Adam

Jane

Digital opinion leader
Ann, I'm sorry I don't have anything to offer, just that I understand how frustrating it is when they can't find the answers.

Take care and keep us posted.
 

Jane

Digital opinion leader
Ann, I'm sorry I don't have anything to offer, just that I understand how frustrating it is when they can't find the answers.

Take care and keep us posted.
 

Jane

Digital opinion leader
Ann, I'm sorry I don't have anything to offer, just that I understand how frustrating it is when they can't find the answers.

Take care and keep us posted.
 

Jane

Digital opinion leader
Ann, I'm sorry I don't have anything to offer, just that I understand how frustrating it is when they can't find the answers.

Take care and keep us posted.
 

Jane

Digital opinion leader
Ann, I'm sorry I don't have anything to offer, just that I understand how frustrating it is when they can't find the answers.
<br />
<br />Take care and keep us posted.
 

zoe4life

New member
Ann,

I'm sorry Adam's pft's are getting lower...I don't remember you telling me they were doing that. Has he had a bronchoscopy lately? Sometimes they can find out a lot of things by doing one.
Hang in there....call if you want to talk!
Love<img src="i/expressions/heart.gif" border="0">,
 

zoe4life

New member
Ann,

I'm sorry Adam's pft's are getting lower...I don't remember you telling me they were doing that. Has he had a bronchoscopy lately? Sometimes they can find out a lot of things by doing one.
Hang in there....call if you want to talk!
Love<img src="i/expressions/heart.gif" border="0">,
 

zoe4life

New member
Ann,

I'm sorry Adam's pft's are getting lower...I don't remember you telling me they were doing that. Has he had a bronchoscopy lately? Sometimes they can find out a lot of things by doing one.
Hang in there....call if you want to talk!
Love<img src="i/expressions/heart.gif" border="0">,
 

zoe4life

New member
Ann,

I'm sorry Adam's pft's are getting lower...I don't remember you telling me they were doing that. Has he had a bronchoscopy lately? Sometimes they can find out a lot of things by doing one.
Hang in there....call if you want to talk!
Love<img src="i/expressions/heart.gif" border="0">,
 

zoe4life

New member
Ann,
<br />
<br />I'm sorry Adam's pft's are getting lower...I don't remember you telling me they were doing that. Has he had a bronchoscopy lately? Sometimes they can find out a lot of things by doing one.
<br />Hang in there....call if you want to talk!
<br />Love<img src="i/expressions/heart.gif" border="0">,
<br />
 

saveferris2009

New member
A few things:


1. Go to another CF clinic and get a 2nd opinion. I've done this twice and both times it's been incredibly fruitful!

2. Get allergy tested... not just blood IgE but a full work up skin test. Check out the allergy part of my blog for the types of things you can do to treat allergies. My FEV1 would be in the toilet if I didn't treat my allergies

3. Is he on a PPI? Nocturnal aspiration of gastric juice can cause all types of lung inflammation and damage and most people who have it don't even know it! Go to a gastro and get some tests for this

4. I like Jada's idea of a bronch. I would check that out to see what's hiding in his lungs that isn't coming up in his sputum

5. Is he on any kind of inhaled steroid like flovent or advair? That can help a bunch


Take care. If you don't already, RSS feed my blog. I always have tons of new journal studies and various publications that you never know could be helpful at any time
 

saveferris2009

New member
A few things:


1. Go to another CF clinic and get a 2nd opinion. I've done this twice and both times it's been incredibly fruitful!

2. Get allergy tested... not just blood IgE but a full work up skin test. Check out the allergy part of my blog for the types of things you can do to treat allergies. My FEV1 would be in the toilet if I didn't treat my allergies

3. Is he on a PPI? Nocturnal aspiration of gastric juice can cause all types of lung inflammation and damage and most people who have it don't even know it! Go to a gastro and get some tests for this

4. I like Jada's idea of a bronch. I would check that out to see what's hiding in his lungs that isn't coming up in his sputum

5. Is he on any kind of inhaled steroid like flovent or advair? That can help a bunch


Take care. If you don't already, RSS feed my blog. I always have tons of new journal studies and various publications that you never know could be helpful at any time
 

saveferris2009

New member
A few things:


1. Go to another CF clinic and get a 2nd opinion. I've done this twice and both times it's been incredibly fruitful!

2. Get allergy tested... not just blood IgE but a full work up skin test. Check out the allergy part of my blog for the types of things you can do to treat allergies. My FEV1 would be in the toilet if I didn't treat my allergies

3. Is he on a PPI? Nocturnal aspiration of gastric juice can cause all types of lung inflammation and damage and most people who have it don't even know it! Go to a gastro and get some tests for this

4. I like Jada's idea of a bronch. I would check that out to see what's hiding in his lungs that isn't coming up in his sputum

5. Is he on any kind of inhaled steroid like flovent or advair? That can help a bunch


Take care. If you don't already, RSS feed my blog. I always have tons of new journal studies and various publications that you never know could be helpful at any time
 

saveferris2009

New member
A few things:


1. Go to another CF clinic and get a 2nd opinion. I've done this twice and both times it's been incredibly fruitful!

2. Get allergy tested... not just blood IgE but a full work up skin test. Check out the allergy part of my blog for the types of things you can do to treat allergies. My FEV1 would be in the toilet if I didn't treat my allergies

3. Is he on a PPI? Nocturnal aspiration of gastric juice can cause all types of lung inflammation and damage and most people who have it don't even know it! Go to a gastro and get some tests for this

4. I like Jada's idea of a bronch. I would check that out to see what's hiding in his lungs that isn't coming up in his sputum

5. Is he on any kind of inhaled steroid like flovent or advair? That can help a bunch


Take care. If you don't already, RSS feed my blog. I always have tons of new journal studies and various publications that you never know could be helpful at any time
 

saveferris2009

New member
A few things:
<br />
<br />
<br />1. Go to another CF clinic and get a 2nd opinion. I've done this twice and both times it's been incredibly fruitful!
<br />
<br />2. Get allergy tested... not just blood IgE but a full work up skin test. Check out the allergy part of my blog for the types of things you can do to treat allergies. My FEV1 would be in the toilet if I didn't treat my allergies
<br />
<br />3. Is he on a PPI? Nocturnal aspiration of gastric juice can cause all types of lung inflammation and damage and most people who have it don't even know it! Go to a gastro and get some tests for this
<br />
<br />4. I like Jada's idea of a bronch. I would check that out to see what's hiding in his lungs that isn't coming up in his sputum
<br />
<br />5. Is he on any kind of inhaled steroid like flovent or advair? That can help a bunch
<br />
<br />
<br />Take care. If you don't already, RSS feed my blog. I always have tons of new journal studies and various publications that you never know could be helpful at any time
 

beleache

New member
Hi Ann,

I dont have anything to add, some great advice already.. Just want you to know i am thinking of you..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Ann,

I dont have anything to add, some great advice already.. Just want you to know i am thinking of you..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Ann,

I dont have anything to add, some great advice already.. Just want you to know i am thinking of you..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Ann,

I dont have anything to add, some great advice already.. Just want you to know i am thinking of you..

<img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
Hi Ann,
<br />
<br /> I dont have anything to add, some great advice already.. Just want you to know i am thinking of you..
<br />
<br /> <img src="i/expressions/heart.gif" border="0"> joni
 
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