A final thank you!!!...

jmom

New member
To all you parents of children with CF:
I bet a lot of people post here who are looking for a diagnosis, glean wonderful advice and support from you, and then you never hear the final result from them. You are such a caring group of people, generous with your time, and whether a diagnosis for a newcomer comes out negative or positive, you deserve to hear from those you have taken the time to help along the way. Which is why I am posting this.
First of all, I want to say thank you for being there for me and answering my questions. My daughter's Ambry Amplified genetic test came back today with no known mutations. This is good news, yet I want you to know that I will never forget the families that still deal with this horrible disease, and if the opportunity comes along, will support you and your organizations in whatever ways I can, including my thoughts and prayers through the years.
Children are a gift from God. I messaged with someone on this board yesterday, and we spoke of how God handpicks our kids for us and places them in our care for a reason. He picked YOU out as moms and dads, grandparents, etc. for your precious children. Hang in there and God bless all your efforts.
 

jmom

New member
To all you parents of children with CF:
I bet a lot of people post here who are looking for a diagnosis, glean wonderful advice and support from you, and then you never hear the final result from them. You are such a caring group of people, generous with your time, and whether a diagnosis for a newcomer comes out negative or positive, you deserve to hear from those you have taken the time to help along the way. Which is why I am posting this.
First of all, I want to say thank you for being there for me and answering my questions. My daughter's Ambry Amplified genetic test came back today with no known mutations. This is good news, yet I want you to know that I will never forget the families that still deal with this horrible disease, and if the opportunity comes along, will support you and your organizations in whatever ways I can, including my thoughts and prayers through the years.
Children are a gift from God. I messaged with someone on this board yesterday, and we spoke of how God handpicks our kids for us and places them in our care for a reason. He picked YOU out as moms and dads, grandparents, etc. for your precious children. Hang in there and God bless all your efforts.
 

jmom

New member
To all you parents of children with CF:
<br /> I bet a lot of people post here who are looking for a diagnosis, glean wonderful advice and support from you, and then you never hear the final result from them. You are such a caring group of people, generous with your time, and whether a diagnosis for a newcomer comes out negative or positive, you deserve to hear from those you have taken the time to help along the way. Which is why I am posting this.
<br /> First of all, I want to say thank you for being there for me and answering my questions. My daughter's Ambry Amplified genetic test came back today with no known mutations. This is good news, yet I want you to know that I will never forget the families that still deal with this horrible disease, and if the opportunity comes along, will support you and your organizations in whatever ways I can, including my thoughts and prayers through the years.
<br /> Children are a gift from God. I messaged with someone on this board yesterday, and we spoke of how God handpicks our kids for us and places them in our care for a reason. He picked YOU out as moms and dads, grandparents, etc. for your precious children. Hang in there and God bless all your efforts.
<br />
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traxster

New member
Jmom...I'm so happy that you have gotten your answer! What does it mean for your daughter now? Part of me would be relieved if my son's test came back with no known mutations, but that just opens the door for more testing because they are sure something is wrong.

Where do you go from here? Once we get our results back, I hope you check in so I can let you know!
 

traxster

New member
Jmom...I'm so happy that you have gotten your answer! What does it mean for your daughter now? Part of me would be relieved if my son's test came back with no known mutations, but that just opens the door for more testing because they are sure something is wrong.

Where do you go from here? Once we get our results back, I hope you check in so I can let you know!
 

traxster

New member
Jmom...I'm so happy that you have gotten your answer! What does it mean for your daughter now? Part of me would be relieved if my son's test came back with no known mutations, but that just opens the door for more testing because they are sure something is wrong.
<br />
<br />Where do you go from here? Once we get our results back, I hope you check in so I can let you know!
 

ktsmom

New member
Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
 

ktsmom

New member
Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
 

ktsmom

New member
Thank you for your kind words and for posting your results. Best wishes and good health to you and your daughter.
 

Eden

New member
Jmom, I am so incredibly happy to hear that the genetic test came back with no mutations, but as awful as some may think I am, my heart sank some when I read your post. This truly puts you back in square one, knowing something is wrong and having no idea what it is or how to help your child. The feeling of helplessness that goes along with no diagnosis, and therefore not knowing the best treatment for your daughter, is tormenting. I will continue to pray for you and your daughter. You are a truly wonderful person, who has offered insight and comfort to others even while you have been going through so much yourself. I will pm you my email address, please feel free to stay in touch.
 

Eden

New member
Jmom, I am so incredibly happy to hear that the genetic test came back with no mutations, but as awful as some may think I am, my heart sank some when I read your post. This truly puts you back in square one, knowing something is wrong and having no idea what it is or how to help your child. The feeling of helplessness that goes along with no diagnosis, and therefore not knowing the best treatment for your daughter, is tormenting. I will continue to pray for you and your daughter. You are a truly wonderful person, who has offered insight and comfort to others even while you have been going through so much yourself. I will pm you my email address, please feel free to stay in touch.
 

Eden

New member
Jmom, I am so incredibly happy to hear that the genetic test came back with no mutations, but as awful as some may think I am, my heart sank some when I read your post. This truly puts you back in square one, knowing something is wrong and having no idea what it is or how to help your child. The feeling of helplessness that goes along with no diagnosis, and therefore not knowing the best treatment for your daughter, is tormenting. I will continue to pray for you and your daughter. You are a truly wonderful person, who has offered insight and comfort to others even while you have been going through so much yourself. I will pm you my email address, please feel free to stay in touch.
 

hmw

New member
Wishing you the very, very best... and that you do find answers and help for your child! <img src="i/expressions/rose.gif" border="0">
 

hmw

New member
Wishing you the very, very best... and that you do find answers and help for your child! <img src="i/expressions/rose.gif" border="0">
 

hmw

New member
Wishing you the very, very best... and that you do find answers and help for your child! <img src="i/expressions/rose.gif" border="0">
 
I am so glad to hear that! I know you were relieved but in the same instance, frustrated. I hope for answers for your family. I am still going through trying to get a diagnosis too! Your in my prayers.
 
I am so glad to hear that! I know you were relieved but in the same instance, frustrated. I hope for answers for your family. I am still going through trying to get a diagnosis too! Your in my prayers.
 
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