5 week old with pseudomonas

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annette</b></i>

I am reading your response correctly that you were diagnosed with pseudomonas at age 7 and still have it? Do you know how to prevent them from catching it? Thanks for you response.</end quote></div>

I wasnt dx with CF until I was 7 & have cultured pseudomonas ever since so I am sure I had it for years prior to my diagnoses, but it didnt become a problem until later.

Since I was diagnosed a bit later I never had the chance to eradicate it before it colonized. That is what you want to try & do.

PA (pseudomonas) is everywhere so you cant truly avoid it altogether. For healthy people its not an issue, but CF bodies are like magnets for it. Your best bet is commong sense with handwashing, avoiding too close contact with other CF patients etc. BUT chances of never culturing it are slim. It is the most commonly culture bacteria for CF patients.

Aggressive treatment & frequent follow ups are important since your little one culture young.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annette</b></i>

I am reading your response correctly that you were diagnosed with pseudomonas at age 7 and still have it? Do you know how to prevent them from catching it? Thanks for you response.</end quote></div>

I wasnt dx with CF until I was 7 & have cultured pseudomonas ever since so I am sure I had it for years prior to my diagnoses, but it didnt become a problem until later.

Since I was diagnosed a bit later I never had the chance to eradicate it before it colonized. That is what you want to try & do.

PA (pseudomonas) is everywhere so you cant truly avoid it altogether. For healthy people its not an issue, but CF bodies are like magnets for it. Your best bet is commong sense with handwashing, avoiding too close contact with other CF patients etc. BUT chances of never culturing it are slim. It is the most commonly culture bacteria for CF patients.

Aggressive treatment & frequent follow ups are important since your little one culture young.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annette</b></i>

I am reading your response correctly that you were diagnosed with pseudomonas at age 7 and still have it? Do you know how to prevent them from catching it? Thanks for you response.</end quote></div>

I wasnt dx with CF until I was 7 & have cultured pseudomonas ever since so I am sure I had it for years prior to my diagnoses, but it didnt become a problem until later.

Since I was diagnosed a bit later I never had the chance to eradicate it before it colonized. That is what you want to try & do.

PA (pseudomonas) is everywhere so you cant truly avoid it altogether. For healthy people its not an issue, but CF bodies are like magnets for it. Your best bet is commong sense with handwashing, avoiding too close contact with other CF patients etc. BUT chances of never culturing it are slim. It is the most commonly culture bacteria for CF patients.

Aggressive treatment & frequent follow ups are important since your little one culture young.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annette</b></i>

I am reading your response correctly that you were diagnosed with pseudomonas at age 7 and still have it? Do you know how to prevent them from catching it? Thanks for you response.</end quote>

I wasnt dx with CF until I was 7 & have cultured pseudomonas ever since so I am sure I had it for years prior to my diagnoses, but it didnt become a problem until later.

Since I was diagnosed a bit later I never had the chance to eradicate it before it colonized. That is what you want to try & do.

PA (pseudomonas) is everywhere so you cant truly avoid it altogether. For healthy people its not an issue, but CF bodies are like magnets for it. Your best bet is commong sense with handwashing, avoiding too close contact with other CF patients etc. BUT chances of never culturing it are slim. It is the most commonly culture bacteria for CF patients.

Aggressive treatment & frequent follow ups are important since your little one culture young.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>annette</b></i>

I am reading your response correctly that you were diagnosed with pseudomonas at age 7 and still have it? Do you know how to prevent them from catching it? Thanks for you response.</end quote>

I wasnt dx with CF until I was 7 & have cultured pseudomonas ever since so I am sure I had it for years prior to my diagnoses, but it didnt become a problem until later.

Since I was diagnosed a bit later I never had the chance to eradicate it before it colonized. That is what you want to try & do.

PA (pseudomonas) is everywhere so you cant truly avoid it altogether. For healthy people its not an issue, but CF bodies are like magnets for it. Your best bet is commong sense with handwashing, avoiding too close contact with other CF patients etc. BUT chances of never culturing it are slim. It is the most commonly culture bacteria for CF patients.

Aggressive treatment & frequent follow ups are important since your little one culture young.
 
U

usedtobeinca

Guest
So sorry to hear the news. Our Thomas cultured it at about that age - 4/5 weeks - acquired it in the hospital as he'd not yet been home. Our CF team employed a heavy-handed IV antibio (2 wks) followed by 6wks of TOBI regimen to eradicate the 'superficial' colony and prevent it from setting up shop for years if possible. So far so good - no psuedo 15mo later.

So hang in there - it is a pretty early culture but it can be dealt with effectively - though it is rough to see your little one undergo such heavy treatment at such a young age.
 
U

usedtobeinca

Guest
So sorry to hear the news. Our Thomas cultured it at about that age - 4/5 weeks - acquired it in the hospital as he'd not yet been home. Our CF team employed a heavy-handed IV antibio (2 wks) followed by 6wks of TOBI regimen to eradicate the 'superficial' colony and prevent it from setting up shop for years if possible. So far so good - no psuedo 15mo later.

So hang in there - it is a pretty early culture but it can be dealt with effectively - though it is rough to see your little one undergo such heavy treatment at such a young age.
 
U

usedtobeinca

Guest
So sorry to hear the news. Our Thomas cultured it at about that age - 4/5 weeks - acquired it in the hospital as he'd not yet been home. Our CF team employed a heavy-handed IV antibio (2 wks) followed by 6wks of TOBI regimen to eradicate the 'superficial' colony and prevent it from setting up shop for years if possible. So far so good - no psuedo 15mo later.

So hang in there - it is a pretty early culture but it can be dealt with effectively - though it is rough to see your little one undergo such heavy treatment at such a young age.
 
U

usedtobeinca

Guest
So sorry to hear the news. Our Thomas cultured it at about that age - 4/5 weeks - acquired it in the hospital as he'd not yet been home. Our CF team employed a heavy-handed IV antibio (2 wks) followed by 6wks of TOBI regimen to eradicate the 'superficial' colony and prevent it from setting up shop for years if possible. So far so good - no psuedo 15mo later.

So hang in there - it is a pretty early culture but it can be dealt with effectively - though it is rough to see your little one undergo such heavy treatment at such a young age.
 
U

usedtobeinca

Guest
So sorry to hear the news. Our Thomas cultured it at about that age - 4/5 weeks - acquired it in the hospital as he'd not yet been home. Our CF team employed a heavy-handed IV antibio (2 wks) followed by 6wks of TOBI regimen to eradicate the 'superficial' colony and prevent it from setting up shop for years if possible. So far so good - no psuedo 15mo later.

So hang in there - it is a pretty early culture but it can be dealt with effectively - though it is rough to see your little one undergo such heavy treatment at such a young age.
 

annette

New member
Thank you for your response. What is a sputum culture. Do you see a specialist for the GI issues along with a lung specialist? Thanks
 

annette

New member
Thank you for your response. What is a sputum culture. Do you see a specialist for the GI issues along with a lung specialist? Thanks
 

annette

New member
Thank you for your response. What is a sputum culture. Do you see a specialist for the GI issues along with a lung specialist? Thanks
 

annette

New member
Thank you for your response. What is a sputum culture. Do you see a specialist for the GI issues along with a lung specialist? Thanks
 

annette

New member
Thank you for your response. What is a sputum culture. Do you see a specialist for the GI issues along with a lung specialist? Thanks
 

Ratatosk

Administrator
Staff member
Babies and small children aren't able to cough, bring up mucus from their throat/lungs, so they do a throat culture instead. Last spring the respiratory therapist tried and tried to get DS to bring something up -- used hypertonic saline and a vest, but instead of spitting it into the cup, he swallowed it instead. Bleah!

Our local CF clinic has a regular pediatrician, gastro, pulmo specialists, a dietician, pediatric pharmacist, social worker and a respiratory therapist who are all part of the CF team.
 

Ratatosk

Administrator
Staff member
Babies and small children aren't able to cough, bring up mucus from their throat/lungs, so they do a throat culture instead. Last spring the respiratory therapist tried and tried to get DS to bring something up -- used hypertonic saline and a vest, but instead of spitting it into the cup, he swallowed it instead. Bleah!

Our local CF clinic has a regular pediatrician, gastro, pulmo specialists, a dietician, pediatric pharmacist, social worker and a respiratory therapist who are all part of the CF team.
 

Ratatosk

Administrator
Staff member
Babies and small children aren't able to cough, bring up mucus from their throat/lungs, so they do a throat culture instead. Last spring the respiratory therapist tried and tried to get DS to bring something up -- used hypertonic saline and a vest, but instead of spitting it into the cup, he swallowed it instead. Bleah!

Our local CF clinic has a regular pediatrician, gastro, pulmo specialists, a dietician, pediatric pharmacist, social worker and a respiratory therapist who are all part of the CF team.
 

Ratatosk

Administrator
Staff member
Babies and small children aren't able to cough, bring up mucus from their throat/lungs, so they do a throat culture instead. Last spring the respiratory therapist tried and tried to get DS to bring something up -- used hypertonic saline and a vest, but instead of spitting it into the cup, he swallowed it instead. Bleah!

Our local CF clinic has a regular pediatrician, gastro, pulmo specialists, a dietician, pediatric pharmacist, social worker and a respiratory therapist who are all part of the CF team.
 

Ratatosk

Administrator
Staff member
Babies and small children aren't able to cough, bring up mucus from their throat/lungs, so they do a throat culture instead. Last spring the respiratory therapist tried and tried to get DS to bring something up -- used hypertonic saline and a vest, but instead of spitting it into the cup, he swallowed it instead. Bleah!

Our local CF clinic has a regular pediatrician, gastro, pulmo specialists, a dietician, pediatric pharmacist, social worker and a respiratory therapist who are all part of the CF team.
 
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