If only! After so many years Imogene is known by many of us. Jeanne has been dedicated to supporting and serving our community for 20+ years and I understand that she came across this noble cause almost by accident.
It is a nearly impossible effort to launch a new and improved site. If what passes for proofread material used in business, legal documents and statements was read as instructions for a computer, I doubt it would ever be correct. My point is this is a substantial amount of work done in order to improve our experience with CysticFibrosis.Com, hopefully making searches for information better and moving us toward a variety of methods for optimizing CF management, logging useful biometrics to share with your CF team.
Jeanne and her talented team have listened to us. Our needs, complaints and concerns are being met with thoughtful and a comprehensive ideas that we hope will solve the problems of a life shuttling between doctors and clinics and sustaining and perpetuating this wonderful resource.
Before anybody expects the new format to work perfectly from the first day, consider Edison tested over10,000 filiments before settling on a carbonized coconut fiber. It lasted 8 hours and was considered a breakthrough.
My wife retired last year after 16 years as an IT professional. Once it was discovered that she has a talent for breaking software, it became a specialty she periodically employed as a team developed a given software program. Her secret was to act like a client wishing to accomplish an action like placing a bid or checking out the details of an offering. In other words, have a successful online experience. My hope is everything goes smoothly and efficiently. Don't lose patience, this isn't being done because it can be. The results are going to be worth any inconvenience in the short term.
I am excited,
LL
