M
mneville
Guest
Aidan had his check up today. We go every two months b/c I am neurotic and want to catch any bacteria as early as possible. He is two years old, over 35 pounds and has recently gotten through two nasty bacterial viruses with no lung involvement which is great! He is a Double Delta.
I asked the doc about putting him on Azithromycin to prevent PA (Warwick mentioned that he might try doing that with some of his young patients) but our doc was not for it. He said not until they are already colonized with PA? I also asked about cord blood? Has anyone heard anything about cord blood being helpful in the cure for CF? We will hopefully find the funds to bank our unborn baby's cord blood in the hopes of something good?
They are always shocked when I say Aidan does the VEST an hour a day. It seems as if he is one of their only patients who do it this often. But I can only imagine that this helps him? Thin the mucous therefore less bacteria collects??
Megan
I asked the doc about putting him on Azithromycin to prevent PA (Warwick mentioned that he might try doing that with some of his young patients) but our doc was not for it. He said not until they are already colonized with PA? I also asked about cord blood? Has anyone heard anything about cord blood being helpful in the cure for CF? We will hopefully find the funds to bank our unborn baby's cord blood in the hopes of something good?
They are always shocked when I say Aidan does the VEST an hour a day. It seems as if he is one of their only patients who do it this often. But I can only imagine that this helps him? Thin the mucous therefore less bacteria collects??
Megan