Adult CF Lost It has been along time since I have felt the need or the desire to state my feelings about being and adult with CF. I have felt like an outsider most of my adult life in reguards to CF due to the medical and social comunity and the disease itself. I live in a place were there is not much help or concern about CF and the concerns are all geared toward children. If you are lucky enough to reach adult hood the nearest help is 5-6 hours away and you are banned from the local CF center.
With that said, I have been in search of adults (with or without CF) who have the same concerns, frustration, anger, sorrow, infomational, and sense of humor just to talk to and maybe some day fit in. My last hospital stay I found this site and most of the now banned members (and others who are still here ) encouraged me to be the adult with CF that I am. Not only in ways of "nice tell me what I want to hear" but in realistic heartfelt "Pull your head out of your ass and deal with it" encouragement!! Although it sometimes is not pleasent to hear the truth and reality it is necessary otherwise your just a visitor sitting at the kids table being excluded from the reality of adulthood. Finally a place where I could speak my mind, heart and soul, only to find out this is not true.
To live in a world of "nice and corret" is a delusion. We live in a world of reality and as adults with CF we have the right to be frustrated, angry to the point of hostility, loving, caring and genuinly sorry for some of our outbursts of frustration. I hope all who read this know that words can cut like a knife but can be healed with the same passion that made the words so sharp.
With that said, I have been in search of adults (with or without CF) who have the same concerns, frustration, anger, sorrow, infomational, and sense of humor just to talk to and maybe some day fit in. My last hospital stay I found this site and most of the now banned members (and others who are still here ) encouraged me to be the adult with CF that I am. Not only in ways of "nice tell me what I want to hear" but in realistic heartfelt "Pull your head out of your ass and deal with it" encouragement!! Although it sometimes is not pleasent to hear the truth and reality it is necessary otherwise your just a visitor sitting at the kids table being excluded from the reality of adulthood. Finally a place where I could speak my mind, heart and soul, only to find out this is not true.
To live in a world of "nice and corret" is a delusion. We live in a world of reality and as adults with CF we have the right to be frustrated, angry to the point of hostility, loving, caring and genuinly sorry for some of our outbursts of frustration. I hope all who read this know that words can cut like a knife but can be healed with the same passion that made the words so sharp.