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Adult w/CF worries
- Thread starter anonymous
- Start date
Sorry the original post was mine & my daughter hit enter before I could even type. Here goes: my sister died of CF this passed year. She was diagnosed in the early eighties. My brother and I both had sweat tests along with several others in the family. One of us had a borderline test, but at that time, if you had no symptoms, they considered you to be CF-free. We don't know which one of us was borderline. When I was pregnant, I had a gene screening & was told I was not a carrier. Here is my question: over the last 10 years, I have begun to have digestive issues and some respiratory ones. I was diagnosed with asthma two years ago and have had no success in managing it (am constantly getting bronchitis & coughing). After reading a lot of the posts on this site, I'm beginning to wonder if I should consider seeking out more testing. I'm wondering what other people who were diagnosed as adults think? I know that knowledge can be power & paranoia and I am wondering if I am just paranoid because my best friend/sister died so recently. Please help with some clarity--
M.
M.
First of all, I am very sorry to hear that you lost your sister/best friend to CF. The only thing about losing someone to CF is that you know that the IV's, hospitilazations, feeling badly, etc are all over with for them & that they are cured. That doesn't take away your pain, but it helped me cope with losing my sister years ago. She was ready to go! Hang in there.<img src="i/expressions/face-icon-small-confused.gif" border="0">
I would defininately get re-tested by a CF doctor/Center. They can administer the test the best since they are familiar with the proper technique. Sometimes you can get false negative sweat tests, so just to rule this out and/or to get answers, I would have one done.
You could also just be extra sensitive right now too with the loss of your sister, but I think this health issue being up in the air isn't helping either, possibly adding a little more stress. Knowing one way or the other will relieve some of the worrying.
If you do have the test done, let us know how it comes out. God Bless
I would defininately get re-tested by a CF doctor/Center. They can administer the test the best since they are familiar with the proper technique. Sometimes you can get false negative sweat tests, so just to rule this out and/or to get answers, I would have one done.
You could also just be extra sensitive right now too with the loss of your sister, but I think this health issue being up in the air isn't helping either, possibly adding a little more stress. Knowing one way or the other will relieve some of the worrying.
If you do have the test done, let us know how it comes out. God Bless
serendipity730
New member
Good luck! Please let us know how it turns out.
Went yesterday. I remember my sister talking about how upsetting it could be when you are an adult and have to go to the children's hospital. When I checked in at the desk, the woman behind it was determined that I could not possibly be getting a sweat test there "b/c we only see children here". I was supposed to get results today, but my doctor's office closes at 12:00 and the lab won't release the results to anyone but him, so I'm stuck waiting all weekend. I guess I will know on Monday.