A little bit paranoid

Landy · Oct 12, 2007

Do you normally produce much mucus in the first place?
I really didn't back when I used Pulmozyme and I think the way it is supposed to work is that it chips away at mucus, but in my case, there wasn't anything there to chip away at, so it was irritating my lung lining? and causing bleeds.
Keep us posted on how it goes.

And yup to the Wayne's World comparison. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Landy · Oct 12, 2007

Do you normally produce much mucus in the first place?
I really didn't back when I used Pulmozyme and I think the way it is supposed to work is that it chips away at mucus, but in my case, there wasn't anything there to chip away at, so it was irritating my lung lining? and causing bleeds.
Keep us posted on how it goes.

And yup to the Wayne's World comparison. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Landy · Oct 12, 2007

Do you normally produce much mucus in the first place?
I really didn't back when I used Pulmozyme and I think the way it is supposed to work is that it chips away at mucus, but in my case, there wasn't anything there to chip away at, so it was irritating my lung lining? and causing bleeds.
Keep us posted on how it goes.

And yup to the Wayne's World comparison. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Landy · Oct 12, 2007

Do you normally produce much mucus in the first place?
I really didn't back when I used Pulmozyme and I think the way it is supposed to work is that it chips away at mucus, but in my case, there wasn't anything there to chip away at, so it was irritating my lung lining? and causing bleeds.
Keep us posted on how it goes.

And yup to the Wayne's World comparison. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Landy · Oct 12, 2007

Do you normally produce much mucus in the first place?
I really didn't back when I used Pulmozyme and I think the way it is supposed to work is that it chips away at mucus, but in my case, there wasn't anything there to chip away at, so it was irritating my lung lining? and causing bleeds.
Keep us posted on how it goes.

And yup to the Wayne's World comparison. <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnnaH · Oct 13, 2007

I switched to mucomyst because of bleeding. I went off it for a month following a big bleed, and it made a huge difference. I still have them regularly, but it's reduced the number of biggies drastically.
For me, i didn't notice a difference between the mucomyst and pulmozone in terms of mucus production/apprance. I did notice a big change when i was off the thinners entirely. It was like someone had poured cement into my lungs.
Mucomyst is the grossest smelling/tasting stuff ever though. nastynastynasty.
You really just have to try it. If nothing happens, just go back on it.

Mucus thinners work differently than hyp. saline. Hypertonic moisturises and helps you hork stuff up(i'm sure someone has a more scientific explanation), mucus thinners thin. My doctor told me that it was not a replacement, and she didn't feel comfortable putting me on it 3 times a day. She felt that it would just irritate my lungs.

One other thing that made a big difference was not lifting heavy things. Basically i cannot lift anything over 20 pounds or my lungs get very angry. That really helped with the constant streaking.

AnnaH · Oct 13, 2007

I switched to mucomyst because of bleeding. I went off it for a month following a big bleed, and it made a huge difference. I still have them regularly, but it's reduced the number of biggies drastically.
For me, i didn't notice a difference between the mucomyst and pulmozone in terms of mucus production/apprance. I did notice a big change when i was off the thinners entirely. It was like someone had poured cement into my lungs.
Mucomyst is the grossest smelling/tasting stuff ever though. nastynastynasty.
You really just have to try it. If nothing happens, just go back on it.

Mucus thinners work differently than hyp. saline. Hypertonic moisturises and helps you hork stuff up(i'm sure someone has a more scientific explanation), mucus thinners thin. My doctor told me that it was not a replacement, and she didn't feel comfortable putting me on it 3 times a day. She felt that it would just irritate my lungs.

One other thing that made a big difference was not lifting heavy things. Basically i cannot lift anything over 20 pounds or my lungs get very angry. That really helped with the constant streaking.

AnnaH · Oct 13, 2007

I switched to mucomyst because of bleeding. I went off it for a month following a big bleed, and it made a huge difference. I still have them regularly, but it's reduced the number of biggies drastically.
For me, i didn't notice a difference between the mucomyst and pulmozone in terms of mucus production/apprance. I did notice a big change when i was off the thinners entirely. It was like someone had poured cement into my lungs.
Mucomyst is the grossest smelling/tasting stuff ever though. nastynastynasty.
You really just have to try it. If nothing happens, just go back on it.

Mucus thinners work differently than hyp. saline. Hypertonic moisturises and helps you hork stuff up(i'm sure someone has a more scientific explanation), mucus thinners thin. My doctor told me that it was not a replacement, and she didn't feel comfortable putting me on it 3 times a day. She felt that it would just irritate my lungs.

One other thing that made a big difference was not lifting heavy things. Basically i cannot lift anything over 20 pounds or my lungs get very angry. That really helped with the constant streaking.

AnnaH · Oct 13, 2007

I switched to mucomyst because of bleeding. I went off it for a month following a big bleed, and it made a huge difference. I still have them regularly, but it's reduced the number of biggies drastically.
For me, i didn't notice a difference between the mucomyst and pulmozone in terms of mucus production/apprance. I did notice a big change when i was off the thinners entirely. It was like someone had poured cement into my lungs.
Mucomyst is the grossest smelling/tasting stuff ever though. nastynastynasty.
You really just have to try it. If nothing happens, just go back on it.

Mucus thinners work differently than hyp. saline. Hypertonic moisturises and helps you hork stuff up(i'm sure someone has a more scientific explanation), mucus thinners thin. My doctor told me that it was not a replacement, and she didn't feel comfortable putting me on it 3 times a day. She felt that it would just irritate my lungs.

One other thing that made a big difference was not lifting heavy things. Basically i cannot lift anything over 20 pounds or my lungs get very angry. That really helped with the constant streaking.

AnnaH · Oct 13, 2007

I switched to mucomyst because of bleeding. I went off it for a month following a big bleed, and it made a huge difference. I still have them regularly, but it's reduced the number of biggies drastically.
For me, i didn't notice a difference between the mucomyst and pulmozone in terms of mucus production/apprance. I did notice a big change when i was off the thinners entirely. It was like someone had poured cement into my lungs.
Mucomyst is the grossest smelling/tasting stuff ever though. nastynastynasty.
You really just have to try it. If nothing happens, just go back on it.

Mucus thinners work differently than hyp. saline. Hypertonic moisturises and helps you hork stuff up(i'm sure someone has a more scientific explanation), mucus thinners thin. My doctor told me that it was not a replacement, and she didn't feel comfortable putting me on it 3 times a day. She felt that it would just irritate my lungs.

One other thing that made a big difference was not lifting heavy things. Basically i cannot lift anything over 20 pounds or my lungs get very angry. That really helped with the constant streaking.

Faust · Oct 13, 2007