hi everyone
i am the oldest sister of a beautiful 10year old little girl who was diagnosed at birth ( i also have a 16 year old brother with cf diagnosed @ 4 months)
She is like my daughter and as we speak is sitting on a hospital bed waiting her test results that decide if we go to texas and try for a transplant. i have started looking into the things i can ( hospital info, surrouding area info, fundraising options, etc. ) i am just wondering how best to help lexie face what she is about to go thruogh. I know she knows there is something in the works, but we want to have the results of the test before we give her too much infomation... i don't want ot scare her, but this is scary. I want to have information for the questions she will be asking.
any advice given would be greatly appreciated.
i am the oldest sister of a beautiful 10year old little girl who was diagnosed at birth ( i also have a 16 year old brother with cf diagnosed @ 4 months)
She is like my daughter and as we speak is sitting on a hospital bed waiting her test results that decide if we go to texas and try for a transplant. i have started looking into the things i can ( hospital info, surrouding area info, fundraising options, etc. ) i am just wondering how best to help lexie face what she is about to go thruogh. I know she knows there is something in the works, but we want to have the results of the test before we give her too much infomation... i don't want ot scare her, but this is scary. I want to have information for the questions she will be asking.
any advice given would be greatly appreciated.