Alex saw endo today.. CFRD?

[mysticrose]

Alex went to the Endo doc today. He was very helpful and full of new information for us. Next week we get to hook her up for a 24 hr/ish glucose monitor. I don't hold out much hope. Considering the fact that when we got home I checked her blood sugar and it was 152 at 4 hrs after her feeding tube. I'm just hoping the sugars I got at home were a fluke. I don't look forward to adding to her dianosises. So with all that said we are still going to go forward with the growth hormone shot. So here's for hoping she will be bigger than 4 ft 5 when she's an adult. It's yet another diagnosis for her, BUT she will prevail. As we have with the CF we will adjust and continue to move forward. She amazes me though. The kid is TOUGH! She has gone through so many hospital stays, mulitiple surgeries, medications and yet she still manages to smile. Today he sent her down to the lab to get blood drawn. First time in a LONG time since her port was put in 5 years ago that she's had blood taken from her arm. She just sat there and laughed with the lady taking her blood. She took 6 viles and Alex looks over and was like "That's it?" The lady was a little shocked till I said "CF" and it dawned on her.

Alex is still coughing pretty hard. Going off her last culture in December the CF doc put her on Bactrium. She just fineshed a round of keflex and it didn't do anything. So if this does't improve with in the first week of her taking the meds it's back to the doctor. I have a feeling the next month we just need to camp out at the hospital waiting room, LOL!!

The way the doc explained CFRD is it like type 1 diabetes? He said she'd more than likely become insluin dependant. This is a new part of CF for us. She was diagnosed with CFRD last year for a short time but it was when she was sick so we didn't have to deal with it for a prolonged period.
Jen.

 

[mysticrose]

Alex went to the Endo doc today. He was very helpful and full of new information for us. Next week we get to hook her up for a 24 hr/ish glucose monitor. I don't hold out much hope. Considering the fact that when we got home I checked her blood sugar and it was 152 at 4 hrs after her feeding tube. I'm just hoping the sugars I got at home were a fluke. I don't look forward to adding to her dianosises. So with all that said we are still going to go forward with the growth hormone shot. So here's for hoping she will be bigger than 4 ft 5 when she's an adult. It's yet another diagnosis for her, BUT she will prevail. As we have with the CF we will adjust and continue to move forward. She amazes me though. The kid is TOUGH! She has gone through so many hospital stays, mulitiple surgeries, medications and yet she still manages to smile. Today he sent her down to the lab to get blood drawn. First time in a LONG time since her port was put in 5 years ago that she's had blood taken from her arm. She just sat there and laughed with the lady taking her blood. She took 6 viles and Alex looks over and was like "That's it?" The lady was a little shocked till I said "CF" and it dawned on her.

Alex is still coughing pretty hard. Going off her last culture in December the CF doc put her on Bactrium. She just fineshed a round of keflex and it didn't do anything. So if this does't improve with in the first week of her taking the meds it's back to the doctor. I have a feeling the next month we just need to camp out at the hospital waiting room, LOL!!

The way the doc explained CFRD is it like type 1 diabetes? He said she'd more than likely become insluin dependant. This is a new part of CF for us. She was diagnosed with CFRD last year for a short time but it was when she was sick so we didn't have to deal with it for a prolonged period.
Jen.

 

[mysticrose]

Alex went to the Endo doc today. He was very helpful and full of new information for us. Next week we get to hook her up for a 24 hr/ish glucose monitor. I don't hold out much hope. Considering the fact that when we got home I checked her blood sugar and it was 152 at 4 hrs after her feeding tube. I'm just hoping the sugars I got at home were a fluke. I don't look forward to adding to her dianosises. So with all that said we are still going to go forward with the growth hormone shot. So here's for hoping she will be bigger than 4 ft 5 when she's an adult. It's yet another diagnosis for her, BUT she will prevail. As we have with the CF we will adjust and continue to move forward. She amazes me though. The kid is TOUGH! She has gone through so many hospital stays, mulitiple surgeries, medications and yet she still manages to smile. Today he sent her down to the lab to get blood drawn. First time in a LONG time since her port was put in 5 years ago that she's had blood taken from her arm. She just sat there and laughed with the lady taking her blood. She took 6 viles and Alex looks over and was like "That's it?" The lady was a little shocked till I said "CF" and it dawned on her.

Alex is still coughing pretty hard. Going off her last culture in December the CF doc put her on Bactrium. She just fineshed a round of keflex and it didn't do anything. So if this does't improve with in the first week of her taking the meds it's back to the doctor. I have a feeling the next month we just need to camp out at the hospital waiting room, LOL!!

The way the doc explained CFRD is it like type 1 diabetes? He said she'd more than likely become insluin dependant. This is a new part of CF for us. She was diagnosed with CFRD last year for a short time but it was when she was sick so we didn't have to deal with it for a prolonged period.
Jen.

 

[mysticrose]

Alex went to the Endo doc today. He was very helpful and full of new information for us. Next week we get to hook her up for a 24 hr/ish glucose monitor. I don't hold out much hope. Considering the fact that when we got home I checked her blood sugar and it was 152 at 4 hrs after her feeding tube. I'm just hoping the sugars I got at home were a fluke. I don't look forward to adding to her dianosises. So with all that said we are still going to go forward with the growth hormone shot. So here's for hoping she will be bigger than 4 ft 5 when she's an adult. It's yet another diagnosis for her, BUT she will prevail. As we have with the CF we will adjust and continue to move forward. She amazes me though. The kid is TOUGH! She has gone through so many hospital stays, mulitiple surgeries, medications and yet she still manages to smile. Today he sent her down to the lab to get blood drawn. First time in a LONG time since her port was put in 5 years ago that she's had blood taken from her arm. She just sat there and laughed with the lady taking her blood. She took 6 viles and Alex looks over and was like "That's it?" The lady was a little shocked till I said "CF" and it dawned on her.

Alex is still coughing pretty hard. Going off her last culture in December the CF doc put her on Bactrium. She just fineshed a round of keflex and it didn't do anything. So if this does't improve with in the first week of her taking the meds it's back to the doctor. I have a feeling the next month we just need to camp out at the hospital waiting room, LOL!!

The way the doc explained CFRD is it like type 1 diabetes? He said she'd more than likely become insluin dependant. This is a new part of CF for us. She was diagnosed with CFRD last year for a short time but it was when she was sick so we didn't have to deal with it for a prolonged period.
Jen.

 

[mysticrose]

Alex went to the Endo doc today. He was very helpful and full of new information for us. Next week we get to hook her up for a 24 hr/ish glucose monitor. I don't hold out much hope. Considering the fact that when we got home I checked her blood sugar and it was 152 at 4 hrs after her feeding tube. I'm just hoping the sugars I got at home were a fluke. I don't look forward to adding to her dianosises. So with all that said we are still going to go forward with the growth hormone shot. So here's for hoping she will be bigger than 4 ft 5 when she's an adult. It's yet another diagnosis for her, BUT she will prevail. As we have with the CF we will adjust and continue to move forward. She amazes me though. The kid is TOUGH! She has gone through so many hospital stays, mulitiple surgeries, medications and yet she still manages to smile. Today he sent her down to the lab to get blood drawn. First time in a LONG time since her port was put in 5 years ago that she's had blood taken from her arm. She just sat there and laughed with the lady taking her blood. She took 6 viles and Alex looks over and was like "That's it?" The lady was a little shocked till I said "CF" and it dawned on her.
<br />
<br />Alex is still coughing pretty hard. Going off her last culture in December the CF doc put her on Bactrium. She just fineshed a round of keflex and it didn't do anything. So if this does't improve with in the first week of her taking the meds it's back to the doctor. I have a feeling the next month we just need to camp out at the hospital waiting room, LOL!!
<br />
<br />The way the doc explained CFRD is it like type 1 diabetes? He said she'd more than likely become insluin dependant. This is a new part of CF for us. She was diagnosed with CFRD last year for a short time but it was when she was sick so we didn't have to deal with it for a prolonged period.
<br />Jen.

 

[dasjsmum]

No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset.

Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick. It is usually a slow onset and takes a while (if at all) before becoming insulin dependent. My daughter developed cfrd a little afew years ago and controlled it by diet.

As you can see, my son has type 1, it is completely separate and not related to his cf <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset.

Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick. It is usually a slow onset and takes a while (if at all) before becoming insulin dependent. My daughter developed cfrd a little afew years ago and controlled it by diet.

As you can see, my son has type 1, it is completely separate and not related to his cf <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset.

Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick. It is usually a slow onset and takes a while (if at all) before becoming insulin dependent. My daughter developed cfrd a little afew years ago and controlled it by diet.

As you can see, my son has type 1, it is completely separate and not related to his cf <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset.

Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick. It is usually a slow onset and takes a while (if at all) before becoming insulin dependent. My daughter developed cfrd a little afew years ago and controlled it by diet.

As you can see, my son has type 1, it is completely separate and not related to his cf <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[dasjsmum]

No, cfrd is different to type 1. Type 1 is caused by an immune response where your body attacks and destroys the beta cells which make insulin in the pancreas. Type 1 are insulin dependent from onset.
<br />
<br />Cfrd is caused by steroids like pregnisone, the pancreas not working properly and being sick. It is usually a slow onset and takes a while (if at all) before becoming insulin dependent. My daughter developed cfrd a little afew years ago and controlled it by diet.
<br />
<br />As you can see, my son has type 1, it is completely separate and not related to his cf <img src="i/expressions/face-icon-small-smile.gif" border="0">