To all you parents of children with CF:
I bet a lot of people post here who are looking for a diagnosis, glean wonderful advice and support from you, and then you never hear the final result from them. You are such a caring group of people, generous with your time, and whether a diagnosis for a newcomer comes out negative or positive, you deserve to hear from those you have taken the time to help along the way. Which is why I am posting this.
First of all, I want to say thank you for being there for me and answering my questions. My daughter's Ambry Amplified genetic test came back today with no known mutations. This is good news, yet I want you to know that I will never forget the families that still deal with this horrible disease, and if the opportunity comes along, will support you and your organizations in whatever ways I can, including my thoughts and prayers through the years.
Children are a gift from God. I messaged with someone on this board yesterday, and we spoke of how God handpicks our kids for us and places them in our care for a reason. He picked YOU out as moms and dads, grandparents, etc. for your precious children. Hang in there and God bless all your efforts.
I bet a lot of people post here who are looking for a diagnosis, glean wonderful advice and support from you, and then you never hear the final result from them. You are such a caring group of people, generous with your time, and whether a diagnosis for a newcomer comes out negative or positive, you deserve to hear from those you have taken the time to help along the way. Which is why I am posting this.
First of all, I want to say thank you for being there for me and answering my questions. My daughter's Ambry Amplified genetic test came back today with no known mutations. This is good news, yet I want you to know that I will never forget the families that still deal with this horrible disease, and if the opportunity comes along, will support you and your organizations in whatever ways I can, including my thoughts and prayers through the years.
Children are a gift from God. I messaged with someone on this board yesterday, and we spoke of how God handpicks our kids for us and places them in our care for a reason. He picked YOU out as moms and dads, grandparents, etc. for your precious children. Hang in there and God bless all your efforts.