I'm trying to be as respectful and polite as I can, while making sure I'm not misunderstood. If I fail at either, then I apologize to the board.
But:
Michelle, per your own signature & posts you were blessed with relatively good health and what you define at 'atypical cf'. Thus, you have the right to use the dx of CF and the community support, however, I would ask that you try to remember that we were not all so blessed.
There are only a few options that have been PROVEN successful in the treatment and management of Pseudomonas. While I don't argue that theories abound, I repeat PROVEN options are few.
Unfortunately, my 6 yr old son has now been determined to be highly resistive to the most common of these, leaving us in the realm of hoping & praying they can find a plan to slow the progression. He has been culturing PA since he was ~3 and that it has now turned resistant to meds is a poor step.
Right now, we are choosing to trust in medicine and God to help move past this point. We do spend several hundred dollars a month on natural/homeopathic options for him. But they are to help with quality of life, not a false hope of a cure.
My son will never see the life that God has blessed you with. At 6 we are already discussing a liver tx, and his lungs which had been stable are now obviously becoming a concern as well.
While I appreciate your support, I would ask that unless you have been in our place (what the original post asked for) that you keep your support to the moral varitey vs. alternative medicine as it only hurts to be reminded how few options exist for those with CF.
