kayleesgrandma
New member
Thought you would like to know a little something about Rami, for those of you who don't know him--he told me a little about himself.
"No problem at all. I would like that we know each other more. I'm 23 male, Christian, single (lol). I have CF, CFRD, and mucoid pseudomonas. I'm still at university and I hope that I can finish it before CF finishes me. My FEVS are in the 20s since last year. I live in Beirut, Lebanon a country where CF is not familiar at all. As a result, I got a very late diagnosis at 18. So all the time before I had digestion problems. Even after the diagnosis, we found out that there are no cf drugs in lebanon. There are enzymes but the social security doesnt cover them so I cant afford to buy the quantity my body needs. I take minimal amounts ( 2 pills per meal) and have weight problems. I'm 5'2 and 41 kgs now. There is no tobi, pulmozyme or vest.
In few words, its not the ideal country to have CF in. However, I made it this far and I'm not giving up. I have a goal to earn my degree."
He's just another cfr trying to make it in the world--another person for me to admire along with the rest of you!!
"No problem at all. I would like that we know each other more. I'm 23 male, Christian, single (lol). I have CF, CFRD, and mucoid pseudomonas. I'm still at university and I hope that I can finish it before CF finishes me. My FEVS are in the 20s since last year. I live in Beirut, Lebanon a country where CF is not familiar at all. As a result, I got a very late diagnosis at 18. So all the time before I had digestion problems. Even after the diagnosis, we found out that there are no cf drugs in lebanon. There are enzymes but the social security doesnt cover them so I cant afford to buy the quantity my body needs. I take minimal amounts ( 2 pills per meal) and have weight problems. I'm 5'2 and 41 kgs now. There is no tobi, pulmozyme or vest.
In few words, its not the ideal country to have CF in. However, I made it this far and I'm not giving up. I have a goal to earn my degree."
He's just another cfr trying to make it in the world--another person for me to admire along with the rest of you!!