Hi Anne & welcome to the site. There is much support and information to be found here.
I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.
Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.
Stacey
I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.
Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.
Stacey