momofcfprincess
New member
A few weeks ago my daughter was coughing up these hard dark greenish pieces in her sputum. I collected one and took it to her CF clinic. The results came back as high white blood cell count, bacteria and something else.....I don't remember what her doctor called it but said it was some kind of ALLERGIC REACTION. Her doctor said he has never seen it and would need to talk to some other doctors about it. Have any of you ever heard of this?? He took her off bactrim and cayston for now and wants to take her off Tobi too after the winter months. Since 2010 my daughter's lung function has continually decreased, she is 12 and her lung function is 49%. She has been hospitalized about 7 times since 2010. She only cultures staph and stenomalt... and in 2007 psuedo. Anyone have any thoughts or advice?? Please? Thanks for your help!