About being Pregnant.

Shine

Member
Thank you for answers <img src="i/expressions/face-icon-small-smile.gif" border="0">You guys are the best <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think when your've been TTC for over 2 years you start to loss hope and then the worry sets in that you hope your lung function won't decline while getting pregant and other c.f related things along the way.

But your replies have given me hope again in this area of pregnacy, not to give up, so I won't <img src="i/expressions/face-icon-small-smile.gif" border="0">

The run down on my overall health has been ok, I've stayed in the 50 - 55% range for 2 and bit years now. I am due to go to C.F clinic this tuesday (1st july), so I will ask my specialist about being refered to an OBGYN. I also haven't had much of a problem with my weight either in my life, but I do have to been on antibiotics via the nebuliser just about non stop in the year as well as go for I.V therapy once to twice a year.

Question:

Do you think having said the (above) about where I am at with my C.F, that having I.v therapy and constant antibiotics via the nebuliser would affect my if I conceived and was carrying baby?

I do know every c.f mother is different but that's probably my main concern at this stage.
 

Shine

Member
Thank you for answers <img src="i/expressions/face-icon-small-smile.gif" border="0">You guys are the best <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think when your've been TTC for over 2 years you start to loss hope and then the worry sets in that you hope your lung function won't decline while getting pregant and other c.f related things along the way.

But your replies have given me hope again in this area of pregnacy, not to give up, so I won't <img src="i/expressions/face-icon-small-smile.gif" border="0">

The run down on my overall health has been ok, I've stayed in the 50 - 55% range for 2 and bit years now. I am due to go to C.F clinic this tuesday (1st july), so I will ask my specialist about being refered to an OBGYN. I also haven't had much of a problem with my weight either in my life, but I do have to been on antibiotics via the nebuliser just about non stop in the year as well as go for I.V therapy once to twice a year.

Question:

Do you think having said the (above) about where I am at with my C.F, that having I.v therapy and constant antibiotics via the nebuliser would affect my if I conceived and was carrying baby?

I do know every c.f mother is different but that's probably my main concern at this stage.
 

Shine

Member
Thank you for answers <img src="i/expressions/face-icon-small-smile.gif" border="0">You guys are the best <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think when your've been TTC for over 2 years you start to loss hope and then the worry sets in that you hope your lung function won't decline while getting pregant and other c.f related things along the way.

But your replies have given me hope again in this area of pregnacy, not to give up, so I won't <img src="i/expressions/face-icon-small-smile.gif" border="0">

The run down on my overall health has been ok, I've stayed in the 50 - 55% range for 2 and bit years now. I am due to go to C.F clinic this tuesday (1st july), so I will ask my specialist about being refered to an OBGYN. I also haven't had much of a problem with my weight either in my life, but I do have to been on antibiotics via the nebuliser just about non stop in the year as well as go for I.V therapy once to twice a year.

Question:

Do you think having said the (above) about where I am at with my C.F, that having I.v therapy and constant antibiotics via the nebuliser would affect my if I conceived and was carrying baby?

I do know every c.f mother is different but that's probably my main concern at this stage.
 

Shine

Member
Thank you for answers <img src="i/expressions/face-icon-small-smile.gif" border="0">You guys are the best <img src="i/expressions/face-icon-small-smile.gif" border="0">

I think when your've been TTC for over 2 years you start to loss hope and then the worry sets in that you hope your lung function won't decline while getting pregant and other c.f related things along the way.

But your replies have given me hope again in this area of pregnacy, not to give up, so I won't <img src="i/expressions/face-icon-small-smile.gif" border="0">

The run down on my overall health has been ok, I've stayed in the 50 - 55% range for 2 and bit years now. I am due to go to C.F clinic this tuesday (1st july), so I will ask my specialist about being refered to an OBGYN. I also haven't had much of a problem with my weight either in my life, but I do have to been on antibiotics via the nebuliser just about non stop in the year as well as go for I.V therapy once to twice a year.

Question:

Do you think having said the (above) about where I am at with my C.F, that having I.v therapy and constant antibiotics via the nebuliser would affect my if I conceived and was carrying baby?

I do know every c.f mother is different but that's probably my main concern at this stage.
 

Shine

Member
Thank you for answers <img src="i/expressions/face-icon-small-smile.gif" border="0">You guys are the best <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />I think when your've been TTC for over 2 years you start to loss hope and then the worry sets in that you hope your lung function won't decline while getting pregant and other c.f related things along the way.
<br />
<br />But your replies have given me hope again in this area of pregnacy, not to give up, so I won't <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />The run down on my overall health has been ok, I've stayed in the 50 - 55% range for 2 and bit years now. I am due to go to C.F clinic this tuesday (1st july), so I will ask my specialist about being refered to an OBGYN. I also haven't had much of a problem with my weight either in my life, but I do have to been on antibiotics via the nebuliser just about non stop in the year as well as go for I.V therapy once to twice a year.
<br />
<br />Question:
<br />
<br />Do you think having said the (above) about where I am at with my C.F, that having I.v therapy and constant antibiotics via the nebuliser would affect my if I conceived and was carrying baby?
<br />
<br />I do know every c.f mother is different but that's probably my main concern at this stage.
 

rubyroselee

New member
Hi there,

I also agree with the others that it usually depends on your individual health and not so much the numbers, although I know a lot of clinics go by the 50% rule. Studies have found that patients with lower than 50% tend to not do as well during pregnancy, so that's why they say that. But it should also depend on how stable you've been, how compliant you are, what meds you take, etc. I think it's just something you and your doctor should decide and for you to discuss the risks involved for you and baby.

I am also (almost) on continuous nebulized antibiotics. My CF doctor tried to get me to lay off them for the first trimester, but I couldn't. I didn't want to risk getting sick from being off the tobra via neb. I had been taking it like that for many years and it works for me. I did have a flare up in my 2nd trimester, so I switched to colistin and it took care of it. They say that the meds via neb do not necessarily get into the bloodstream (like an IV does), so there should be minimal risk to the baby. My best judgement was to continue taking the meds as usual since I did not feel the baby was at risk. This method kept me off IVs and I avoided having to put meds into my bloodstream (although I know there are several safe IV meds out there for pregnancy).

If you wanted, I'm sure you could also set up a consultation with an OB and talk about your concerns about getting pregnant and what sort of things they would consider in your care. My infertility doctor mentioned that I do that prior to getting pregnant just to ease my thoughts because I was really concerned at the beginning. I wanted to make sure I was taking enough vitamins prior to TTC, that the meds I was on were okay for the baby, if they had any experience with CF women, etc. I ended up not doing it, but I don't think it would've been a bad idea.

Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,

I also agree with the others that it usually depends on your individual health and not so much the numbers, although I know a lot of clinics go by the 50% rule. Studies have found that patients with lower than 50% tend to not do as well during pregnancy, so that's why they say that. But it should also depend on how stable you've been, how compliant you are, what meds you take, etc. I think it's just something you and your doctor should decide and for you to discuss the risks involved for you and baby.

I am also (almost) on continuous nebulized antibiotics. My CF doctor tried to get me to lay off them for the first trimester, but I couldn't. I didn't want to risk getting sick from being off the tobra via neb. I had been taking it like that for many years and it works for me. I did have a flare up in my 2nd trimester, so I switched to colistin and it took care of it. They say that the meds via neb do not necessarily get into the bloodstream (like an IV does), so there should be minimal risk to the baby. My best judgement was to continue taking the meds as usual since I did not feel the baby was at risk. This method kept me off IVs and I avoided having to put meds into my bloodstream (although I know there are several safe IV meds out there for pregnancy).

If you wanted, I'm sure you could also set up a consultation with an OB and talk about your concerns about getting pregnant and what sort of things they would consider in your care. My infertility doctor mentioned that I do that prior to getting pregnant just to ease my thoughts because I was really concerned at the beginning. I wanted to make sure I was taking enough vitamins prior to TTC, that the meds I was on were okay for the baby, if they had any experience with CF women, etc. I ended up not doing it, but I don't think it would've been a bad idea.

Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,

I also agree with the others that it usually depends on your individual health and not so much the numbers, although I know a lot of clinics go by the 50% rule. Studies have found that patients with lower than 50% tend to not do as well during pregnancy, so that's why they say that. But it should also depend on how stable you've been, how compliant you are, what meds you take, etc. I think it's just something you and your doctor should decide and for you to discuss the risks involved for you and baby.

I am also (almost) on continuous nebulized antibiotics. My CF doctor tried to get me to lay off them for the first trimester, but I couldn't. I didn't want to risk getting sick from being off the tobra via neb. I had been taking it like that for many years and it works for me. I did have a flare up in my 2nd trimester, so I switched to colistin and it took care of it. They say that the meds via neb do not necessarily get into the bloodstream (like an IV does), so there should be minimal risk to the baby. My best judgement was to continue taking the meds as usual since I did not feel the baby was at risk. This method kept me off IVs and I avoided having to put meds into my bloodstream (although I know there are several safe IV meds out there for pregnancy).

If you wanted, I'm sure you could also set up a consultation with an OB and talk about your concerns about getting pregnant and what sort of things they would consider in your care. My infertility doctor mentioned that I do that prior to getting pregnant just to ease my thoughts because I was really concerned at the beginning. I wanted to make sure I was taking enough vitamins prior to TTC, that the meds I was on were okay for the baby, if they had any experience with CF women, etc. I ended up not doing it, but I don't think it would've been a bad idea.

Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,

I also agree with the others that it usually depends on your individual health and not so much the numbers, although I know a lot of clinics go by the 50% rule. Studies have found that patients with lower than 50% tend to not do as well during pregnancy, so that's why they say that. But it should also depend on how stable you've been, how compliant you are, what meds you take, etc. I think it's just something you and your doctor should decide and for you to discuss the risks involved for you and baby.

I am also (almost) on continuous nebulized antibiotics. My CF doctor tried to get me to lay off them for the first trimester, but I couldn't. I didn't want to risk getting sick from being off the tobra via neb. I had been taking it like that for many years and it works for me. I did have a flare up in my 2nd trimester, so I switched to colistin and it took care of it. They say that the meds via neb do not necessarily get into the bloodstream (like an IV does), so there should be minimal risk to the baby. My best judgement was to continue taking the meds as usual since I did not feel the baby was at risk. This method kept me off IVs and I avoided having to put meds into my bloodstream (although I know there are several safe IV meds out there for pregnancy).

If you wanted, I'm sure you could also set up a consultation with an OB and talk about your concerns about getting pregnant and what sort of things they would consider in your care. My infertility doctor mentioned that I do that prior to getting pregnant just to ease my thoughts because I was really concerned at the beginning. I wanted to make sure I was taking enough vitamins prior to TTC, that the meds I was on were okay for the baby, if they had any experience with CF women, etc. I ended up not doing it, but I don't think it would've been a bad idea.

Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

rubyroselee

New member
Hi there,
<br />
<br />I also agree with the others that it usually depends on your individual health and not so much the numbers, although I know a lot of clinics go by the 50% rule. Studies have found that patients with lower than 50% tend to not do as well during pregnancy, so that's why they say that. But it should also depend on how stable you've been, how compliant you are, what meds you take, etc. I think it's just something you and your doctor should decide and for you to discuss the risks involved for you and baby.
<br />
<br />I am also (almost) on continuous nebulized antibiotics. My CF doctor tried to get me to lay off them for the first trimester, but I couldn't. I didn't want to risk getting sick from being off the tobra via neb. I had been taking it like that for many years and it works for me. I did have a flare up in my 2nd trimester, so I switched to colistin and it took care of it. They say that the meds via neb do not necessarily get into the bloodstream (like an IV does), so there should be minimal risk to the baby. My best judgement was to continue taking the meds as usual since I did not feel the baby was at risk. This method kept me off IVs and I avoided having to put meds into my bloodstream (although I know there are several safe IV meds out there for pregnancy).
<br />
<br />If you wanted, I'm sure you could also set up a consultation with an OB and talk about your concerns about getting pregnant and what sort of things they would consider in your care. My infertility doctor mentioned that I do that prior to getting pregnant just to ease my thoughts because I was really concerned at the beginning. I wanted to make sure I was taking enough vitamins prior to TTC, that the meds I was on were okay for the baby, if they had any experience with CF women, etc. I ended up not doing it, but I don't think it would've been a bad idea.
<br />
<br />Good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Shine

Member
Hey Keepercj, thanks for the websites on pregnancy, have check it out and I can vaguley remember coming across one of the wwebsites a couple of years ago, but it looks to me that it has more recently updated articles on C.F womens pregnancies. There very informative so thanks heaps again <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Shine

Member
Hey Keepercj, thanks for the websites on pregnancy, have check it out and I can vaguley remember coming across one of the wwebsites a couple of years ago, but it looks to me that it has more recently updated articles on C.F womens pregnancies. There very informative so thanks heaps again <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Shine

Member
Hey Keepercj, thanks for the websites on pregnancy, have check it out and I can vaguley remember coming across one of the wwebsites a couple of years ago, but it looks to me that it has more recently updated articles on C.F womens pregnancies. There very informative so thanks heaps again <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Shine

Member
Hey Keepercj, thanks for the websites on pregnancy, have check it out and I can vaguley remember coming across one of the wwebsites a couple of years ago, but it looks to me that it has more recently updated articles on C.F womens pregnancies. There very informative so thanks heaps again <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Shine

Member
Hey Keepercj, thanks for the websites on pregnancy, have check it out and I can vaguley remember coming across one of the wwebsites a couple of years ago, but it looks to me that it has more recently updated articles on C.F womens pregnancies. There very informative so thanks heaps again <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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