A qu about Chest PT and reflux

purplemartin

New member
My son also had severe reflux, along with the choking, liquid coming out of nose, secondary infections from the reflux, slow growth rate, projectile vomiting of ounces and onces at a time, and aspirating pneumonia. We ended up having the nissan surgery due to the reflux and aspiration but we always performed CPT. However, they told us not to use any of the tilting exercises with CPT becuase of the reflux, only pounding.
 

amber682

New member
I don't know if this helps, Vinny didn't have too much trouble with reflux, but sometimes when we do chest PT I sit him up on my lap, facing to one side or the other, and kind of leaning over my arm. Then I use my other hand to do PT on one side ofhis back, while he's sitting up. I hope I explained that ok. Then I switch him to facing the other way and use my other hand to do the other side. Then I sit him on my lap, facing forward, leaning against me, to do the chest.

I just figured it might help because she will be sitting straight up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

amber682

New member
I don't know if this helps, Vinny didn't have too much trouble with reflux, but sometimes when we do chest PT I sit him up on my lap, facing to one side or the other, and kind of leaning over my arm. Then I use my other hand to do PT on one side ofhis back, while he's sitting up. I hope I explained that ok. Then I switch him to facing the other way and use my other hand to do the other side. Then I sit him on my lap, facing forward, leaning against me, to do the chest.

I just figured it might help because she will be sitting straight up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

amber682

New member
I don't know if this helps, Vinny didn't have too much trouble with reflux, but sometimes when we do chest PT I sit him up on my lap, facing to one side or the other, and kind of leaning over my arm. Then I use my other hand to do PT on one side ofhis back, while he's sitting up. I hope I explained that ok. Then I switch him to facing the other way and use my other hand to do the other side. Then I sit him on my lap, facing forward, leaning against me, to do the chest.

I just figured it might help because she will be sitting straight up.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Nicole

New member
Danny also had reflux and like your daughter would spit up/throw up large amounts even after it had been awhile since his last feeding. The only thing that really helped him was to be on pepcid and reglan. Reglan helps the food move through the stomach faster. However, we always did CPT, just no head down positions.
 

Nicole

New member
Danny also had reflux and like your daughter would spit up/throw up large amounts even after it had been awhile since his last feeding. The only thing that really helped him was to be on pepcid and reglan. Reglan helps the food move through the stomach faster. However, we always did CPT, just no head down positions.
 

Nicole

New member
Danny also had reflux and like your daughter would spit up/throw up large amounts even after it had been awhile since his last feeding. The only thing that really helped him was to be on pepcid and reglan. Reglan helps the food move through the stomach faster. However, we always did CPT, just no head down positions.
 

elle

New member
Hmm.. I am getting a little concerned now. Her CF team all discussed it and decided not to proceed with Chest PT for the time being and so I gathered that would be best for her. She took Motilium at one stage to try and empty her stomach contents out faster but I believe she had some side effects from taking it. She was restless and whingey and not herself and so I stopped giving it to her. She was back to her normal self soon after. Not sure if it was a coincidence or not but I have been reluctant to try it again. I am going to bring this all up at her next clinic appt. Maybe we need to try a different med other than Losec-?! I think on the whole her reflux <i>is </i>getting a little better. We are practising sitting up and will be starting solids *properly* soon so these are things that may help a bit too.

Just wanted to add that at times when she has sounded a little 'chesty' I have done Chest PT even for just a few mins. The time that I can usually get away with it is first thing in the morning. I try and encourage her to cough (by praising her and using the word 'cough') but it is pretty hard when she is still so little. I am hoping she catches on soon:)

Thanks for all of your responses!
 

elle

New member
Hmm.. I am getting a little concerned now. Her CF team all discussed it and decided not to proceed with Chest PT for the time being and so I gathered that would be best for her. She took Motilium at one stage to try and empty her stomach contents out faster but I believe she had some side effects from taking it. She was restless and whingey and not herself and so I stopped giving it to her. She was back to her normal self soon after. Not sure if it was a coincidence or not but I have been reluctant to try it again. I am going to bring this all up at her next clinic appt. Maybe we need to try a different med other than Losec-?! I think on the whole her reflux <i>is </i>getting a little better. We are practising sitting up and will be starting solids *properly* soon so these are things that may help a bit too.

Just wanted to add that at times when she has sounded a little 'chesty' I have done Chest PT even for just a few mins. The time that I can usually get away with it is first thing in the morning. I try and encourage her to cough (by praising her and using the word 'cough') but it is pretty hard when she is still so little. I am hoping she catches on soon:)

Thanks for all of your responses!
 

elle

New member
Hmm.. I am getting a little concerned now. Her CF team all discussed it and decided not to proceed with Chest PT for the time being and so I gathered that would be best for her. She took Motilium at one stage to try and empty her stomach contents out faster but I believe she had some side effects from taking it. She was restless and whingey and not herself and so I stopped giving it to her. She was back to her normal self soon after. Not sure if it was a coincidence or not but I have been reluctant to try it again. I am going to bring this all up at her next clinic appt. Maybe we need to try a different med other than Losec-?! I think on the whole her reflux <i>is </i>getting a little better. We are practising sitting up and will be starting solids *properly* soon so these are things that may help a bit too.

Just wanted to add that at times when she has sounded a little 'chesty' I have done Chest PT even for just a few mins. The time that I can usually get away with it is first thing in the morning. I try and encourage her to cough (by praising her and using the word 'cough') but it is pretty hard when she is still so little. I am hoping she catches on soon:)

Thanks for all of your responses!
 

izemmom

New member
Emily was like that at 6 months, too. I feel for you. I vividly remember being covered in vomit several times a day, not to mention she was covered, too, and the floor, and the furniture. It got better for us - hang in there.

We never stopped PT. I recall a conversation between our dietician (who wanted t put pt on hold to conserve calories, like you said) and our pulmonologist. The pulmo's take on it was, "She's vomiting four or more times a day, anyway. THe calories will be lost regardless of wheter we stop pt or not. So, lets not let the lungs get more damaged, do pt. She encouaraged us to play aroud with the timing to see what worked. Generally, doing it during a nap was best. The pulmo did say don't worry about having her "upside down". Just on her side to do the lowers. She did vomit occasionally during pt, but she never missed a treatment. I'm glad we didn't. can't imagine how we would have "reintroduced" it once she was older and the reflux subsided.

We were on omeprozole at first. Didn't work for her. We switched to prevacid (its generic form...lanzoeprosole). We're still on it even though she rarely vomits anymore. I'm scared to stop it...and she loves it. Goes to the refrigerator and points to it, gets all excited when we get out the syringe...Crazy kid!
 

izemmom

New member
Emily was like that at 6 months, too. I feel for you. I vividly remember being covered in vomit several times a day, not to mention she was covered, too, and the floor, and the furniture. It got better for us - hang in there.

We never stopped PT. I recall a conversation between our dietician (who wanted t put pt on hold to conserve calories, like you said) and our pulmonologist. The pulmo's take on it was, "She's vomiting four or more times a day, anyway. THe calories will be lost regardless of wheter we stop pt or not. So, lets not let the lungs get more damaged, do pt. She encouaraged us to play aroud with the timing to see what worked. Generally, doing it during a nap was best. The pulmo did say don't worry about having her "upside down". Just on her side to do the lowers. She did vomit occasionally during pt, but she never missed a treatment. I'm glad we didn't. can't imagine how we would have "reintroduced" it once she was older and the reflux subsided.

We were on omeprozole at first. Didn't work for her. We switched to prevacid (its generic form...lanzoeprosole). We're still on it even though she rarely vomits anymore. I'm scared to stop it...and she loves it. Goes to the refrigerator and points to it, gets all excited when we get out the syringe...Crazy kid!
 

izemmom

New member
Emily was like that at 6 months, too. I feel for you. I vividly remember being covered in vomit several times a day, not to mention she was covered, too, and the floor, and the furniture. It got better for us - hang in there.

We never stopped PT. I recall a conversation between our dietician (who wanted t put pt on hold to conserve calories, like you said) and our pulmonologist. The pulmo's take on it was, "She's vomiting four or more times a day, anyway. THe calories will be lost regardless of wheter we stop pt or not. So, lets not let the lungs get more damaged, do pt. She encouaraged us to play aroud with the timing to see what worked. Generally, doing it during a nap was best. The pulmo did say don't worry about having her "upside down". Just on her side to do the lowers. She did vomit occasionally during pt, but she never missed a treatment. I'm glad we didn't. can't imagine how we would have "reintroduced" it once she was older and the reflux subsided.

We were on omeprozole at first. Didn't work for her. We switched to prevacid (its generic form...lanzoeprosole). We're still on it even though she rarely vomits anymore. I'm scared to stop it...and she loves it. Goes to the refrigerator and points to it, gets all excited when we get out the syringe...Crazy kid!
 

okok

New member
I guess this will go against the grain a bit and my dd was not diagnosed until she was toddler so i have no real experience or knowledge in this department....but if i were you i wouldn't worry about cpt. You can start a CPT routine when your little one grows out of the reflux. Personally i think the risk of pneumonia due to aspiration and the possible growth delay is much scarier than not doing CPT. It sounds as if your little one has really bad reflux that is not responding well to medication. I think you should trust your doctors on this one and focus on making sure your daughter is well nourished. If your daughter is not well nourished that will have such a huge impact on her overall health and development. It will also effect her immune system and make her more susceptible to lung infections.

Anyway if you can figure out a way to do cpt without causing her to spit up then that is great but if it doesn't work out then i would just relax and wait it out. I know how scary this disease but you'll still have lots of time for preventative care after she grows out of her reflux too.

Good luck!
 

okok

New member
I guess this will go against the grain a bit and my dd was not diagnosed until she was toddler so i have no real experience or knowledge in this department....but if i were you i wouldn't worry about cpt. You can start a CPT routine when your little one grows out of the reflux. Personally i think the risk of pneumonia due to aspiration and the possible growth delay is much scarier than not doing CPT. It sounds as if your little one has really bad reflux that is not responding well to medication. I think you should trust your doctors on this one and focus on making sure your daughter is well nourished. If your daughter is not well nourished that will have such a huge impact on her overall health and development. It will also effect her immune system and make her more susceptible to lung infections.

Anyway if you can figure out a way to do cpt without causing her to spit up then that is great but if it doesn't work out then i would just relax and wait it out. I know how scary this disease but you'll still have lots of time for preventative care after she grows out of her reflux too.

Good luck!
 

okok

New member
I guess this will go against the grain a bit and my dd was not diagnosed until she was toddler so i have no real experience or knowledge in this department....but if i were you i wouldn't worry about cpt. You can start a CPT routine when your little one grows out of the reflux. Personally i think the risk of pneumonia due to aspiration and the possible growth delay is much scarier than not doing CPT. It sounds as if your little one has really bad reflux that is not responding well to medication. I think you should trust your doctors on this one and focus on making sure your daughter is well nourished. If your daughter is not well nourished that will have such a huge impact on her overall health and development. It will also effect her immune system and make her more susceptible to lung infections.

Anyway if you can figure out a way to do cpt without causing her to spit up then that is great but if it doesn't work out then i would just relax and wait it out. I know how scary this disease but you'll still have lots of time for preventative care after she grows out of her reflux too.

Good luck!
 

mum2kj

New member
its hard remembering back to six months <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can she blow bubbles yet, if she can you can try a tube in a bottle with some dishwashing liquid. we used to put food dye in it to make it different colours.

or maybe some whistles.

anything to get the lungs working.

I hope the reflux goes soon,

best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mum2kj

New member
its hard remembering back to six months <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can she blow bubbles yet, if she can you can try a tube in a bottle with some dishwashing liquid. we used to put food dye in it to make it different colours.

or maybe some whistles.

anything to get the lungs working.

I hope the reflux goes soon,

best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mum2kj

New member
its hard remembering back to six months <img src="i/expressions/face-icon-small-smile.gif" border="0">

Can she blow bubbles yet, if she can you can try a tube in a bottle with some dishwashing liquid. we used to put food dye in it to make it different colours.

or maybe some whistles.

anything to get the lungs working.

I hope the reflux goes soon,

best of luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

amber682

New member
On that note, Vinny's RT gave him some pinwheels. And somebody mentioned a harmonica once... but I guess 6 months might be too young.
 
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