A question from a worried mom

[Juniper]

I lived as much a normal life as possible for which i am grateful. My Mum worked as we didn't have much money either. I never felt i went without her love and if anything iy made me more independent and take control of my illness which is a good thing

 

[Juniper]

I lived as much a normal life as possible for which i am grateful. My Mum worked as we didn't have much money either. I never felt i went without her love and if anything iy made me more independent and take control of my illness which is a good thing

 

[Juniper]

I lived as much a normal life as possible for which i am grateful. My Mum worked as we didn't have much money either. I never felt i went without her love and if anything iy made me more independent and take control of my illness which is a good thing

 

[Juniper]

I lived as much a normal life as possible for which i am grateful. My Mum worked as we didn't have much money either. I never felt i went without her love and if anything iy made me more independent and take control of my illness which is a good thing

 

[Juniper]

I lived as much a normal life as possible for which i am grateful. My Mum worked as we didn't have much money either. I never felt i went without her love and if anything iy made me more independent and take control of my illness which is a good thing

 

[Havoc]

Yup, my mum did. Although, I was privately schooled and she worked as a secretary in the office there. The only real reason she felt she had to was that, even in 1st grade I was completely pancreatic insufficient and nobody at the school felt comfortable dosing my enzymes. Prior to being privately schooled I went to kindergarten at a public school where the school nurse would give me my enzymes. The only reason we switched to private schooling was because of a horrible strike at the public school, otherwise I probably would have never switched. I returned to public school in 9th grade, but obviously by then I could dose my own enzymes.

I would give it a go and see how things turn out. Like Juniper said, independence can be a good thing.

 

[Havoc]

Yup, my mum did. Although, I was privately schooled and she worked as a secretary in the office there. The only real reason she felt she had to was that, even in 1st grade I was completely pancreatic insufficient and nobody at the school felt comfortable dosing my enzymes. Prior to being privately schooled I went to kindergarten at a public school where the school nurse would give me my enzymes. The only reason we switched to private schooling was because of a horrible strike at the public school, otherwise I probably would have never switched. I returned to public school in 9th grade, but obviously by then I could dose my own enzymes.

I would give it a go and see how things turn out. Like Juniper said, independence can be a good thing.

 

[Havoc]

Yup, my mum did. Although, I was privately schooled and she worked as a secretary in the office there. The only real reason she felt she had to was that, even in 1st grade I was completely pancreatic insufficient and nobody at the school felt comfortable dosing my enzymes. Prior to being privately schooled I went to kindergarten at a public school where the school nurse would give me my enzymes. The only reason we switched to private schooling was because of a horrible strike at the public school, otherwise I probably would have never switched. I returned to public school in 9th grade, but obviously by then I could dose my own enzymes.

I would give it a go and see how things turn out. Like Juniper said, independence can be a good thing.

 

[Havoc]

Yup, my mum did. Although, I was privately schooled and she worked as a secretary in the office there. The only real reason she felt she had to was that, even in 1st grade I was completely pancreatic insufficient and nobody at the school felt comfortable dosing my enzymes. Prior to being privately schooled I went to kindergarten at a public school where the school nurse would give me my enzymes. The only reason we switched to private schooling was because of a horrible strike at the public school, otherwise I probably would have never switched. I returned to public school in 9th grade, but obviously by then I could dose my own enzymes.

I would give it a go and see how things turn out. Like Juniper said, independence can be a good thing.

 

[Havoc]

Yup, my mum did. Although, I was privately schooled and she worked as a secretary in the office there. The only real reason she felt she had to was that, even in 1st grade I was completely pancreatic insufficient and nobody at the school felt comfortable dosing my enzymes. Prior to being privately schooled I went to kindergarten at a public school where the school nurse would give me my enzymes. The only reason we switched to private schooling was because of a horrible strike at the public school, otherwise I probably would have never switched. I returned to public school in 9th grade, but obviously by then I could dose my own enzymes.
<br />
<br />I would give it a go and see how things turn out. Like Juniper said, independence can be a good thing.

 

[summer732]

My mom was a full time stay at home mom. We probably could have used the second income, but my parents chose for one parent to stay home. My mom was always there for doctor's appointments, made me snacks when I came home from school, and took me lunch to school when I wouldn't eat. I managed by High School to be independent despite all of this.

There were definite pros and cons to having my mom stay at home.

Pros: someone was always there to take me to the doctor. I never was in the hospital alone or stuck with awful hospital food. My mom was always making sure that I lived in a clean environment and that my bills were correct and my meds were there. When it came time for me to get a transplant, the listing went by time on the list, not how sick you were. My mom was available to move with me to New Orleans for me to be on a much shorter wait list than in the North East. Without that flexibility, I would not have made the wait time and surely would have died waiting for lungs.

Cons: My mom had made me her life. When I reached 14 and was able to do more on my own my mom went through a very difficult period. When I went away to college she had a tough time finding what she should be doing besides watching over me. And especially when we got back from New Orleans it was hard for her because I was so healthy and wanted to be out living my life. So while I do believe it was extremely beneficial to have her around and it most likely saved my life in the end, I know that she gave a lot up for me and I know that it was hard for her as well.

Even though my mom was home, I still went to public school. I was still expected to work after school or on the weekends. I was still expected to pitch in around the house and with my care. I think that the flexibility is nice (when I was sick my laundry was always done, someone always there to take care of me) and I always appreciated not having to worry about having a caretaker. But I think that it is definitely feasible to be just as good of a mother and just as solid a caretaker with a job. I'm naturally an independent person so it was easy for me to pull away and want to do things on my own. Some children might just sit back with a full time stay at home mom and expect everything to be done for them for the rest of their lives. I think that if you love your job and you want to keep at it, there is no shame in that and doesn't make you a bad mom whatsoever!

 

[summer732]

My mom was a full time stay at home mom. We probably could have used the second income, but my parents chose for one parent to stay home. My mom was always there for doctor's appointments, made me snacks when I came home from school, and took me lunch to school when I wouldn't eat. I managed by High School to be independent despite all of this.

There were definite pros and cons to having my mom stay at home.

Pros: someone was always there to take me to the doctor. I never was in the hospital alone or stuck with awful hospital food. My mom was always making sure that I lived in a clean environment and that my bills were correct and my meds were there. When it came time for me to get a transplant, the listing went by time on the list, not how sick you were. My mom was available to move with me to New Orleans for me to be on a much shorter wait list than in the North East. Without that flexibility, I would not have made the wait time and surely would have died waiting for lungs.

Cons: My mom had made me her life. When I reached 14 and was able to do more on my own my mom went through a very difficult period. When I went away to college she had a tough time finding what she should be doing besides watching over me. And especially when we got back from New Orleans it was hard for her because I was so healthy and wanted to be out living my life. So while I do believe it was extremely beneficial to have her around and it most likely saved my life in the end, I know that she gave a lot up for me and I know that it was hard for her as well.

Even though my mom was home, I still went to public school. I was still expected to work after school or on the weekends. I was still expected to pitch in around the house and with my care. I think that the flexibility is nice (when I was sick my laundry was always done, someone always there to take care of me) and I always appreciated not having to worry about having a caretaker. But I think that it is definitely feasible to be just as good of a mother and just as solid a caretaker with a job. I'm naturally an independent person so it was easy for me to pull away and want to do things on my own. Some children might just sit back with a full time stay at home mom and expect everything to be done for them for the rest of their lives. I think that if you love your job and you want to keep at it, there is no shame in that and doesn't make you a bad mom whatsoever!

 

[summer732]

My mom was a full time stay at home mom. We probably could have used the second income, but my parents chose for one parent to stay home. My mom was always there for doctor's appointments, made me snacks when I came home from school, and took me lunch to school when I wouldn't eat. I managed by High School to be independent despite all of this.

There were definite pros and cons to having my mom stay at home.

Pros: someone was always there to take me to the doctor. I never was in the hospital alone or stuck with awful hospital food. My mom was always making sure that I lived in a clean environment and that my bills were correct and my meds were there. When it came time for me to get a transplant, the listing went by time on the list, not how sick you were. My mom was available to move with me to New Orleans for me to be on a much shorter wait list than in the North East. Without that flexibility, I would not have made the wait time and surely would have died waiting for lungs.

Cons: My mom had made me her life. When I reached 14 and was able to do more on my own my mom went through a very difficult period. When I went away to college she had a tough time finding what she should be doing besides watching over me. And especially when we got back from New Orleans it was hard for her because I was so healthy and wanted to be out living my life. So while I do believe it was extremely beneficial to have her around and it most likely saved my life in the end, I know that she gave a lot up for me and I know that it was hard for her as well.

Even though my mom was home, I still went to public school. I was still expected to work after school or on the weekends. I was still expected to pitch in around the house and with my care. I think that the flexibility is nice (when I was sick my laundry was always done, someone always there to take care of me) and I always appreciated not having to worry about having a caretaker. But I think that it is definitely feasible to be just as good of a mother and just as solid a caretaker with a job. I'm naturally an independent person so it was easy for me to pull away and want to do things on my own. Some children might just sit back with a full time stay at home mom and expect everything to be done for them for the rest of their lives. I think that if you love your job and you want to keep at it, there is no shame in that and doesn't make you a bad mom whatsoever!

 

[summer732]

My mom was a full time stay at home mom. We probably could have used the second income, but my parents chose for one parent to stay home. My mom was always there for doctor's appointments, made me snacks when I came home from school, and took me lunch to school when I wouldn't eat. I managed by High School to be independent despite all of this.

There were definite pros and cons to having my mom stay at home.

Pros: someone was always there to take me to the doctor. I never was in the hospital alone or stuck with awful hospital food. My mom was always making sure that I lived in a clean environment and that my bills were correct and my meds were there. When it came time for me to get a transplant, the listing went by time on the list, not how sick you were. My mom was available to move with me to New Orleans for me to be on a much shorter wait list than in the North East. Without that flexibility, I would not have made the wait time and surely would have died waiting for lungs.

Cons: My mom had made me her life. When I reached 14 and was able to do more on my own my mom went through a very difficult period. When I went away to college she had a tough time finding what she should be doing besides watching over me. And especially when we got back from New Orleans it was hard for her because I was so healthy and wanted to be out living my life. So while I do believe it was extremely beneficial to have her around and it most likely saved my life in the end, I know that she gave a lot up for me and I know that it was hard for her as well.

Even though my mom was home, I still went to public school. I was still expected to work after school or on the weekends. I was still expected to pitch in around the house and with my care. I think that the flexibility is nice (when I was sick my laundry was always done, someone always there to take care of me) and I always appreciated not having to worry about having a caretaker. But I think that it is definitely feasible to be just as good of a mother and just as solid a caretaker with a job. I'm naturally an independent person so it was easy for me to pull away and want to do things on my own. Some children might just sit back with a full time stay at home mom and expect everything to be done for them for the rest of their lives. I think that if you love your job and you want to keep at it, there is no shame in that and doesn't make you a bad mom whatsoever!

 

[summer732]

My mom was a full time stay at home mom. We probably could have used the second income, but my parents chose for one parent to stay home. My mom was always there for doctor's appointments, made me snacks when I came home from school, and took me lunch to school when I wouldn't eat. I managed by High School to be independent despite all of this.
<br />
<br />There were definite pros and cons to having my mom stay at home.
<br />
<br />Pros: someone was always there to take me to the doctor. I never was in the hospital alone or stuck with awful hospital food. My mom was always making sure that I lived in a clean environment and that my bills were correct and my meds were there. When it came time for me to get a transplant, the listing went by time on the list, not how sick you were. My mom was available to move with me to New Orleans for me to be on a much shorter wait list than in the North East. Without that flexibility, I would not have made the wait time and surely would have died waiting for lungs.
<br />
<br />Cons: My mom had made me her life. When I reached 14 and was able to do more on my own my mom went through a very difficult period. When I went away to college she had a tough time finding what she should be doing besides watching over me. And especially when we got back from New Orleans it was hard for her because I was so healthy and wanted to be out living my life. So while I do believe it was extremely beneficial to have her around and it most likely saved my life in the end, I know that she gave a lot up for me and I know that it was hard for her as well.
<br />
<br />Even though my mom was home, I still went to public school. I was still expected to work after school or on the weekends. I was still expected to pitch in around the house and with my care. I think that the flexibility is nice (when I was sick my laundry was always done, someone always there to take care of me) and I always appreciated not having to worry about having a caretaker. But I think that it is definitely feasible to be just as good of a mother and just as solid a caretaker with a job. I'm naturally an independent person so it was easy for me to pull away and want to do things on my own. Some children might just sit back with a full time stay at home mom and expect everything to be done for them for the rest of their lives. I think that if you love your job and you want to keep at it, there is no shame in that and doesn't make you a bad mom whatsoever!

 

[saveferris2009]

I'm really grateful my mom didn't work while I was a child.

She was able to take care of every little aspect of my health. Laying a strong foundation for health when a CFer is young can chart the course for the rest of his/her life.

I never had to put off going to see docs because my mom had work; and she was always there at clinic appts (until i was 14 or so and saw the doc on my own) to discuss with my docs instead of someone who sort of knows me but not as well as my mom.

When I was sick it was my mom there with me, not someone else (mom always feels best when sick).

I firmly believe no one cares for a child like a mom/dad. You can come close with another caregiver but it's just not the same both CF wise and otherwise as a mom and dad.

We lived very modestly growing up - for my mom to stay home with me was a big sacrifice for the whole family. But think of the money you save by not working - work wardrobe, gas/wear and tear on the car/ childcare costs, etc. It can add up.

Things that people often consider "essential" truely aren't - cable TV, take out food/prepared meals, cell phone, etc.

Nothing can take away the regret you might have if your child is sick and you can't be there. And when the child becomes and adult and is maybe sick, you could have that nagging feeling of what if I was home when the child was younger to ensure perfect care of the child's health.

No amount of money is worth that - and I am so grateful that my loving mom and dad saw it that way. I know I'm a healthier CFer for it, no question.

 

[saveferris2009]

I'm really grateful my mom didn't work while I was a child.

She was able to take care of every little aspect of my health. Laying a strong foundation for health when a CFer is young can chart the course for the rest of his/her life.

I never had to put off going to see docs because my mom had work; and she was always there at clinic appts (until i was 14 or so and saw the doc on my own) to discuss with my docs instead of someone who sort of knows me but not as well as my mom.

When I was sick it was my mom there with me, not someone else (mom always feels best when sick).

I firmly believe no one cares for a child like a mom/dad. You can come close with another caregiver but it's just not the same both CF wise and otherwise as a mom and dad.

We lived very modestly growing up - for my mom to stay home with me was a big sacrifice for the whole family. But think of the money you save by not working - work wardrobe, gas/wear and tear on the car/ childcare costs, etc. It can add up.

Things that people often consider "essential" truely aren't - cable TV, take out food/prepared meals, cell phone, etc.

Nothing can take away the regret you might have if your child is sick and you can't be there. And when the child becomes and adult and is maybe sick, you could have that nagging feeling of what if I was home when the child was younger to ensure perfect care of the child's health.

No amount of money is worth that - and I am so grateful that my loving mom and dad saw it that way. I know I'm a healthier CFer for it, no question.

 

[saveferris2009]

I'm really grateful my mom didn't work while I was a child.

She was able to take care of every little aspect of my health. Laying a strong foundation for health when a CFer is young can chart the course for the rest of his/her life.

I never had to put off going to see docs because my mom had work; and she was always there at clinic appts (until i was 14 or so and saw the doc on my own) to discuss with my docs instead of someone who sort of knows me but not as well as my mom.

When I was sick it was my mom there with me, not someone else (mom always feels best when sick).

I firmly believe no one cares for a child like a mom/dad. You can come close with another caregiver but it's just not the same both CF wise and otherwise as a mom and dad.

We lived very modestly growing up - for my mom to stay home with me was a big sacrifice for the whole family. But think of the money you save by not working - work wardrobe, gas/wear and tear on the car/ childcare costs, etc. It can add up.

Things that people often consider "essential" truely aren't - cable TV, take out food/prepared meals, cell phone, etc.

Nothing can take away the regret you might have if your child is sick and you can't be there. And when the child becomes and adult and is maybe sick, you could have that nagging feeling of what if I was home when the child was younger to ensure perfect care of the child's health.

No amount of money is worth that - and I am so grateful that my loving mom and dad saw it that way. I know I'm a healthier CFer for it, no question.

 

[saveferris2009]

I'm really grateful my mom didn't work while I was a child.

She was able to take care of every little aspect of my health. Laying a strong foundation for health when a CFer is young can chart the course for the rest of his/her life.

I never had to put off going to see docs because my mom had work; and she was always there at clinic appts (until i was 14 or so and saw the doc on my own) to discuss with my docs instead of someone who sort of knows me but not as well as my mom.

When I was sick it was my mom there with me, not someone else (mom always feels best when sick).

I firmly believe no one cares for a child like a mom/dad. You can come close with another caregiver but it's just not the same both CF wise and otherwise as a mom and dad.

We lived very modestly growing up - for my mom to stay home with me was a big sacrifice for the whole family. But think of the money you save by not working - work wardrobe, gas/wear and tear on the car/ childcare costs, etc. It can add up.

Things that people often consider "essential" truely aren't - cable TV, take out food/prepared meals, cell phone, etc.

Nothing can take away the regret you might have if your child is sick and you can't be there. And when the child becomes and adult and is maybe sick, you could have that nagging feeling of what if I was home when the child was younger to ensure perfect care of the child's health.

No amount of money is worth that - and I am so grateful that my loving mom and dad saw it that way. I know I'm a healthier CFer for it, no question.

 

[saveferris2009]

I'm really grateful my mom didn't work while I was a child.
<br />
<br />She was able to take care of every little aspect of my health. Laying a strong foundation for health when a CFer is young can chart the course for the rest of his/her life.
<br />
<br />I never had to put off going to see docs because my mom had work; and she was always there at clinic appts (until i was 14 or so and saw the doc on my own) to discuss with my docs instead of someone who sort of knows me but not as well as my mom.
<br />
<br />When I was sick it was my mom there with me, not someone else (mom always feels best when sick).
<br />
<br />I firmly believe no one cares for a child like a mom/dad. You can come close with another caregiver but it's just not the same both CF wise and otherwise as a mom and dad.
<br />
<br />We lived very modestly growing up - for my mom to stay home with me was a big sacrifice for the whole family. But think of the money you save by not working - work wardrobe, gas/wear and tear on the car/ childcare costs, etc. It can add up.
<br />
<br />Things that people often consider "essential" truely aren't - cable TV, take out food/prepared meals, cell phone, etc.
<br />
<br />Nothing can take away the regret you might have if your child is sick and you can't be there. And when the child becomes and adult and is maybe sick, you could have that nagging feeling of what if I was home when the child was younger to ensure perfect care of the child's health.
<br />
<br />No amount of money is worth that - and I am so grateful that my loving mom and dad saw it that way. I know I'm a healthier CFer for it, no question.