ADEK Vitamins

duodenalswitch · Oct 16, 2006

Hello...I am new to these boards. I have an unusual
request...and I hope I do not get flamed for this.... 
 
I do not suffer from CF. However, I have had a weight loss
surgery procedure called the Duodenal Switch. It has a
malabsorption component that makes the surgery work (it shortens
the length of the small intestines allowing for less absorption).
This procedure has saved my life. I have gone from 432
pounds to 163 pounds in the past 2 years and my life is now full
for the first time in many years and many of my health problems
have gone away. 
 
However, this has created a new set of problems. After taking
out expensive loans to pay for my surgery, I find myself having
problems affording the expensive cocktail of vitamins I must take
everyday. Among them are the ADEK vitamins, since I no longer
properly absorb the fat soluble vitamins A, D, E, and K. 
 
My humble request is if anyone has or gets the ADEK vitamins that
they do not need if they would be willing to donate them to me, or
offer them at a reduced cost. I hope this does not result in
being flamed on this board because it is very humbling to have to
come on here and post this. I appreciate your understanding
and your kindness. God bless.

duodenalswitch · Oct 16, 2006

Hello...I am new to these boards. I have an unusual
request...and I hope I do not get flamed for this.... 
 
I do not suffer from CF. However, I have had a weight loss
surgery procedure called the Duodenal Switch. It has a
malabsorption component that makes the surgery work (it shortens
the length of the small intestines allowing for less absorption).
This procedure has saved my life. I have gone from 432
pounds to 163 pounds in the past 2 years and my life is now full
for the first time in many years and many of my health problems
have gone away. 
 
However, this has created a new set of problems. After taking
out expensive loans to pay for my surgery, I find myself having
problems affording the expensive cocktail of vitamins I must take
everyday. Among them are the ADEK vitamins, since I no longer
properly absorb the fat soluble vitamins A, D, E, and K. 
 
My humble request is if anyone has or gets the ADEK vitamins that
they do not need if they would be willing to donate them to me, or
offer them at a reduced cost. I hope this does not result in
being flamed on this board because it is very humbling to have to
come on here and post this. I appreciate your understanding
and your kindness. God bless.

duodenalswitch · Oct 16, 2006

Hello...I am new to these boards. I have an unusual
request...and I hope I do not get flamed for this.... 
 
I do not suffer from CF. However, I have had a weight loss
surgery procedure called the Duodenal Switch. It has a
malabsorption component that makes the surgery work (it shortens
the length of the small intestines allowing for less absorption).
This procedure has saved my life. I have gone from 432
pounds to 163 pounds in the past 2 years and my life is now full
for the first time in many years and many of my health problems
have gone away. 
 
However, this has created a new set of problems. After taking
out expensive loans to pay for my surgery, I find myself having
problems affording the expensive cocktail of vitamins I must take
everyday. Among them are the ADEK vitamins, since I no longer
properly absorb the fat soluble vitamins A, D, E, and K. 
 
My humble request is if anyone has or gets the ADEK vitamins that
they do not need if they would be willing to donate them to me, or
offer them at a reduced cost. I hope this does not result in
being flamed on this board because it is very humbling to have to
come on here and post this. I appreciate your understanding
and your kindness. God bless.

sue35 · Oct 17, 2006

I don't think it is a problem at all to ask. I think that you have gone through a hard time yourself and have taken positive steps in making a healthy lifestyle. I wonder how you found this site however. How did you know CFers take ADEKS?

I am afraid I can't help you. I wish you posted this a couple months ago, I just switched vitamins and had tons left over but I threw them out. I hope you find what you are looking for and good for you for losing all that weight!

sue35 · Oct 17, 2006

I don't think it is a problem at all to ask. I think that you have gone through a hard time yourself and have taken positive steps in making a healthy lifestyle. I wonder how you found this site however. How did you know CFers take ADEKS?

I am afraid I can't help you. I wish you posted this a couple months ago, I just switched vitamins and had tons left over but I threw them out. I hope you find what you are looking for and good for you for losing all that weight!

sue35 · Oct 17, 2006

I don't think it is a problem at all to ask. I think that you have gone through a hard time yourself and have taken positive steps in making a healthy lifestyle. I wonder how you found this site however. How did you know CFers take ADEKS?

I am afraid I can't help you. I wish you posted this a couple months ago, I just switched vitamins and had tons left over but I threw them out. I hope you find what you are looking for and good for you for losing all that weight!

duodenalswitch · Oct 17, 2006

Hi Sue, 
 
Through my research online about vitamin deficiencies and ADEK
vitamins, I discovered that CFers also have vitamin issues, but not
all do and not forever. When I found this board, I thought
maybe someone could help me (even though I am an
"outsider") as maybe there might be someone that no
longer requires the ADEK's and has some left over. It is a
lot to ask from complete strangers, but as I will require the
ADEK's for the rest of my life and I am having a harder and harder
time juggling the costs, I am beginning to get desperate.
That is how I found you all and why I am here. Thanks
again. 
 
Bob

duodenalswitch · Oct 17, 2006

Hi Sue, 
 
Through my research online about vitamin deficiencies and ADEK
vitamins, I discovered that CFers also have vitamin issues, but not
all do and not forever. When I found this board, I thought
maybe someone could help me (even though I am an
"outsider") as maybe there might be someone that no
longer requires the ADEK's and has some left over. It is a
lot to ask from complete strangers, but as I will require the
ADEK's for the rest of my life and I am having a harder and harder
time juggling the costs, I am beginning to get desperate.
That is how I found you all and why I am here. Thanks
again. 
 
Bob

duodenalswitch · Oct 17, 2006

Hi Sue, 
 
Through my research online about vitamin deficiencies and ADEK
vitamins, I discovered that CFers also have vitamin issues, but not
all do and not forever. When I found this board, I thought
maybe someone could help me (even though I am an
"outsider") as maybe there might be someone that no
longer requires the ADEK's and has some left over. It is a
lot to ask from complete strangers, but as I will require the
ADEK's for the rest of my life and I am having a harder and harder
time juggling the costs, I am beginning to get desperate.
That is how I found you all and why I am here. Thanks
again. 
 
Bob

anonymous · Oct 22, 2006

Bob - I have some extra called Vitamax. They are ADEK but in a better flavor for my two year old with CF. We have some extra if you would like some. Megan

anonymous · Oct 22, 2006

Bob - I have some extra called Vitamax. They are ADEK but in a better flavor for my two year old with CF. We have some extra if you would like some. Megan

anonymous · Oct 22, 2006

Bob - I have some extra called Vitamax. They are ADEK but in a better flavor for my two year old with CF. We have some extra if you would like some. Megan

Ratatosk · Oct 23, 2006

This topic really really makes me cranky! Shortly after DS was diagnosed -- dealing with all the new meds, cpt, his diagnosis and all the what ifs -- I was frantically searching the web, calling around trying to locate ADEKs vitamin drops. Off and on during the past 3 years that DS was diagnosed there has been a nationwide shortage of ADEKs. Sometimes the CF services pharmacy is able to stockpile some and reserve it for CFers, sometimes my local pharmacy is able to get it. But there was a period of time that I wasn't sure when we'd be able to get a refill on ADEKs. Nationwide shortage was caused by individuals who'd read about it on gastric bypass message boards and sites. So for a couple of months, my newborn had to have generic polyvisol baby vitamins.

And quite frankly -- ADEKS aren't all that pricey -- $10-15 for a bottle of the vitamin drops. Drop in the bucket compared to some of the other medications CFers need.

Ratatosk · Oct 23, 2006

This topic really really makes me cranky! Shortly after DS was diagnosed -- dealing with all the new meds, cpt, his diagnosis and all the what ifs -- I was frantically searching the web, calling around trying to locate ADEKs vitamin drops. Off and on during the past 3 years that DS was diagnosed there has been a nationwide shortage of ADEKs. Sometimes the CF services pharmacy is able to stockpile some and reserve it for CFers, sometimes my local pharmacy is able to get it. But there was a period of time that I wasn't sure when we'd be able to get a refill on ADEKs. Nationwide shortage was caused by individuals who'd read about it on gastric bypass message boards and sites. So for a couple of months, my newborn had to have generic polyvisol baby vitamins.

And quite frankly -- ADEKS aren't all that pricey -- $10-15 for a bottle of the vitamin drops. Drop in the bucket compared to some of the other medications CFers need.

Ratatosk · Oct 23, 2006

This topic really really makes me cranky! Shortly after DS was diagnosed -- dealing with all the new meds, cpt, his diagnosis and all the what ifs -- I was frantically searching the web, calling around trying to locate ADEKs vitamin drops. Off and on during the past 3 years that DS was diagnosed there has been a nationwide shortage of ADEKs. Sometimes the CF services pharmacy is able to stockpile some and reserve it for CFers, sometimes my local pharmacy is able to get it. But there was a period of time that I wasn't sure when we'd be able to get a refill on ADEKs. Nationwide shortage was caused by individuals who'd read about it on gastric bypass message boards and sites. So for a couple of months, my newborn had to have generic polyvisol baby vitamins.

And quite frankly -- ADEKS aren't all that pricey -- $10-15 for a bottle of the vitamin drops. Drop in the bucket compared to some of the other medications CFers need.

duodenalswitch · Oct 23, 2006

Hi Megan, 
 
I appreciate your kindness. I do not, however, want to take
them away from your two year old. If you know you do not
require them, I truly appreciate it. 
 
Bob

duodenalswitch · Oct 23, 2006

Hi Megan, 
 
I appreciate your kindness. I do not, however, want to take
them away from your two year old. If you know you do not
require them, I truly appreciate it. 
 
Bob

duodenalswitch · Oct 23, 2006

Hi Megan, 
 
I appreciate your kindness. I do not, however, want to take
them away from your two year old. If you know you do not
require them, I truly appreciate it. 
 
Bob

duodenalswitch · Oct 23, 2006

Hi Liza, 
 
I understand your point of view. And I agree that the cost is
minor compared to what other people with other conditions pay each
month. But there is a catch-22 involved here... 
 
Insurance (at least my insurance) does not pay for weight loss
surgery, even if you can show medical need. They pay
NOTHING....nothing for the tests...nothing for the
hospital...nothing for the doctors....or follow-up....or
medicines...or vitamins. And unless you qualify for
Medicaid, the government does not help either. 
 
So that leaves conventional loans. These loans must be
secured (unless you have credit card limits out of this world and
can afford to pay off a $50,000 debt at the unearthly credit card
rates). That means putting your house, retirement, whatever
up as collateral. And it adds basically another house payment
to your monthly bills. Now keep in mind, a lot of people
(like me) have physical problems that prevent them from working or
changing jobs (I had liver and kidney dysfunction, phlebitis,
edema, high blood pressure, and heart problems). As you
may know, treating these diseases can be costly by themselves. 
 
Now let's add the vitamins. Again, insurance pays NOTHING for
them. Taking the cocktail I take each day costs me $50 a
month for ADEKS (have to take 2 a day), $32 a month for the
calcium, $20 a month for the multivitamins and misc. pills and
$45 a month for shots. This has gotten more critical
for me as my vitamin K levels are now dangerously low. The
ADEK's have the highest concentration of water "soluable"
vitamin K available without a prescription, which is why I am
looking for them versus just some generic "ADEK"
vitamin. 
 
I have had severe protein, B-12, zinc, calcium, copper, iron, and
vitamin D problems already that required treatment or
hospitalization. Again, if I become hospitalized for this (or
anything else it deems related to my surgery) my insurance will not
pay for any of those expenses when they come because they see it as
a result of the surgery. They have not paid for any of my
other hospital and doctor's visits, blood work, or tests since my
surgery. Add those expenses to the heavy loans and I am
almost $280,000 in medical debt, not including the monetary
requirements needed each month just to pay for the monthly
supplies. Again, I realize that some people become millions
in debt for their conditions, so I'm not trying to overstate my
situation. 
 
I'm not on here to whine or complain or look for pity. I know
my perils are NOTHING compared to lots of other people with
"real" health problems. I asked for my current
situation. Do I regret having surgery? ABSOLUTELY
NOT!!! I know I would be dead by now if I would not have had
it done.

duodenalswitch · Oct 23, 2006

Hi Liza, 
 
I understand your point of view. And I agree that the cost is
minor compared to what other people with other conditions pay each
month. But there is a catch-22 involved here... 
 
Insurance (at least my insurance) does not pay for weight loss
surgery, even if you can show medical need. They pay
NOTHING....nothing for the tests...nothing for the
hospital...nothing for the doctors....or follow-up....or
medicines...or vitamins. And unless you qualify for
Medicaid, the government does not help either. 
 
So that leaves conventional loans. These loans must be
secured (unless you have credit card limits out of this world and
can afford to pay off a $50,000 debt at the unearthly credit card
rates). That means putting your house, retirement, whatever
up as collateral. And it adds basically another house payment
to your monthly bills. Now keep in mind, a lot of people
(like me) have physical problems that prevent them from working or
changing jobs (I had liver and kidney dysfunction, phlebitis,
edema, high blood pressure, and heart problems). As you
may know, treating these diseases can be costly by themselves. 
 
Now let's add the vitamins. Again, insurance pays NOTHING for
them. Taking the cocktail I take each day costs me $50 a
month for ADEKS (have to take 2 a day), $32 a month for the
calcium, $20 a month for the multivitamins and misc. pills and
$45 a month for shots. This has gotten more critical
for me as my vitamin K levels are now dangerously low. The
ADEK's have the highest concentration of water "soluable"
vitamin K available without a prescription, which is why I am
looking for them versus just some generic "ADEK"
vitamin. 
 
I have had severe protein, B-12, zinc, calcium, copper, iron, and
vitamin D problems already that required treatment or
hospitalization. Again, if I become hospitalized for this (or
anything else it deems related to my surgery) my insurance will not
pay for any of those expenses when they come because they see it as
a result of the surgery. They have not paid for any of my
other hospital and doctor's visits, blood work, or tests since my
surgery. Add those expenses to the heavy loans and I am
almost $280,000 in medical debt, not including the monetary
requirements needed each month just to pay for the monthly
supplies. Again, I realize that some people become millions
in debt for their conditions, so I'm not trying to overstate my
situation. 
 
I'm not on here to whine or complain or look for pity. I know
my perils are NOTHING compared to lots of other people with
"real" health problems. I asked for my current
situation. Do I regret having surgery? ABSOLUTELY
NOT!!! I know I would be dead by now if I would not have had
it done.

ADEK Vitamins

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