I agree with seeing a GI doctor about this. I know digestive issues often 'come with the territory' of CF, but having things written off as inevitable by your dr when it's impacting your QOL so much, esp given it's recently gotten so much worse- is not right. A dr that specializes in these issues would be the right call I think; rather than throwing a random med at you he could determine WHAT would be best and why- and he could also rule out anything more serious causing this.
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Air In Stomach? What do I do?
- Thread starter arche4life
- Start date
I agree with seeing a GI doctor about this. I know digestive issues often 'come with the territory' of CF, but having things written off as inevitable by your dr when it's impacting your QOL so much, esp given it's recently gotten so much worse- is not right. A dr that specializes in these issues would be the right call I think; rather than throwing a random med at you he could determine WHAT would be best and why- and he could also rule out anything more serious causing this.
I agree with seeing a GI doctor about this. I know digestive issues often 'come with the territory' of CF, but having things written off as inevitable by your dr when it's impacting your QOL so much, esp given it's recently gotten so much worse- is not right. A dr that specializes in these issues would be the right call I think; rather than throwing a random med at you he could determine WHAT would be best and why- and he could also rule out anything more serious causing this.
I agree with seeing a GI doctor about this. I know digestive issues often 'come with the territory' of CF, but having things written off as inevitable by your dr when it's impacting your QOL so much, esp given it's recently gotten so much worse- is not right. A dr that specializes in these issues would be the right call I think; rather than throwing a random med at you he could determine WHAT would be best and why- and he could also rule out anything more serious causing this.
I agree with seeing a GI doctor about this. I know digestive issues often 'come with the territory' of CF, but having things written off as inevitable by your dr when it's impacting your QOL so much, esp given it's recently gotten so much worse- is not right. A dr that specializes in these issues would be the right call I think; rather than throwing a random med at you he could determine WHAT would be best and why- and he could also rule out anything more serious causing this.
I had the same problem prior to my tranplant and then it got worse after surgery. I had a liquid/solid stomach emptying study( it is a super easy test, but it take 6 hours) It showed that I have severe gastroparesis (slow emptying of the stomach). There are several medicines that can help with this. My GI and transplant doctor told me that it is fairly common with CF patients, especially if you also have CFRD. They also suggested that I eat 6 small meals instead of 3 largers ones, and I found that if I cut sodas out of my diet my stomach didnt get as distended.
I hope this helps and good luck.
I hope this helps and good luck.
I had the same problem prior to my tranplant and then it got worse after surgery. I had a liquid/solid stomach emptying study( it is a super easy test, but it take 6 hours) It showed that I have severe gastroparesis (slow emptying of the stomach). There are several medicines that can help with this. My GI and transplant doctor told me that it is fairly common with CF patients, especially if you also have CFRD. They also suggested that I eat 6 small meals instead of 3 largers ones, and I found that if I cut sodas out of my diet my stomach didnt get as distended.
I hope this helps and good luck.
I hope this helps and good luck.
I had the same problem prior to my tranplant and then it got worse after surgery. I had a liquid/solid stomach emptying study( it is a super easy test, but it take 6 hours) It showed that I have severe gastroparesis (slow emptying of the stomach). There are several medicines that can help with this. My GI and transplant doctor told me that it is fairly common with CF patients, especially if you also have CFRD. They also suggested that I eat 6 small meals instead of 3 largers ones, and I found that if I cut sodas out of my diet my stomach didnt get as distended.
I hope this helps and good luck.
I hope this helps and good luck.
I had the same problem prior to my tranplant and then it got worse after surgery. I had a liquid/solid stomach emptying study( it is a super easy test, but it take 6 hours) It showed that I have severe gastroparesis (slow emptying of the stomach). There are several medicines that can help with this. My GI and transplant doctor told me that it is fairly common with CF patients, especially if you also have CFRD. They also suggested that I eat 6 small meals instead of 3 largers ones, and I found that if I cut sodas out of my diet my stomach didnt get as distended.
I hope this helps and good luck.
I hope this helps and good luck.
I had the same problem prior to my tranplant and then it got worse after surgery. I had a liquid/solid stomach emptying study( it is a super easy test, but it take 6 hours) It showed that I have severe gastroparesis (slow emptying of the stomach). There are several medicines that can help with this. My GI and transplant doctor told me that it is fairly common with CF patients, especially if you also have CFRD. They also suggested that I eat 6 small meals instead of 3 largers ones, and I found that if I cut sodas out of my diet my stomach didnt get as distended.
<br />I hope this helps and good luck.
<br />I hope this helps and good luck.
If you have a Mic-Key,you can attach a bolus extension to it and it will help release the air from your stomach. If you do not have a bolus extension, they can be ordered from your homecare company. If your stomach is not empty when you decompress your stomach, you will need to attach a bag to the end of the bolus extension. I personally use something called a Farrell Valve Bag to decompress my stomach instead of a bag. It helps to release the air from my stomach. These bags can be obtained from your enteral supply company as well with a prescription. good luck to you.
If you have a Mic-Key,you can attach a bolus extension to it and it will help release the air from your stomach. If you do not have a bolus extension, they can be ordered from your homecare company. If your stomach is not empty when you decompress your stomach, you will need to attach a bag to the end of the bolus extension. I personally use something called a Farrell Valve Bag to decompress my stomach instead of a bag. It helps to release the air from my stomach. These bags can be obtained from your enteral supply company as well with a prescription. good luck to you.
If you have a Mic-Key,you can attach a bolus extension to it and it will help release the air from your stomach. If you do not have a bolus extension, they can be ordered from your homecare company. If your stomach is not empty when you decompress your stomach, you will need to attach a bag to the end of the bolus extension. I personally use something called a Farrell Valve Bag to decompress my stomach instead of a bag. It helps to release the air from my stomach. These bags can be obtained from your enteral supply company as well with a prescription. good luck to you.
If you have a Mic-Key,you can attach a bolus extension to it and it will help release the air from your stomach. If you do not have a bolus extension, they can be ordered from your homecare company. If your stomach is not empty when you decompress your stomach, you will need to attach a bag to the end of the bolus extension. I personally use something called a Farrell Valve Bag to decompress my stomach instead of a bag. It helps to release the air from my stomach. These bags can be obtained from your enteral supply company as well with a prescription. good luck to you.
If you have a Mic-Key,you can attach a bolus extension to it and it will help release the air from your stomach. If you do not have a bolus extension, they can be ordered from your homecare company. If your stomach is not empty when you decompress your stomach, you will need to attach a bag to the end of the bolus extension. I personally use something called a Farrell Valve Bag to decompress my stomach instead of a bag. It helps to release the air from my stomach. These bags can be obtained from your enteral supply company as well with a prescription. good luck to you.
randomgirl
New member
I have the EXACT same problem! And sometimes it's really bad (maybe for a few weeks or months) and sometimes its not so bad (like right now). I have no clue why it happens though. It's especially annoying when you have to wear size large shirts when your actually skinny with size 0 pants (since the stomach is so distended). But if you haven't cut out the soda's, then I would definately recommend it. I think it decreased some when I started doing some simple exercises. I don't know if that helped but it's worth a try<img src="i/expressions/face-icon-small-smile.gif" border="0">
randomgirl
New member
I have the EXACT same problem! And sometimes it's really bad (maybe for a few weeks or months) and sometimes its not so bad (like right now). I have no clue why it happens though. It's especially annoying when you have to wear size large shirts when your actually skinny with size 0 pants (since the stomach is so distended). But if you haven't cut out the soda's, then I would definately recommend it. I think it decreased some when I started doing some simple exercises. I don't know if that helped but it's worth a try<img src="i/expressions/face-icon-small-smile.gif" border="0">
randomgirl
New member
I have the EXACT same problem! And sometimes it's really bad (maybe for a few weeks or months) and sometimes its not so bad (like right now). I have no clue why it happens though. It's especially annoying when you have to wear size large shirts when your actually skinny with size 0 pants (since the stomach is so distended). But if you haven't cut out the soda's, then I would definately recommend it. I think it decreased some when I started doing some simple exercises. I don't know if that helped but it's worth a try<img src="i/expressions/face-icon-small-smile.gif" border="0">
randomgirl
New member
I have the EXACT same problem! And sometimes it's really bad (maybe for a few weeks or months) and sometimes its not so bad (like right now). I have no clue why it happens though. It's especially annoying when you have to wear size large shirts when your actually skinny with size 0 pants (since the stomach is so distended). But if you haven't cut out the soda's, then I would definately recommend it. I think it decreased some when I started doing some simple exercises. I don't know if that helped but it's worth a try<img src="i/expressions/face-icon-small-smile.gif" border="0">
randomgirl
New member
I have the EXACT same problem! And sometimes it's really bad (maybe for a few weeks or months) and sometimes its not so bad (like right now). I have no clue why it happens though. It's especially annoying when you have to wear size large shirts when your actually skinny with size 0 pants (since the stomach is so distended). But if you haven't cut out the soda's, then I would definately recommend it. I think it decreased some when I started doing some simple exercises. I don't know if that helped but it's worth a try<img src="i/expressions/face-icon-small-smile.gif" border="0">