adult CF project

Sevenstars

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nursingstudent2008</b></i>
We have a few questions we would like to ask for adults who has been diagnosed with CF. </end quote></div>

I am going to give you the benefit of the doubt, and parse this statement differently than everyone else. I believe you mean "Adults whose diagnosis is CF" i.e. "People with CF that happen to be adults". I sincerely hope this is the case.

However, the rest of your statements do reflect a poor (or completely absent?) knowledge of the disease. Perhaps you should research more on your own before coming to us. We are a nice and welcoming community, which you probably won't think after reading this thread, but to come here and ask about our "recovery/rehabilitation" thoughts is insulting and demonstrates you have put forth zero effort learning about the disease yourself.

How can you ask about "changes" in our day to day life due to this disease? Most of us were diagnosed at birth, or at the very least as children. It would be like asking you what it is like to walk on two feet, or eat with a fork. It is everyday, it is part of our lives, it is intrinsic. Most of us have not known anything else besides this - marathon - that Chris so aptly described.

Please, do some research then come back to us, show us you've done some work, and ask us meaningful questions and we will be more than happy to reply.
 

Sevenstars

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nursingstudent2008</b></i>
We have a few questions we would like to ask for adults who has been diagnosed with CF. </end quote></div>

I am going to give you the benefit of the doubt, and parse this statement differently than everyone else. I believe you mean "Adults whose diagnosis is CF" i.e. "People with CF that happen to be adults". I sincerely hope this is the case.

However, the rest of your statements do reflect a poor (or completely absent?) knowledge of the disease. Perhaps you should research more on your own before coming to us. We are a nice and welcoming community, which you probably won't think after reading this thread, but to come here and ask about our "recovery/rehabilitation" thoughts is insulting and demonstrates you have put forth zero effort learning about the disease yourself.

How can you ask about "changes" in our day to day life due to this disease? Most of us were diagnosed at birth, or at the very least as children. It would be like asking you what it is like to walk on two feet, or eat with a fork. It is everyday, it is part of our lives, it is intrinsic. Most of us have not known anything else besides this - marathon - that Chris so aptly described.

Please, do some research then come back to us, show us you've done some work, and ask us meaningful questions and we will be more than happy to reply.
 

Sevenstars

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nursingstudent2008</b></i>
We have a few questions we would like to ask for adults who has been diagnosed with CF. </end quote></div>

I am going to give you the benefit of the doubt, and parse this statement differently than everyone else. I believe you mean "Adults whose diagnosis is CF" i.e. "People with CF that happen to be adults". I sincerely hope this is the case.

However, the rest of your statements do reflect a poor (or completely absent?) knowledge of the disease. Perhaps you should research more on your own before coming to us. We are a nice and welcoming community, which you probably won't think after reading this thread, but to come here and ask about our "recovery/rehabilitation" thoughts is insulting and demonstrates you have put forth zero effort learning about the disease yourself.

How can you ask about "changes" in our day to day life due to this disease? Most of us were diagnosed at birth, or at the very least as children. It would be like asking you what it is like to walk on two feet, or eat with a fork. It is everyday, it is part of our lives, it is intrinsic. Most of us have not known anything else besides this - marathon - that Chris so aptly described.

Please, do some research then come back to us, show us you've done some work, and ask us meaningful questions and we will be more than happy to reply.
 

Sevenstars

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nursingstudent2008</b></i>
We have a few questions we would like to ask for adults who has been diagnosed with CF. </end quote>

I am going to give you the benefit of the doubt, and parse this statement differently than everyone else. I believe you mean "Adults whose diagnosis is CF" i.e. "People with CF that happen to be adults". I sincerely hope this is the case.

However, the rest of your statements do reflect a poor (or completely absent?) knowledge of the disease. Perhaps you should research more on your own before coming to us. We are a nice and welcoming community, which you probably won't think after reading this thread, but to come here and ask about our "recovery/rehabilitation" thoughts is insulting and demonstrates you have put forth zero effort learning about the disease yourself.

How can you ask about "changes" in our day to day life due to this disease? Most of us were diagnosed at birth, or at the very least as children. It would be like asking you what it is like to walk on two feet, or eat with a fork. It is everyday, it is part of our lives, it is intrinsic. Most of us have not known anything else besides this - marathon - that Chris so aptly described.

Please, do some research then come back to us, show us you've done some work, and ask us meaningful questions and we will be more than happy to reply.
 

Sevenstars

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>nursingstudent2008</b></i>
We have a few questions we would like to ask for adults who has been diagnosed with CF. </end quote>

I am going to give you the benefit of the doubt, and parse this statement differently than everyone else. I believe you mean "Adults whose diagnosis is CF" i.e. "People with CF that happen to be adults". I sincerely hope this is the case.

However, the rest of your statements do reflect a poor (or completely absent?) knowledge of the disease. Perhaps you should research more on your own before coming to us. We are a nice and welcoming community, which you probably won't think after reading this thread, but to come here and ask about our "recovery/rehabilitation" thoughts is insulting and demonstrates you have put forth zero effort learning about the disease yourself.

How can you ask about "changes" in our day to day life due to this disease? Most of us were diagnosed at birth, or at the very least as children. It would be like asking you what it is like to walk on two feet, or eat with a fork. It is everyday, it is part of our lives, it is intrinsic. Most of us have not known anything else besides this - marathon - that Chris so aptly described.

Please, do some research then come back to us, show us you've done some work, and ask us meaningful questions and we will be more than happy to reply.
 
A

Aspiemom

Guest
I just emailed you my response. I was diagnosed as an adult and am happy to help with informing the nursing community of what it's like as an adult who is dx with CF. I always had it, just didn't know it!

Some others who have grown up knowing they have had it since they were children will have a different approach and outlook perhaps, but I hope my response will be of help.
 
A

Aspiemom

Guest
I just emailed you my response. I was diagnosed as an adult and am happy to help with informing the nursing community of what it's like as an adult who is dx with CF. I always had it, just didn't know it!

Some others who have grown up knowing they have had it since they were children will have a different approach and outlook perhaps, but I hope my response will be of help.
 
A

Aspiemom

Guest
I just emailed you my response. I was diagnosed as an adult and am happy to help with informing the nursing community of what it's like as an adult who is dx with CF. I always had it, just didn't know it!

Some others who have grown up knowing they have had it since they were children will have a different approach and outlook perhaps, but I hope my response will be of help.
 
A

Aspiemom

Guest
I just emailed you my response. I was diagnosed as an adult and am happy to help with informing the nursing community of what it's like as an adult who is dx with CF. I always had it, just didn't know it!

Some others who have grown up knowing they have had it since they were children will have a different approach and outlook perhaps, but I hope my response will be of help.
 
A

Aspiemom

Guest
I just emailed you my response. I was diagnosed as an adult and am happy to help with informing the nursing community of what it's like as an adult who is dx with CF. I always had it, just didn't know it!

Some others who have grown up knowing they have had it since they were children will have a different approach and outlook perhaps, but I hope my response will be of help.
 
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