A few questions i am new to this board

[anonymous]

I have just today found out that mucoviscidose is cystic fibrosis in english <img src="i/expressions/face-icon-small-sad.gif" border="0">
I am german and currently living in the USA with my husband who is military.
My cousing... german also has had this disease since she was a baby <img src="i/expressions/face-icon-small-sad.gif" border="0">
She is not doing to good at the moment... she is going to be 15 in october. But by the looks of her you wouldnt be able to tell!
She has to sleep with Oxygen during the night, and also has a tube in her tummy that feeds her during the night... She has had that tube in her tummy for about 2 years now. Also after or before every meal she has to take these little capsules to help her digest... I dont know much about this disease and am trying to find out as much as i can about it!
Are there any organisations that accept donations? And also do you know of any in Germany?
I am trying to help in any way i can... I never had brothers and sisters, so my cousin was always like my sister.. I love her dearly, but i am sure all of you are in pretty much the same pair of shoes i am in and understand where i am coming from <img src="i/expressions/face-icon-small-sad.gif" border="0">
Anyway i can help, Bazars, crafts, donations... i would be willing to help!
This is so sad to see my cousin being so ill all the time now!
Thanks for letting me rant!

Jasmin

 

[bgchastain]

Hi Jasmin
I'm so sorry to hear about your cousin. We have a foundation in the US called the Cystic Fiborsis Foundation and they accept donations. Their website is www.cff.org. You can learn more about them there. I'm not sure about Germany but I'm sure you can google it. Hope this helps and good luck.

 

[Jane]

Hi Jasmin,

I'm so sorry that your cousin is so sick. A lot of people with Cf have similar situations as you described about your cousin. It is an awful and complicated disease. If you look on the Cystic Fibrosis Foundation Website you can read a lot of information about it. On that site it will tell you about GREAT STRIDES walk for CF which is coming up in May. It is our biggest fundraiser and its lots of fun! You didn't say where you were living in the USA, but there are walk sites all over the place.

You are a very caring cousin to want to help.

Best wishes to you and your cousin in Germany.

Jane

 

[anonymous]

Hi Jasmin,

try www.muko.info . Its a german site with informations of cf and also donation possibilities, a forum (open: "Betroffene") and you can also ask questions which are answered by experts.

Greetings from Munich!!

Uli,43,cf/cfrd,Germany

 

[Faust]

I'm also German and have CF. CF seems to like Germans. Germans are like the Klingon's of Europe ya know. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

Hi Jasmin,

is your husband a pilot? Where do you stay in the USA?
My boyfriend has been a backseater in the german airforce and has also stayed in the USA for a while (long before we met). Now he is already retired, but one of his former pilots is in Pensacola now.

Uli,43,Germany,cf/cfrd

 

[anonymous]

Thank you for all your help!
I will check out those sites!!
And to answer your question... no he isnt a pilot LOL
He would have to be an officer to become a pilot, he is just enlisted! He works Intelligence... If that tells you anything... We will be moving back to germany in about 3 weeks... So i am actually pretty happy about that since i will get to spend lots of time with my cousin! <img src="i/expressions/face-icon-small-happy.gif" border="0">