors... I love it

Count your blessings for the endo doc who wants to pursue the sweat test again.

Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility.

Best of luck!

 

[Alyssa]

dueling doctors... I love it

Count your blessings for the endo doc who wants to pursue the sweat test again.

Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility.

Best of luck!

 

[Alyssa]

dueling doctors... I love it

Count your blessings for the endo doc who wants to pursue the sweat test again.

Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility.

Best of luck!

 

[Alyssa]

dueling doctors... I love it
<br />
<br />Count your blessings for the endo doc who wants to pursue the sweat test again.
<br />
<br />Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility.
<br />
<br />Best of luck!