Adult CF Clinics

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anonymous

New member
I was going to ask this question on Julie's thread, but didn't want to take away from what she was trying to get across, so here goes.

I was surprised to read on that thread that most CF Clinics for adults only had a doctor and a nurse at them. I would be interested to know how many of you out there go to a clinic that <b>does not</b> have a social worker, psychologist, RT Team and a dietician? Mine does & I guess I just assumed all CF Clinics offered these services.
Elle
 
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Emily65Roses

New member
Mine has all that stuff too, Elle. They always meet with me even if I don't request to see them.. dietician, social worker, nurse, doc, etc.
 
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lovingBenandCambree

New member
I am here in Utah and we have all of those things as well. I don't see the social worker and dietician everytime, mostly only if I am in the hospital.

Emilee
 
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julie

New member
I like this info, keep it coming because it may need to be adjusted in the letter. I don't want to portray an inaccurate picture.

That being said, for those of you who do have that WHOLE team available at your clinic (not that you always use it, but that it's there), does the whole clinic experience pan out to be very similar to that of the pedi clinic when you were younger? If not, maybe I can revise the sentence in the letter to touch on the differences....?????
 
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spicyone18

New member
My clinic has the whole team too. Mater of fact I see the same team as when i went to the ped. clinic my main CF doc is just different
 
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princessjdc

New member
Mine has all the works also. dietiction, respitory therapist, psychologist, and a nurse, but when I go, All I want is the nurse and doc. the rest I dont feel like I need. Sometimes I see all of them and sometimes I just see the nurse and doc of course
 
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anonymous

New member
My clinic just has a doctor and nurse. I know there is a social worker, yet after 3 years of going to this clinic I have only met her once when I was inpatient. As far as dietician, I have never seen one as I am pancreatic sufficient. I do miss the days of the pedi clinic and the 'team coverage' it was nice to know that there were many people involved in my care.

Kim
40 w/cf
 
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Mockingbird

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>julie</b></i><br>That being said, for those of you who do have that WHOLE team available at your clinic (not that you always use it, but that it's there), does the whole clinic experience pan out to be very similar to that of the pedi clinic when you were younger? If not, maybe I can revise the sentence in the letter to touch on the differences....?????<hr></blockquote>

I don't know about the others, but when I moved to the adult clinic, I felt I was getting better care. It seemed like they knew more about the adult side of CF, while the pediatric clinics I used to go to (first in Reno, NV, then in Boise, ID) it seemed like Iwas outta their league. You know, something new would come up and they'd be like, "Uh, I think I read an article on that somewhere" =-)
 
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anonymous

New member
We have a whole team (in Northern IN) but the clinic is still considered the "pediatric outpatient clinic," though there are two docs there - one for adults and one for peds.
 
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abloedel

New member
Since I was diagnosed just this year, I can't really comment on the jump from pediatric to adult care, but I also go to National Jewish in Denver. Everytime I have gone, I always see at least the nurse, doctor, and RT. Initially I saw the dietician each time until we got my enzymes "just right". Also, I have seen the social worker when ever I have asked, just for guidance on insurance or work place issues. They're wonderful! I also communicate with them mostly on e-mail, which I like...especially now that I'm using a Picc again. In fact, got scheduled for an Xray, all over e-mail this morning...and I was in and out incredibly quickly and had the results on e-mail by the time I made it back to the office. (underinflated lung, probably a big mucous plug causing my pain :) )

Amy
36 w/CF
 
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IG

Guest
hmm my adult CF clinic [while I much prefer the pedi] seems to have all the things that pedi did, but if I remember correctly since adults and pedis were so close together that a lot of the people were the same for pedi and adults, i.e. social worker, dietician and such. I might be wrong since faces seem to blur together but I know a few people did that.
 
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anonymous

New member
My clinic sees both peds and adults. We have the entire CF team. The director is the peds doctor, and they have an adult CF doctor, but the rest of the team sees both adults and kids. It is a wonderful clinic.

An adult with CF
 
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jenhum

New member
I go to the UNC Hospital in Chapel Hill, NC and we have a wonderful adult clinic. I see a dietician and social worker about twice a year. They are also so much more careful about germs in the adult clinic. I would recommend my clinic to anyone with CF, I think they do an amazing job.
 
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Captain

New member
I have the whole team. As far as which I liked better... It's kind of give and take. Since your switching Doctors they're not as in tune with your history or the situation at home like your old Doc's are so there's a 'breaking in period" which with my Doctors seems to be taking forever. I'm lucky to have made friends with some of my team like one of the nurses that goes to the pedi clinics and is a full time RN on the pulmonary floor (so whenever I'm admitted she knows about it and checks up on me) people like that who have known me for years now really have gone to bat for me. Or My friend Jenn my RT. For one reason or another some full-of-himself doctor (who will remain nameless) wasn't going to go out of his way to get insurance to pay for something because he thought I was getting financial help somewhere else. I would have been screwed if my friends hadn't vehemently told him otherwise (Thanks Jenn). I also have a few Adult Doctors on the other end of the spectrum and I also have all my old friends from pedi too. Adult Clinic explains alot more, I like that.
 
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