Alternatives to Tobramycin

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NYCLawGirl

New member
I used to do TOBI and Colistin cycles (1 month each) but now am on the AL study, so I'm doing that and TOBI in 28 day cycles.

Silly qusetion maybe, but I actually didn't know all these "IV meds" could be nebbed. Is nebbed meropenem helpful? Maybe I should try that, because I tend to repond to merrem in IV form. Also, is there a version of nebbed aztreonam other than the study drug?
 
N

NYCLawGirl

New member
I used to do TOBI and Colistin cycles (1 month each) but now am on the AL study, so I'm doing that and TOBI in 28 day cycles.

Silly qusetion maybe, but I actually didn't know all these "IV meds" could be nebbed. Is nebbed meropenem helpful? Maybe I should try that, because I tend to repond to merrem in IV form. Also, is there a version of nebbed aztreonam other than the study drug?
 
N

NYCLawGirl

New member
I used to do TOBI and Colistin cycles (1 month each) but now am on the AL study, so I'm doing that and TOBI in 28 day cycles.

Silly qusetion maybe, but I actually didn't know all these "IV meds" could be nebbed. Is nebbed meropenem helpful? Maybe I should try that, because I tend to repond to merrem in IV form. Also, is there a version of nebbed aztreonam other than the study drug?
 
N

NYCLawGirl

New member
I used to do TOBI and Colistin cycles (1 month each) but now am on the AL study, so I'm doing that and TOBI in 28 day cycles.

Silly qusetion maybe, but I actually didn't know all these "IV meds" could be nebbed. Is nebbed meropenem helpful? Maybe I should try that, because I tend to repond to merrem in IV form. Also, is there a version of nebbed aztreonam other than the study drug?
 
N

NYCLawGirl

New member
I used to do TOBI and Colistin cycles (1 month each) but now am on the AL study, so I'm doing that and TOBI in 28 day cycles.
<br />
<br />Silly qusetion maybe, but I actually didn't know all these "IV meds" could be nebbed. Is nebbed meropenem helpful? Maybe I should try that, because I tend to repond to merrem in IV form. Also, is there a version of nebbed aztreonam other than the study drug?
 
S

Skye

New member
Piper....I don't think this is a silly question. I am very confused by this. Is it easy to get a doc to prescribe meds like this to be reconstituted. If it is not a problem to do it this way, it seems like a much better and more effective alternative to IV's. What am I missing? Why wouldn't all docs be prescribing it this way instead of the traditional delivery method via IV. Is there a downside that I don't understand or is this just something that some docs are doing out there? Are all well-tolerated by most people?
 
S

Skye

New member
Piper....I don't think this is a silly question. I am very confused by this. Is it easy to get a doc to prescribe meds like this to be reconstituted. If it is not a problem to do it this way, it seems like a much better and more effective alternative to IV's. What am I missing? Why wouldn't all docs be prescribing it this way instead of the traditional delivery method via IV. Is there a downside that I don't understand or is this just something that some docs are doing out there? Are all well-tolerated by most people?
 
S

Skye

New member
Piper....I don't think this is a silly question. I am very confused by this. Is it easy to get a doc to prescribe meds like this to be reconstituted. If it is not a problem to do it this way, it seems like a much better and more effective alternative to IV's. What am I missing? Why wouldn't all docs be prescribing it this way instead of the traditional delivery method via IV. Is there a downside that I don't understand or is this just something that some docs are doing out there? Are all well-tolerated by most people?
 
S

Skye

New member
Piper....I don't think this is a silly question. I am very confused by this. Is it easy to get a doc to prescribe meds like this to be reconstituted. If it is not a problem to do it this way, it seems like a much better and more effective alternative to IV's. What am I missing? Why wouldn't all docs be prescribing it this way instead of the traditional delivery method via IV. Is there a downside that I don't understand or is this just something that some docs are doing out there? Are all well-tolerated by most people?
 
S

Skye

New member
Piper....I don't think this is a silly question. I am very confused by this. Is it easy to get a doc to prescribe meds like this to be reconstituted. If it is not a problem to do it this way, it seems like a much better and more effective alternative to IV's. What am I missing? Why wouldn't all docs be prescribing it this way instead of the traditional delivery method via IV. Is there a downside that I don't understand or is this just something that some docs are doing out there? Are all well-tolerated by most people?
 
T

tara

New member
Prescribing IV medication for inhalation is nothing new. Gentamicin and Tobramycin IV (not TOBI) have been prescribed for as long as I can remember. Personally, I started using them in the early 90's.

I think the downside is that you're using a drug "off label" and insurance companies frown on that. So do some doctors. Also, I have to pay my IV co-pay price for my "inhaled" IV drugs as well, and for me, that's more expensive, about $100/month. Another downside I can think of is that there are few to no studies about the side effects of each particular drug being used in this unconventional method.

Piper, the Aztreonam I'm using is IV Aztreonam. I started using it 4 years ago. I'm willing to bet my doctor saw the AL study and thought, "well, in the meantime I know some patients who could benefit from this drug RIGHT NOW, so why wait for AL." I'm totally making that up, but maybe it has some truth.

Another note. I'm using these unconventional methods (aztreonam IV and ceftaz IV) because I'm allergic to Colistin and I don't respond well to TOBI. Oral antibiotics might as well be candy, they don't do anything for me anymore, none of them. So other than IV antibiotics, this is all I've got. And for me, it works really well.

You do have to get a doc that will prescribe it though. It is off label use. I never had to ask for it. My doc suggested them.
 
T

tara

New member
Prescribing IV medication for inhalation is nothing new. Gentamicin and Tobramycin IV (not TOBI) have been prescribed for as long as I can remember. Personally, I started using them in the early 90's.

I think the downside is that you're using a drug "off label" and insurance companies frown on that. So do some doctors. Also, I have to pay my IV co-pay price for my "inhaled" IV drugs as well, and for me, that's more expensive, about $100/month. Another downside I can think of is that there are few to no studies about the side effects of each particular drug being used in this unconventional method.

Piper, the Aztreonam I'm using is IV Aztreonam. I started using it 4 years ago. I'm willing to bet my doctor saw the AL study and thought, "well, in the meantime I know some patients who could benefit from this drug RIGHT NOW, so why wait for AL." I'm totally making that up, but maybe it has some truth.

Another note. I'm using these unconventional methods (aztreonam IV and ceftaz IV) because I'm allergic to Colistin and I don't respond well to TOBI. Oral antibiotics might as well be candy, they don't do anything for me anymore, none of them. So other than IV antibiotics, this is all I've got. And for me, it works really well.

You do have to get a doc that will prescribe it though. It is off label use. I never had to ask for it. My doc suggested them.
 
T

tara

New member
Prescribing IV medication for inhalation is nothing new. Gentamicin and Tobramycin IV (not TOBI) have been prescribed for as long as I can remember. Personally, I started using them in the early 90's.

I think the downside is that you're using a drug "off label" and insurance companies frown on that. So do some doctors. Also, I have to pay my IV co-pay price for my "inhaled" IV drugs as well, and for me, that's more expensive, about $100/month. Another downside I can think of is that there are few to no studies about the side effects of each particular drug being used in this unconventional method.

Piper, the Aztreonam I'm using is IV Aztreonam. I started using it 4 years ago. I'm willing to bet my doctor saw the AL study and thought, "well, in the meantime I know some patients who could benefit from this drug RIGHT NOW, so why wait for AL." I'm totally making that up, but maybe it has some truth.

Another note. I'm using these unconventional methods (aztreonam IV and ceftaz IV) because I'm allergic to Colistin and I don't respond well to TOBI. Oral antibiotics might as well be candy, they don't do anything for me anymore, none of them. So other than IV antibiotics, this is all I've got. And for me, it works really well.

You do have to get a doc that will prescribe it though. It is off label use. I never had to ask for it. My doc suggested them.
 
T

tara

New member
Prescribing IV medication for inhalation is nothing new. Gentamicin and Tobramycin IV (not TOBI) have been prescribed for as long as I can remember. Personally, I started using them in the early 90's.

I think the downside is that you're using a drug "off label" and insurance companies frown on that. So do some doctors. Also, I have to pay my IV co-pay price for my "inhaled" IV drugs as well, and for me, that's more expensive, about $100/month. Another downside I can think of is that there are few to no studies about the side effects of each particular drug being used in this unconventional method.

Piper, the Aztreonam I'm using is IV Aztreonam. I started using it 4 years ago. I'm willing to bet my doctor saw the AL study and thought, "well, in the meantime I know some patients who could benefit from this drug RIGHT NOW, so why wait for AL." I'm totally making that up, but maybe it has some truth.

Another note. I'm using these unconventional methods (aztreonam IV and ceftaz IV) because I'm allergic to Colistin and I don't respond well to TOBI. Oral antibiotics might as well be candy, they don't do anything for me anymore, none of them. So other than IV antibiotics, this is all I've got. And for me, it works really well.

You do have to get a doc that will prescribe it though. It is off label use. I never had to ask for it. My doc suggested them.
 
T

tara

New member
Prescribing IV medication for inhalation is nothing new. Gentamicin and Tobramycin IV (not TOBI) have been prescribed for as long as I can remember. Personally, I started using them in the early 90's.
<br />
<br />I think the downside is that you're using a drug "off label" and insurance companies frown on that. So do some doctors. Also, I have to pay my IV co-pay price for my "inhaled" IV drugs as well, and for me, that's more expensive, about $100/month. Another downside I can think of is that there are few to no studies about the side effects of each particular drug being used in this unconventional method.
<br />
<br />Piper, the Aztreonam I'm using is IV Aztreonam. I started using it 4 years ago. I'm willing to bet my doctor saw the AL study and thought, "well, in the meantime I know some patients who could benefit from this drug RIGHT NOW, so why wait for AL." I'm totally making that up, but maybe it has some truth.
<br />
<br />Another note. I'm using these unconventional methods (aztreonam IV and ceftaz IV) because I'm allergic to Colistin and I don't respond well to TOBI. Oral antibiotics might as well be candy, they don't do anything for me anymore, none of them. So other than IV antibiotics, this is all I've got. And for me, it works really well.
<br />
<br />You do have to get a doc that will prescribe it though. It is off label use. I never had to ask for it. My doc suggested them.
 
S

Skye

New member
My doc has suggested reconstituted Tobra and Collistin as a future option; but, I guess I am not in need of either one at this point. Other more conventional treatments are still working along with some of the oral meds. Thanks for explaining Tara. I like it that you have a less conservative doc. More concerned about patient needs than liability. I know they have to protect the patient; but, there is a good balance of risk reward.

Karen
 
S

Skye

New member
My doc has suggested reconstituted Tobra and Collistin as a future option; but, I guess I am not in need of either one at this point. Other more conventional treatments are still working along with some of the oral meds. Thanks for explaining Tara. I like it that you have a less conservative doc. More concerned about patient needs than liability. I know they have to protect the patient; but, there is a good balance of risk reward.

Karen
 
S

Skye

New member
My doc has suggested reconstituted Tobra and Collistin as a future option; but, I guess I am not in need of either one at this point. Other more conventional treatments are still working along with some of the oral meds. Thanks for explaining Tara. I like it that you have a less conservative doc. More concerned about patient needs than liability. I know they have to protect the patient; but, there is a good balance of risk reward.

Karen
 
S

Skye

New member
My doc has suggested reconstituted Tobra and Collistin as a future option; but, I guess I am not in need of either one at this point. Other more conventional treatments are still working along with some of the oral meds. Thanks for explaining Tara. I like it that you have a less conservative doc. More concerned about patient needs than liability. I know they have to protect the patient; but, there is a good balance of risk reward.

Karen
 
S

Skye

New member
My doc has suggested reconstituted Tobra and Collistin as a future option; but, I guess I am not in need of either one at this point. Other more conventional treatments are still working along with some of the oral meds. Thanks for explaining Tara. I like it that you have a less conservative doc. More concerned about patient needs than liability. I know they have to protect the patient; but, there is a good balance of risk reward.
<br />
<br />Karen
 
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