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A SENSITIVE ISSUE
- Thread starter yellowfrog
- Start date
Yellowfrog,
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
Yellowfrog,
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
Yellowfrog,
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
In my opinion there is no need to sit your daughter down and tell her cf is terminal. There is no point. She probably already knows if she goes into the hospital that theres something different anyway. i was never told, but rather was treated exactly the same way as my siblings. Wait until she asks questions. I wouldn't go and tell her, it would upset her unnessicarily. x
To be quite honest, who's to say which way is the best way to tell our children that their lives will be cut short because of CF? I was always a firm believer in my son knowing the truth from a very young age as I knew once he started to get that much older, it would be so much harder to deal with. I never sat him down to tell him, I just bought up the subject every now and then, whenever he rebelled about getting his meds, therapy, etc. He knew that if he didn't do all that he was supposed to, that he could end up getting sick and perhaps have to go into the hospital. We talked about how people die at different ages, whether it be in an accident or being sick, none of us know how long we have on this earth so the best thing to do is to take care of our health as best we can. Matt lost a friend to CF at an early age and I did tell him that no two CF'ers were alike with their illness and unfortunately his person's was much worse and that was even more reason to take good care of himself.
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06
To be quite honest, who's to say which way is the best way to tell our children that their lives will be cut short because of CF? I was always a firm believer in my son knowing the truth from a very young age as I knew once he started to get that much older, it would be so much harder to deal with. I never sat him down to tell him, I just bought up the subject every now and then, whenever he rebelled about getting his meds, therapy, etc. He knew that if he didn't do all that he was supposed to, that he could end up getting sick and perhaps have to go into the hospital. We talked about how people die at different ages, whether it be in an accident or being sick, none of us know how long we have on this earth so the best thing to do is to take care of our health as best we can. Matt lost a friend to CF at an early age and I did tell him that no two CF'ers were alike with their illness and unfortunately his person's was much worse and that was even more reason to take good care of himself.
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06
To be quite honest, who's to say which way is the best way to tell our children that their lives will be cut short because of CF? I was always a firm believer in my son knowing the truth from a very young age as I knew once he started to get that much older, it would be so much harder to deal with. I never sat him down to tell him, I just bought up the subject every now and then, whenever he rebelled about getting his meds, therapy, etc. He knew that if he didn't do all that he was supposed to, that he could end up getting sick and perhaps have to go into the hospital. We talked about how people die at different ages, whether it be in an accident or being sick, none of us know how long we have on this earth so the best thing to do is to take care of our health as best we can. Matt lost a friend to CF at an early age and I did tell him that no two CF'ers were alike with their illness and unfortunately his person's was much worse and that was even more reason to take good care of himself.
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06
I feel that I did the right thing but that's not to say it is the right way for others to do it. This way made it much easier for me and not such a shock for Matt later on finding out the truth, if I had not told him.........to me that would have been devastating for him.
On the other hand, when going through many of Matt's discs, I found an email that he had sent to me a few years back. He spoke of how he didn't do well in school because he didn't think he would be here long enough so he really didn't care. Later on he really didn't care about other things as he still thought his life would be cut short etc. I am going to try to find this email from him as I would really like to post it on this board for you to read. Again, I felt I did right by letting him know at a very early age, if only I could have made him realize just how much he had achieved in his lifetime.
If I had it to do over again, I still would have handled this the same way as I did before.
Sandy
Mom of Matt
Jan 6/78 - May 15/06