Altitude?

M

mjflowergirl

New member
Hi Toby's Mom!

I, too, am in the Denver area and we visit the Denver (now Aurora) Children's CF Center. What a beautiful place it is now! Anyhoo, we've seen Dr. Laguna since Aiden was diagnosed at 3 weeks old (he's now 16 months). Unfortunately, she just informed us that she's leaving Denver and has accepted a position at the University of Minnesota. During that conversation I learned something interesting...

I have two different opinions to bring up on the topic of relocating- especially from Florida to Colorado... two VERY different climates. In Florida, you have the benefit of the ocean. Salt water. BIG deal. And I don't mean that sarcastically. They're doing studies on the benefits of living at or near sea level and specifically near the ocean because of the benefit of added salt and humidity in the air. Because CF is a problem with salt transfer, the added salt and humidity in the air at ocean side is thought to help out. Hypertonic Saline is actually inhaled SALT water (very, very basically speaking). So, it's easy to see how the correlation could be made. Also, here in Colorado we are VERY dry compared to Florida.

Now, what I learned yesterday from Dr Laguna is that scientists are starting to associate altitude with weight. And not necessarily in a good way. Colorado, while having one of the top rated CF Centers and some of the best doctors in the Country, is NOT one of the top rated for Weight/Nutritional Status nor are we high on the follow-up/routine testing charts. Now, like I said, this was coming from her... I had not known or heard of this before our appt yesterday.

So, there are things to think about... in fact, we were actually considering relocating to another region too... but one that is closer to the ocean and lower elevation. Log into CFF.org and you can review the care center data yourself... that might help you make the best decision for your family.

I know... this entire post sounded like a downer and reasons NOT to come here... don't get me wrong. I absolutely love it in Colorado- I was born and raised here. If you come here, I'm sure you'll love it too!!!
 
M

mjflowergirl

New member
Hi Toby's Mom!

I, too, am in the Denver area and we visit the Denver (now Aurora) Children's CF Center. What a beautiful place it is now! Anyhoo, we've seen Dr. Laguna since Aiden was diagnosed at 3 weeks old (he's now 16 months). Unfortunately, she just informed us that she's leaving Denver and has accepted a position at the University of Minnesota. During that conversation I learned something interesting...

I have two different opinions to bring up on the topic of relocating- especially from Florida to Colorado... two VERY different climates. In Florida, you have the benefit of the ocean. Salt water. BIG deal. And I don't mean that sarcastically. They're doing studies on the benefits of living at or near sea level and specifically near the ocean because of the benefit of added salt and humidity in the air. Because CF is a problem with salt transfer, the added salt and humidity in the air at ocean side is thought to help out. Hypertonic Saline is actually inhaled SALT water (very, very basically speaking). So, it's easy to see how the correlation could be made. Also, here in Colorado we are VERY dry compared to Florida.

Now, what I learned yesterday from Dr Laguna is that scientists are starting to associate altitude with weight. And not necessarily in a good way. Colorado, while having one of the top rated CF Centers and some of the best doctors in the Country, is NOT one of the top rated for Weight/Nutritional Status nor are we high on the follow-up/routine testing charts. Now, like I said, this was coming from her... I had not known or heard of this before our appt yesterday.

So, there are things to think about... in fact, we were actually considering relocating to another region too... but one that is closer to the ocean and lower elevation. Log into CFF.org and you can review the care center data yourself... that might help you make the best decision for your family.

I know... this entire post sounded like a downer and reasons NOT to come here... don't get me wrong. I absolutely love it in Colorado- I was born and raised here. If you come here, I'm sure you'll love it too!!!
 
M

mjflowergirl

New member
Hi Toby's Mom!

I, too, am in the Denver area and we visit the Denver (now Aurora) Children's CF Center. What a beautiful place it is now! Anyhoo, we've seen Dr. Laguna since Aiden was diagnosed at 3 weeks old (he's now 16 months). Unfortunately, she just informed us that she's leaving Denver and has accepted a position at the University of Minnesota. During that conversation I learned something interesting...

I have two different opinions to bring up on the topic of relocating- especially from Florida to Colorado... two VERY different climates. In Florida, you have the benefit of the ocean. Salt water. BIG deal. And I don't mean that sarcastically. They're doing studies on the benefits of living at or near sea level and specifically near the ocean because of the benefit of added salt and humidity in the air. Because CF is a problem with salt transfer, the added salt and humidity in the air at ocean side is thought to help out. Hypertonic Saline is actually inhaled SALT water (very, very basically speaking). So, it's easy to see how the correlation could be made. Also, here in Colorado we are VERY dry compared to Florida.

Now, what I learned yesterday from Dr Laguna is that scientists are starting to associate altitude with weight. And not necessarily in a good way. Colorado, while having one of the top rated CF Centers and some of the best doctors in the Country, is NOT one of the top rated for Weight/Nutritional Status nor are we high on the follow-up/routine testing charts. Now, like I said, this was coming from her... I had not known or heard of this before our appt yesterday.

So, there are things to think about... in fact, we were actually considering relocating to another region too... but one that is closer to the ocean and lower elevation. Log into CFF.org and you can review the care center data yourself... that might help you make the best decision for your family.

I know... this entire post sounded like a downer and reasons NOT to come here... don't get me wrong. I absolutely love it in Colorado- I was born and raised here. If you come here, I'm sure you'll love it too!!!
 
M

mjflowergirl

New member
Hi Toby's Mom!

I, too, am in the Denver area and we visit the Denver (now Aurora) Children's CF Center. What a beautiful place it is now! Anyhoo, we've seen Dr. Laguna since Aiden was diagnosed at 3 weeks old (he's now 16 months). Unfortunately, she just informed us that she's leaving Denver and has accepted a position at the University of Minnesota. During that conversation I learned something interesting...

I have two different opinions to bring up on the topic of relocating- especially from Florida to Colorado... two VERY different climates. In Florida, you have the benefit of the ocean. Salt water. BIG deal. And I don't mean that sarcastically. They're doing studies on the benefits of living at or near sea level and specifically near the ocean because of the benefit of added salt and humidity in the air. Because CF is a problem with salt transfer, the added salt and humidity in the air at ocean side is thought to help out. Hypertonic Saline is actually inhaled SALT water (very, very basically speaking). So, it's easy to see how the correlation could be made. Also, here in Colorado we are VERY dry compared to Florida.

Now, what I learned yesterday from Dr Laguna is that scientists are starting to associate altitude with weight. And not necessarily in a good way. Colorado, while having one of the top rated CF Centers and some of the best doctors in the Country, is NOT one of the top rated for Weight/Nutritional Status nor are we high on the follow-up/routine testing charts. Now, like I said, this was coming from her... I had not known or heard of this before our appt yesterday.

So, there are things to think about... in fact, we were actually considering relocating to another region too... but one that is closer to the ocean and lower elevation. Log into CFF.org and you can review the care center data yourself... that might help you make the best decision for your family.

I know... this entire post sounded like a downer and reasons NOT to come here... don't get me wrong. I absolutely love it in Colorado- I was born and raised here. If you come here, I'm sure you'll love it too!!!
 
M

mjflowergirl

New member
Hi Toby's Mom!
<br />
<br />I, too, am in the Denver area and we visit the Denver (now Aurora) Children's CF Center. What a beautiful place it is now! Anyhoo, we've seen Dr. Laguna since Aiden was diagnosed at 3 weeks old (he's now 16 months). Unfortunately, she just informed us that she's leaving Denver and has accepted a position at the University of Minnesota. During that conversation I learned something interesting...
<br />
<br />I have two different opinions to bring up on the topic of relocating- especially from Florida to Colorado... two VERY different climates. In Florida, you have the benefit of the ocean. Salt water. BIG deal. And I don't mean that sarcastically. They're doing studies on the benefits of living at or near sea level and specifically near the ocean because of the benefit of added salt and humidity in the air. Because CF is a problem with salt transfer, the added salt and humidity in the air at ocean side is thought to help out. Hypertonic Saline is actually inhaled SALT water (very, very basically speaking). So, it's easy to see how the correlation could be made. Also, here in Colorado we are VERY dry compared to Florida.
<br />
<br />Now, what I learned yesterday from Dr Laguna is that scientists are starting to associate altitude with weight. And not necessarily in a good way. Colorado, while having one of the top rated CF Centers and some of the best doctors in the Country, is NOT one of the top rated for Weight/Nutritional Status nor are we high on the follow-up/routine testing charts. Now, like I said, this was coming from her... I had not known or heard of this before our appt yesterday.
<br />
<br />So, there are things to think about... in fact, we were actually considering relocating to another region too... but one that is closer to the ocean and lower elevation. Log into CFF.org and you can review the care center data yourself... that might help you make the best decision for your family.
<br />
<br />I know... this entire post sounded like a downer and reasons NOT to come here... don't get me wrong. I absolutely love it in Colorado- I was born and raised here. If you come here, I'm sure you'll love it too!!!
 
J

Juliet

New member
Colorado, especially up in the mountains is a gorgeous place! But....

I was out in Denver about 10 years ago for 2 weeks for a work project (noise measurements at the then new airport). So I was out in the field working. Back then I didn't know I had CF but I experienced major shortness of breath. I couldn't sleep at night. I'd wake up gasping for air. The altitude was about 5000 Ft MSL.

My cousin got married at the top of one of the mountains (Winter Park I think it was) about 15 years ago. It was about 8000 Ft MSL. I couldn't hardly walk across the room without panting for breath. This was back when my FEV #s were well into the 80s or higher. Again I couldn't sleep at night (hotel was at the base of the mountain about 6000 Ft or so). It was truly frightening. Back then I didn't know I had CF. So I didn't really understand what was happening or why!

They say you get acclimated to the altitude. Maybe. I avoid Denver, even just flying through Denver airport is bad for me. ~Juliet
 
J

Juliet

New member
Colorado, especially up in the mountains is a gorgeous place! But....

I was out in Denver about 10 years ago for 2 weeks for a work project (noise measurements at the then new airport). So I was out in the field working. Back then I didn't know I had CF but I experienced major shortness of breath. I couldn't sleep at night. I'd wake up gasping for air. The altitude was about 5000 Ft MSL.

My cousin got married at the top of one of the mountains (Winter Park I think it was) about 15 years ago. It was about 8000 Ft MSL. I couldn't hardly walk across the room without panting for breath. This was back when my FEV #s were well into the 80s or higher. Again I couldn't sleep at night (hotel was at the base of the mountain about 6000 Ft or so). It was truly frightening. Back then I didn't know I had CF. So I didn't really understand what was happening or why!

They say you get acclimated to the altitude. Maybe. I avoid Denver, even just flying through Denver airport is bad for me. ~Juliet
 
J

Juliet

New member
Colorado, especially up in the mountains is a gorgeous place! But....

I was out in Denver about 10 years ago for 2 weeks for a work project (noise measurements at the then new airport). So I was out in the field working. Back then I didn't know I had CF but I experienced major shortness of breath. I couldn't sleep at night. I'd wake up gasping for air. The altitude was about 5000 Ft MSL.

My cousin got married at the top of one of the mountains (Winter Park I think it was) about 15 years ago. It was about 8000 Ft MSL. I couldn't hardly walk across the room without panting for breath. This was back when my FEV #s were well into the 80s or higher. Again I couldn't sleep at night (hotel was at the base of the mountain about 6000 Ft or so). It was truly frightening. Back then I didn't know I had CF. So I didn't really understand what was happening or why!

They say you get acclimated to the altitude. Maybe. I avoid Denver, even just flying through Denver airport is bad for me. ~Juliet
 
J

Juliet

New member
Colorado, especially up in the mountains is a gorgeous place! But....

I was out in Denver about 10 years ago for 2 weeks for a work project (noise measurements at the then new airport). So I was out in the field working. Back then I didn't know I had CF but I experienced major shortness of breath. I couldn't sleep at night. I'd wake up gasping for air. The altitude was about 5000 Ft MSL.

My cousin got married at the top of one of the mountains (Winter Park I think it was) about 15 years ago. It was about 8000 Ft MSL. I couldn't hardly walk across the room without panting for breath. This was back when my FEV #s were well into the 80s or higher. Again I couldn't sleep at night (hotel was at the base of the mountain about 6000 Ft or so). It was truly frightening. Back then I didn't know I had CF. So I didn't really understand what was happening or why!

They say you get acclimated to the altitude. Maybe. I avoid Denver, even just flying through Denver airport is bad for me. ~Juliet
 
J

Juliet

New member
Colorado, especially up in the mountains is a gorgeous place! But....
<br />
<br />I was out in Denver about 10 years ago for 2 weeks for a work project (noise measurements at the then new airport). So I was out in the field working. Back then I didn't know I had CF but I experienced major shortness of breath. I couldn't sleep at night. I'd wake up gasping for air. The altitude was about 5000 Ft MSL.
<br />
<br />My cousin got married at the top of one of the mountains (Winter Park I think it was) about 15 years ago. It was about 8000 Ft MSL. I couldn't hardly walk across the room without panting for breath. This was back when my FEV #s were well into the 80s or higher. Again I couldn't sleep at night (hotel was at the base of the mountain about 6000 Ft or so). It was truly frightening. Back then I didn't know I had CF. So I didn't really understand what was happening or why!
<br />
<br />They say you get acclimated to the altitude. Maybe. I avoid Denver, even just flying through Denver airport is bad for me. ~Juliet
 
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