About being Pregnant.

Shine · Jun 24, 2008

Hi,

I came across another post that had been posted
sometime ago on this pregnacy forum and noticed
that most of the C.f women who were trying to conceive
or were pregant had an FEV 1 higher than 50%.

Now my questions are:

Is someone (like me) who has mutation DF508
and an FEV1 range between 50 - 55%,
at higher risk because it might compromise my health?
Maybe even not making it through the pregnacy?(worst case scenario)

Cause my C.F specialist said my health was fine at this stage
if I wanted to become pregant. But now I'm confused, as
other c.f women here on the forum, seem to have higher
Fev 1s than me.

I was told that you do lose 15% of your lung function
during pregnacy, so that would make my fev1 in the mid 40s.

Is my specialists wrong in saying this?
Or am I just worrying too much about this?

Is there any book or info out there, specifically written for C.F
women wanting to becoming pregant?

If I was planning to become pregant:

Do I ask my C.F doctor to refer me to an obstetrican
or get a referal from my local GP? What's the best way?

I'd really appreciate any info from c.f mothers who have been through pregnacy
or other c.f women who are halfway through their pregnacies this year.

Thanks in advice <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Jun 24, 2008

Hi,

I came across another post that had been posted
sometime ago on this pregnacy forum and noticed
that most of the C.f women who were trying to conceive
or were pregant had an FEV 1 higher than 50%.

Now my questions are:

Is someone (like me) who has mutation DF508
and an FEV1 range between 50 - 55%,
at higher risk because it might compromise my health?
Maybe even not making it through the pregnacy?(worst case scenario)

Cause my C.F specialist said my health was fine at this stage
if I wanted to become pregant. But now I'm confused, as
other c.f women here on the forum, seem to have higher
Fev 1s than me.

I was told that you do lose 15% of your lung function
during pregnacy, so that would make my fev1 in the mid 40s.

Is my specialists wrong in saying this?
Or am I just worrying too much about this?

Is there any book or info out there, specifically written for C.F
women wanting to becoming pregant?

If I was planning to become pregant:

Do I ask my C.F doctor to refer me to an obstetrican
or get a referal from my local GP? What's the best way?

I'd really appreciate any info from c.f mothers who have been through pregnacy
or other c.f women who are halfway through their pregnacies this year.

Thanks in advice <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Jun 24, 2008

Hi,

I came across another post that had been posted
sometime ago on this pregnacy forum and noticed
that most of the C.f women who were trying to conceive
or were pregant had an FEV 1 higher than 50%.

Now my questions are:

Is someone (like me) who has mutation DF508
and an FEV1 range between 50 - 55%,
at higher risk because it might compromise my health?
Maybe even not making it through the pregnacy?(worst case scenario)

Cause my C.F specialist said my health was fine at this stage
if I wanted to become pregant. But now I'm confused, as
other c.f women here on the forum, seem to have higher
Fev 1s than me.

I was told that you do lose 15% of your lung function
during pregnacy, so that would make my fev1 in the mid 40s.

Is my specialists wrong in saying this?
Or am I just worrying too much about this?

Is there any book or info out there, specifically written for C.F
women wanting to becoming pregant?

If I was planning to become pregant:

Do I ask my C.F doctor to refer me to an obstetrican
or get a referal from my local GP? What's the best way?

I'd really appreciate any info from c.f mothers who have been through pregnacy
or other c.f women who are halfway through their pregnacies this year.

Thanks in advice <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Jun 24, 2008

Hi,

I came across another post that had been posted
sometime ago on this pregnacy forum and noticed
that most of the C.f women who were trying to conceive
or were pregant had an FEV 1 higher than 50%.

Now my questions are:

Is someone (like me) who has mutation DF508
and an FEV1 range between 50 - 55%,
at higher risk because it might compromise my health?
Maybe even not making it through the pregnacy?(worst case scenario)

Cause my C.F specialist said my health was fine at this stage
if I wanted to become pregant. But now I'm confused, as
other c.f women here on the forum, seem to have higher
Fev 1s than me.

I was told that you do lose 15% of your lung function
during pregnacy, so that would make my fev1 in the mid 40s.

Is my specialists wrong in saying this?
Or am I just worrying too much about this?

Is there any book or info out there, specifically written for C.F
women wanting to becoming pregant?

If I was planning to become pregant:

Do I ask my C.F doctor to refer me to an obstetrican
or get a referal from my local GP? What's the best way?

I'd really appreciate any info from c.f mothers who have been through pregnacy
or other c.f women who are halfway through their pregnacies this year.

Thanks in advice <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Jun 24, 2008

Hi,
 
 I came across another post that had been posted
 sometime ago on this pregnacy forum and noticed
 that most of the C.f women who were trying to conceive
 or were pregant had an FEV 1 higher than 50%.
 
 Now my questions are:
 
 Is someone (like me) who has mutation DF508
 and an FEV1 range between 50 - 55%,
 at higher risk because it might compromise my health?
 Maybe even not making it through the pregnacy?(worst case scenario)
 
 Cause my C.F specialist said my health was fine at this stage
 if I wanted to become pregant. But now I'm confused, as
 other c.f women here on the forum, seem to have higher
 Fev 1s than me.
 
 I was told that you do lose 15% of your lung function
 during pregnacy, so that would make my fev1 in the mid 40s.
 
 Is my specialists wrong in saying this?
 Or am I just worrying too much about this?
 
 Is there any book or info out there, specifically written for C.F
 women wanting to becoming pregant?
 
 If I was planning to become pregant:
 
 Do I ask my C.F doctor to refer me to an obstetrican
 or get a referal from my local GP? What's the best way?
 
 I'd really appreciate any info from c.f mothers who have been through pregnacy
 or other c.f women who are halfway through their pregnacies this year.
 
 Thanks in advice <img src="i/expressions/face-icon-small-smile.gif" border="0">

tara · Jun 24, 2008

Honestly, every CFer is different and every pregnancy is different. I started out in the mid 50% range and ended up in the mid 60's at the end, full term with twins! But I had a dip into the low 40's in the middle of my pregnancy. My baseline health now is just slightly lower than my pre-pregnancy health, 4 years later. I think that's pretty darn good considering I'm also 4 years older. So if you want my opinion about my own pregnancy, I'd say it didn't affect my CF health at all. I put a lot of work into staying well before, during and after pregnancy though.

tara · Jun 24, 2008

Honestly, every CFer is different and every pregnancy is different. I started out in the mid 50% range and ended up in the mid 60's at the end, full term with twins! But I had a dip into the low 40's in the middle of my pregnancy. My baseline health now is just slightly lower than my pre-pregnancy health, 4 years later. I think that's pretty darn good considering I'm also 4 years older. So if you want my opinion about my own pregnancy, I'd say it didn't affect my CF health at all. I put a lot of work into staying well before, during and after pregnancy though.

tara · Jun 24, 2008

Honestly, every CFer is different and every pregnancy is different. I started out in the mid 50% range and ended up in the mid 60's at the end, full term with twins! But I had a dip into the low 40's in the middle of my pregnancy. My baseline health now is just slightly lower than my pre-pregnancy health, 4 years later. I think that's pretty darn good considering I'm also 4 years older. So if you want my opinion about my own pregnancy, I'd say it didn't affect my CF health at all. I put a lot of work into staying well before, during and after pregnancy though.

tara · Jun 24, 2008

Honestly, every CFer is different and every pregnancy is different. I started out in the mid 50% range and ended up in the mid 60's at the end, full term with twins! But I had a dip into the low 40's in the middle of my pregnancy. My baseline health now is just slightly lower than my pre-pregnancy health, 4 years later. I think that's pretty darn good considering I'm also 4 years older. So if you want my opinion about my own pregnancy, I'd say it didn't affect my CF health at all. I put a lot of work into staying well before, during and after pregnancy though.

tara · Jun 24, 2008

Honestly, every CFer is different and every pregnancy is different. I started out in the mid 50% range and ended up in the mid 60's at the end, full term with twins! But I had a dip into the low 40's in the middle of my pregnancy. My baseline health now is just slightly lower than my pre-pregnancy health, 4 years later. I think that's pretty darn good considering I'm also 4 years older. So if you want my opinion about my own pregnancy, I'd say it didn't affect my CF health at all. I put a lot of work into staying well before, during and after pregnancy though.

Keepercjr · Jun 24, 2008

Shine
FEV is just one measure of a person's overall health. It isn't the only measure. If your health is stable and has been for some time I'd think you are a better candidate than someone who has lost 15% in the last year but currently at 60%. Does that make sense? The studies show that 50% seems to be the cutoff - if you are below 50% when you get pregnant you run a much higher risk of having pregnancy negatively affect your health. As far as I know there is no book on CF and pregnancy - probably because there are so few of us who do this (relatively speaking). I can't see it being a big seller. My advice is to get your hands on the studies - and you can do that pretty easily by using google. Here is a website to get you started: <a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfpregnancy.htm">http://www3.nbnet.nb.ca/normap/cfpregnancy.htm</a> And this is another one that is a wealth of everything to do with fertility, pregnancy and after baby <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/
">http://www.geocities.com/murrensnaturemama/
</a>
As for finding an OBGYN - start looking now. Ask your CF doctor if there is someone they recommend, etc. In "interviewed" 2 before I got pregnant with my son. I wanted one who was comfortable being my doctor and someone I could develop a relationship with. The one I chose referred me to a perinatologist with whom I did tandem care - I saw her every 6 weeks for an ultrasound and visit and she sent her reports to my regular OB. I would think it would work the same if you wanted to see a midwife instead (you don't HAVE to see an OB).

As far as lung health after baby - my FEV1 was the same when I was TTC this pregnancy as it was when I got pregnant with my son (upper 60s). So it hadn't changed in 3 years and I had maintained that FEV1 for several years prior to getting pregnant. As of 1.5 months ago my FEV1 was the same as it was when I got pregnant (don't remember my FEV). I have another CF clinic appointment on July 9th when I'll be just about 36 weeks and we'll see where I'm at then.

Keepercjr · Jun 24, 2008

Shine
FEV is just one measure of a person's overall health. It isn't the only measure. If your health is stable and has been for some time I'd think you are a better candidate than someone who has lost 15% in the last year but currently at 60%. Does that make sense? The studies show that 50% seems to be the cutoff - if you are below 50% when you get pregnant you run a much higher risk of having pregnancy negatively affect your health. As far as I know there is no book on CF and pregnancy - probably because there are so few of us who do this (relatively speaking). I can't see it being a big seller. My advice is to get your hands on the studies - and you can do that pretty easily by using google. Here is a website to get you started: <a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfpregnancy.htm">http://www3.nbnet.nb.ca/normap/cfpregnancy.htm</a> And this is another one that is a wealth of everything to do with fertility, pregnancy and after baby <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/
">http://www.geocities.com/murrensnaturemama/
</a>
As for finding an OBGYN - start looking now. Ask your CF doctor if there is someone they recommend, etc. In "interviewed" 2 before I got pregnant with my son. I wanted one who was comfortable being my doctor and someone I could develop a relationship with. The one I chose referred me to a perinatologist with whom I did tandem care - I saw her every 6 weeks for an ultrasound and visit and she sent her reports to my regular OB. I would think it would work the same if you wanted to see a midwife instead (you don't HAVE to see an OB).

As far as lung health after baby - my FEV1 was the same when I was TTC this pregnancy as it was when I got pregnant with my son (upper 60s). So it hadn't changed in 3 years and I had maintained that FEV1 for several years prior to getting pregnant. As of 1.5 months ago my FEV1 was the same as it was when I got pregnant (don't remember my FEV). I have another CF clinic appointment on July 9th when I'll be just about 36 weeks and we'll see where I'm at then.

Keepercjr · Jun 24, 2008

Shine
FEV is just one measure of a person's overall health. It isn't the only measure. If your health is stable and has been for some time I'd think you are a better candidate than someone who has lost 15% in the last year but currently at 60%. Does that make sense? The studies show that 50% seems to be the cutoff - if you are below 50% when you get pregnant you run a much higher risk of having pregnancy negatively affect your health. As far as I know there is no book on CF and pregnancy - probably because there are so few of us who do this (relatively speaking). I can't see it being a big seller. My advice is to get your hands on the studies - and you can do that pretty easily by using google. Here is a website to get you started: <a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfpregnancy.htm">http://www3.nbnet.nb.ca/normap/cfpregnancy.htm</a> And this is another one that is a wealth of everything to do with fertility, pregnancy and after baby <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/
">http://www.geocities.com/murrensnaturemama/
</a>
As for finding an OBGYN - start looking now. Ask your CF doctor if there is someone they recommend, etc. In "interviewed" 2 before I got pregnant with my son. I wanted one who was comfortable being my doctor and someone I could develop a relationship with. The one I chose referred me to a perinatologist with whom I did tandem care - I saw her every 6 weeks for an ultrasound and visit and she sent her reports to my regular OB. I would think it would work the same if you wanted to see a midwife instead (you don't HAVE to see an OB).

As far as lung health after baby - my FEV1 was the same when I was TTC this pregnancy as it was when I got pregnant with my son (upper 60s). So it hadn't changed in 3 years and I had maintained that FEV1 for several years prior to getting pregnant. As of 1.5 months ago my FEV1 was the same as it was when I got pregnant (don't remember my FEV). I have another CF clinic appointment on July 9th when I'll be just about 36 weeks and we'll see where I'm at then.

Keepercjr · Jun 24, 2008

Shine
FEV is just one measure of a person's overall health. It isn't the only measure. If your health is stable and has been for some time I'd think you are a better candidate than someone who has lost 15% in the last year but currently at 60%. Does that make sense? The studies show that 50% seems to be the cutoff - if you are below 50% when you get pregnant you run a much higher risk of having pregnancy negatively affect your health. As far as I know there is no book on CF and pregnancy - probably because there are so few of us who do this (relatively speaking). I can't see it being a big seller. My advice is to get your hands on the studies - and you can do that pretty easily by using google. Here is a website to get you started: <a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfpregnancy.htm">http://www3.nbnet.nb.ca/normap/cfpregnancy.htm</a> And this is another one that is a wealth of everything to do with fertility, pregnancy and after baby <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/
">http://www.geocities.com/murrensnaturemama/
</a>
As for finding an OBGYN - start looking now. Ask your CF doctor if there is someone they recommend, etc. In "interviewed" 2 before I got pregnant with my son. I wanted one who was comfortable being my doctor and someone I could develop a relationship with. The one I chose referred me to a perinatologist with whom I did tandem care - I saw her every 6 weeks for an ultrasound and visit and she sent her reports to my regular OB. I would think it would work the same if you wanted to see a midwife instead (you don't HAVE to see an OB).

As far as lung health after baby - my FEV1 was the same when I was TTC this pregnancy as it was when I got pregnant with my son (upper 60s). So it hadn't changed in 3 years and I had maintained that FEV1 for several years prior to getting pregnant. As of 1.5 months ago my FEV1 was the same as it was when I got pregnant (don't remember my FEV). I have another CF clinic appointment on July 9th when I'll be just about 36 weeks and we'll see where I'm at then.

Keepercjr · Jun 24, 2008

Shine
 FEV is just one measure of a person's overall health. It isn't the only measure. If your health is stable and has been for some time I'd think you are a better candidate than someone who has lost 15% in the last year but currently at 60%. Does that make sense? The studies show that 50% seems to be the cutoff - if you are below 50% when you get pregnant you run a much higher risk of having pregnancy negatively affect your health. As far as I know there is no book on CF and pregnancy - probably because there are so few of us who do this (relatively speaking). I can't see it being a big seller. My advice is to get your hands on the studies - and you can do that pretty easily by using google. Here is a website to get you started: <a target=_blank class=ftalternatingbarlinklarge href="http://www3.nbnet.nb.ca/normap/cfpregnancy.htm">http://www3.nbnet.nb.ca/normap/cfpregnancy.htm</a> And this is another one that is a wealth of everything to do with fertility, pregnancy and after baby <a target=_blank class=ftalternatingbarlinklarge href="http://www.geocities.com/murrensnaturemama/
">http://www.geocities.com/murrensnaturemama/
</a> 
 As for finding an OBGYN - start looking now. Ask your CF doctor if there is someone they recommend, etc. In "interviewed" 2 before I got pregnant with my son. I wanted one who was comfortable being my doctor and someone I could develop a relationship with. The one I chose referred me to a perinatologist with whom I did tandem care - I saw her every 6 weeks for an ultrasound and visit and she sent her reports to my regular OB. I would think it would work the same if you wanted to see a midwife instead (you don't HAVE to see an OB).
 
 As far as lung health after baby - my FEV1 was the same when I was TTC this pregnancy as it was when I got pregnant with my son (upper 60s). So it hadn't changed in 3 years and I had maintained that FEV1 for several years prior to getting pregnant. As of 1.5 months ago my FEV1 was the same as it was when I got pregnant (don't remember my FEV). I have another CF clinic appointment on July 9th when I'll be just about 36 weeks and we'll see where I'm at then.

littlemisskris16 · Jun 24, 2008

Hi!

I am just at 50% and my drs. gave us the Ok to TTC. My dr told me it was not the # they went by, but the person and hoe often they are sick, if they do treatments, come to the drs.

For us, I am not on oral meds every month or IV every 6 months. My weight is stable and has been, and I am super cautious esp bc I have CF/rD as well.

My endro, CF and Ob/GYN are now Team Kristy! They talk and have all given us the okay. They all told me it was the whoel picture of a patient, not just a number.

I went to my Ob/gyn today and she gave me an internal sonogram, told me my Uterus is looking good and healthy and that I have ovulated, she took blood work to double check and my CM is thinner than her other CF patients. WOO HOO!

Just thought I would add my 2 cents, like I said, I agree that it is a whole picture.

Kris
31 NY'er with CF/rD

littlemisskris16 · Jun 24, 2008

Hi!

I am just at 50% and my drs. gave us the Ok to TTC. My dr told me it was not the # they went by, but the person and hoe often they are sick, if they do treatments, come to the drs.

For us, I am not on oral meds every month or IV every 6 months. My weight is stable and has been, and I am super cautious esp bc I have CF/rD as well.

My endro, CF and Ob/GYN are now Team Kristy! They talk and have all given us the okay. They all told me it was the whoel picture of a patient, not just a number.

I went to my Ob/gyn today and she gave me an internal sonogram, told me my Uterus is looking good and healthy and that I have ovulated, she took blood work to double check and my CM is thinner than her other CF patients. WOO HOO!

Just thought I would add my 2 cents, like I said, I agree that it is a whole picture.

Kris
31 NY'er with CF/rD

littlemisskris16 · Jun 24, 2008

Hi!

I am just at 50% and my drs. gave us the Ok to TTC. My dr told me it was not the # they went by, but the person and hoe often they are sick, if they do treatments, come to the drs.

For us, I am not on oral meds every month or IV every 6 months. My weight is stable and has been, and I am super cautious esp bc I have CF/rD as well.

My endro, CF and Ob/GYN are now Team Kristy! They talk and have all given us the okay. They all told me it was the whoel picture of a patient, not just a number.

I went to my Ob/gyn today and she gave me an internal sonogram, told me my Uterus is looking good and healthy and that I have ovulated, she took blood work to double check and my CM is thinner than her other CF patients. WOO HOO!

Just thought I would add my 2 cents, like I said, I agree that it is a whole picture.

Kris
31 NY'er with CF/rD

littlemisskris16 · Jun 24, 2008

Hi!

I am just at 50% and my drs. gave us the Ok to TTC. My dr told me it was not the # they went by, but the person and hoe often they are sick, if they do treatments, come to the drs.

For us, I am not on oral meds every month or IV every 6 months. My weight is stable and has been, and I am super cautious esp bc I have CF/rD as well.

My endro, CF and Ob/GYN are now Team Kristy! They talk and have all given us the okay. They all told me it was the whoel picture of a patient, not just a number.

I went to my Ob/gyn today and she gave me an internal sonogram, told me my Uterus is looking good and healthy and that I have ovulated, she took blood work to double check and my CM is thinner than her other CF patients. WOO HOO!

Just thought I would add my 2 cents, like I said, I agree that it is a whole picture.

Kris
31 NY'er with CF/rD

littlemisskris16 · Jun 24, 2008

Hi!
 
 I am just at 50% and my drs. gave us the Ok to TTC. My dr told me it was not the # they went by, but the person and hoe often they are sick, if they do treatments, come to the drs.
 
 For us, I am not on oral meds every month or IV every 6 months. My weight is stable and has been, and I am super cautious esp bc I have CF/rD as well.
 
 My endro, CF and Ob/GYN are now Team Kristy! They talk and have all given us the okay. They all told me it was the whoel picture of a patient, not just a number.
 
 I went to my Ob/gyn today and she gave me an internal sonogram, told me my Uterus is looking good and healthy and that I have ovulated, she took blood work to double check and my CM is thinner than her other CF patients. WOO HOO!
 
 Just thought I would add my 2 cents, like I said, I agree that it is a whole picture.
 
 Kris
 31 NY'er with CF/rD

About being Pregnant.

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