Am I diabetic??..I had a crazy thing happen to me today :(

C

carly23

New member
So today I woke up had a bowl of frosted mini wheats like always and then 3 hours later I all of a sudden got real hot i started to sweat, i was very shaky and got super hungry?...

This isnt the first time this has happend but as well it doesnt happen everyday...Ive had a glucose test done and drank the syrup stuff last month my numbers were good but was told i am borderline of being diabetic.

So do any of you cfer's get this??..it was so scary my muscles got so weak and i was dizzy, sweating, shaky, and jus was so hungry but i had ate and drank a dr pepper..

This was scary and not sure what i should do..should i start logging this down in a notebook?..i do have a glucose meter from courtney who had cf but passed away <img src="i/expressions/face-icon-small-sad.gif" border="0"> ...thing is the blood strips are 25$ and thats alot for me is there a way it can be coverd ? I know im not diabetic but didn know if my docs office culd set it up to work ...whats ur opinions? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

carly23

New member
So today I woke up had a bowl of frosted mini wheats like always and then 3 hours later I all of a sudden got real hot i started to sweat, i was very shaky and got super hungry?...

This isnt the first time this has happend but as well it doesnt happen everyday...Ive had a glucose test done and drank the syrup stuff last month my numbers were good but was told i am borderline of being diabetic.

So do any of you cfer's get this??..it was so scary my muscles got so weak and i was dizzy, sweating, shaky, and jus was so hungry but i had ate and drank a dr pepper..

This was scary and not sure what i should do..should i start logging this down in a notebook?..i do have a glucose meter from courtney who had cf but passed away <img src="i/expressions/face-icon-small-sad.gif" border="0"> ...thing is the blood strips are 25$ and thats alot for me is there a way it can be coverd ? I know im not diabetic but didn know if my docs office culd set it up to work ...whats ur opinions? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
C

carly23

New member
So today I woke up had a bowl of frosted mini wheats like always and then 3 hours later I all of a sudden got real hot i started to sweat, i was very shaky and got super hungry?...
<br />
<br />This isnt the first time this has happend but as well it doesnt happen everyday...Ive had a glucose test done and drank the syrup stuff last month my numbers were good but was told i am borderline of being diabetic.
<br />
<br />So do any of you cfer's get this??..it was so scary my muscles got so weak and i was dizzy, sweating, shaky, and jus was so hungry but i had ate and drank a dr pepper..
<br />
<br />This was scary and not sure what i should do..should i start logging this down in a notebook?..i do have a glucose meter from courtney who had cf but passed away <img src="i/expressions/face-icon-small-sad.gif" border="0"> ...thing is the blood strips are 25$ and thats alot for me is there a way it can be coverd ? I know im not diabetic but didn know if my docs office culd set it up to work ...whats ur opinions? <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Ldude916

New member
Eeek! Low blood sugars can be very dangerous if you're not able to treat them in time like you did above. You can have CF Related Diabetes and it's normal for blood sugars to be inconsistent and all over the place for some people...so even if you passed the glucose test, another day you may not. I find that eating sugary/carb loaded food in the AM causes my blood sugar to drop like that too, and I've seen other CF'ers with that symptom. Check out the post on 3/21 called "hypoglycemia in CF "

I don't think you should rule out the fact that you may be diabetic. CFRD works very differently than regular diabetes. I think you need to contact your CF doc ASAP and get setup with an endocrinologist familiar with CFRD. I think it would be wise for the Endo to get you setup with a meter, test strips and a 3 days continuous glucose monitoring test (my endo gave it to me for free)....it monitors your blood sugar trends over the course of 3 days and helps prove your need for diabetic support.

Are you on medicaid/medicare - b/c I think they pay for test strips....Private insurance will often cover some percentage of test strips, but they can still be pricey under insurance. I think accu-check may have a discount program (https://www.accu-chekconnect.com/connect/index.html). Check into free programs offering test strips, esp. for low income (if that is your particular situation)...maybe these links will help:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.org/
">http://www.rxassist.org/
</a>
https://www.pparx.org/Intro.php
<a target=_blank class=ftalternatingbarlinklarge href="http://www.needymeds.com/
">http://www.needymeds.com/
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.phrma.org/
">http://www.phrma.org/
</a>

There is another thread in this section called something like "frustrating clinic visit", where several posters talk more about CFRD and the glucose test...check that out. In my opinion, you need get this addressed right away, because too low blood sugar can cause you to pass out/coma and if no one is around to help you, it is very dangerous. Good luck!
 
L

Ldude916

New member
Eeek! Low blood sugars can be very dangerous if you're not able to treat them in time like you did above. You can have CF Related Diabetes and it's normal for blood sugars to be inconsistent and all over the place for some people...so even if you passed the glucose test, another day you may not. I find that eating sugary/carb loaded food in the AM causes my blood sugar to drop like that too, and I've seen other CF'ers with that symptom. Check out the post on 3/21 called "hypoglycemia in CF "

I don't think you should rule out the fact that you may be diabetic. CFRD works very differently than regular diabetes. I think you need to contact your CF doc ASAP and get setup with an endocrinologist familiar with CFRD. I think it would be wise for the Endo to get you setup with a meter, test strips and a 3 days continuous glucose monitoring test (my endo gave it to me for free)....it monitors your blood sugar trends over the course of 3 days and helps prove your need for diabetic support.

Are you on medicaid/medicare - b/c I think they pay for test strips....Private insurance will often cover some percentage of test strips, but they can still be pricey under insurance. I think accu-check may have a discount program (https://www.accu-chekconnect.com/connect/index.html). Check into free programs offering test strips, esp. for low income (if that is your particular situation)...maybe these links will help:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.org/
">http://www.rxassist.org/
</a>
https://www.pparx.org/Intro.php
<a target=_blank class=ftalternatingbarlinklarge href="http://www.needymeds.com/
">http://www.needymeds.com/
</a>
<a target=_blank class=ftalternatingbarlinklarge href="http://www.phrma.org/
">http://www.phrma.org/
</a>

There is another thread in this section called something like "frustrating clinic visit", where several posters talk more about CFRD and the glucose test...check that out. In my opinion, you need get this addressed right away, because too low blood sugar can cause you to pass out/coma and if no one is around to help you, it is very dangerous. Good luck!
 
L

Ldude916

New member
Eeek! Low blood sugars can be very dangerous if you're not able to treat them in time like you did above. You can have CF Related Diabetes and it's normal for blood sugars to be inconsistent and all over the place for some people...so even if you passed the glucose test, another day you may not. I find that eating sugary/carb loaded food in the AM causes my blood sugar to drop like that too, and I've seen other CF'ers with that symptom. Check out the post on 3/21 called "hypoglycemia in CF "
<br />
<br />I don't think you should rule out the fact that you may be diabetic. CFRD works very differently than regular diabetes. I think you need to contact your CF doc ASAP and get setup with an endocrinologist familiar with CFRD. I think it would be wise for the Endo to get you setup with a meter, test strips and a 3 days continuous glucose monitoring test (my endo gave it to me for free)....it monitors your blood sugar trends over the course of 3 days and helps prove your need for diabetic support.
<br />
<br />Are you on medicaid/medicare - b/c I think they pay for test strips....Private insurance will often cover some percentage of test strips, but they can still be pricey under insurance. I think accu-check may have a discount program (https://www.accu-chekconnect.com/connect/index.html). Check into free programs offering test strips, esp. for low income (if that is your particular situation)...maybe these links will help:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.org/
<br />">http://www.rxassist.org/
<br /></a>
<br />https://www.pparx.org/Intro.php
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.needymeds.com/
<br />">http://www.needymeds.com/
<br /></a>
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.phrma.org/
<br />">http://www.phrma.org/
<br /></a>
<br />
<br />There is another thread in this section called something like "frustrating clinic visit", where several posters talk more about CFRD and the glucose test...check that out. In my opinion, you need get this addressed right away, because too low blood sugar can cause you to pass out/coma and if no one is around to help you, it is very dangerous. Good luck!
 
C

carly23

New member
Thankyou for your response!..i do have 3 insurances cigna, medicare, and medicaid <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wil be calllin my doctor tomorow..your right it is very scary i mean its crazy and very scary when your trying to get to the kitchen to get smethn in you because you feel as if your going to pass out :-/
 
C

carly23

New member
Thankyou for your response!..i do have 3 insurances cigna, medicare, and medicaid <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wil be calllin my doctor tomorow..your right it is very scary i mean its crazy and very scary when your trying to get to the kitchen to get smethn in you because you feel as if your going to pass out :-/
 
C

carly23

New member
Thankyou for your response!..i do have 3 insurances cigna, medicare, and medicaid <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wil be calllin my doctor tomorow..your right it is very scary i mean its crazy and very scary when your trying to get to the kitchen to get smethn in you because you feel as if your going to pass out :-/
 
M

MCGrad2006

Guest
I have had the same problems in the past. I would get the shakes real bad and sweat...all that good stuff. My doctor was very adamant that it was not CFRD but reluctantly had me set up with a glucose meter.

I was able to register with ABBOTT diabetes care and got a free meter (Freestyle Lite). My insurance covers the entire cost of the test strips and I buy the Lancets at Walmart...usually any brand works, so whatever is cheapest. I found after monitoring during those attacks that I was low but not usually below 70. I was more frequently HIGH and at this point we are not concerned because my sugars were never above 200.

I don't have the attacks as much anymore, but with the meter I was able to shake it off. The anxiety that I was becoming diabetic has ceased because I can now monitor myself better and make healthier choices. I do still occasionally check my sugars, but I don't feel the need to as often. Like a few weeks ago when I was on Prednisone I checked a few times (and they were high) but my doctor was not concerned...and after I was done with the prednisone I was back to normal (so to speak).
 
M

MCGrad2006

Guest
I have had the same problems in the past. I would get the shakes real bad and sweat...all that good stuff. My doctor was very adamant that it was not CFRD but reluctantly had me set up with a glucose meter.

I was able to register with ABBOTT diabetes care and got a free meter (Freestyle Lite). My insurance covers the entire cost of the test strips and I buy the Lancets at Walmart...usually any brand works, so whatever is cheapest. I found after monitoring during those attacks that I was low but not usually below 70. I was more frequently HIGH and at this point we are not concerned because my sugars were never above 200.

I don't have the attacks as much anymore, but with the meter I was able to shake it off. The anxiety that I was becoming diabetic has ceased because I can now monitor myself better and make healthier choices. I do still occasionally check my sugars, but I don't feel the need to as often. Like a few weeks ago when I was on Prednisone I checked a few times (and they were high) but my doctor was not concerned...and after I was done with the prednisone I was back to normal (so to speak).
 
M

MCGrad2006

Guest
I have had the same problems in the past. I would get the shakes real bad and sweat...all that good stuff. My doctor was very adamant that it was not CFRD but reluctantly had me set up with a glucose meter.
<br />
<br />I was able to register with ABBOTT diabetes care and got a free meter (Freestyle Lite). My insurance covers the entire cost of the test strips and I buy the Lancets at Walmart...usually any brand works, so whatever is cheapest. I found after monitoring during those attacks that I was low but not usually below 70. I was more frequently HIGH and at this point we are not concerned because my sugars were never above 200.
<br />
<br />I don't have the attacks as much anymore, but with the meter I was able to shake it off. The anxiety that I was becoming diabetic has ceased because I can now monitor myself better and make healthier choices. I do still occasionally check my sugars, but I don't feel the need to as often. Like a few weeks ago when I was on Prednisone I checked a few times (and they were high) but my doctor was not concerned...and after I was done with the prednisone I was back to normal (so to speak).
 
M

mamaScarlett

Active member
Is this the first time this has happened? If not, is it always after eating a high carb or sugary meal? If they said you are borderline then its sure possible its cfrd.
I would track it for a while-maybe do a food diary for the next few weeks and whenever you feel like that again you can look for a connection between what you've eaten.
On a side note, a few years back I was getting these episodes of hot/sweaty flashes, shaking, blinking out. I was sure it was sugar related, but after extensive testing it turned out to be panic attacks. It threw me for a loop bc when I'd get them, I wouldn't really be feeling panicky or stressed at the time per se, they'd just happen. But often, thats how panic attacks are.
Your description sounds alot like my panic attacks.
But it sounds sugar related too, so I'd get it checked.
Just another perspective.
 
M

mamaScarlett

Active member
Is this the first time this has happened? If not, is it always after eating a high carb or sugary meal? If they said you are borderline then its sure possible its cfrd.
I would track it for a while-maybe do a food diary for the next few weeks and whenever you feel like that again you can look for a connection between what you've eaten.
On a side note, a few years back I was getting these episodes of hot/sweaty flashes, shaking, blinking out. I was sure it was sugar related, but after extensive testing it turned out to be panic attacks. It threw me for a loop bc when I'd get them, I wouldn't really be feeling panicky or stressed at the time per se, they'd just happen. But often, thats how panic attacks are.
Your description sounds alot like my panic attacks.
But it sounds sugar related too, so I'd get it checked.
Just another perspective.
 
M

mamaScarlett

Active member
Is this the first time this has happened? If not, is it always after eating a high carb or sugary meal? If they said you are borderline then its sure possible its cfrd.
<br />I would track it for a while-maybe do a food diary for the next few weeks and whenever you feel like that again you can look for a connection between what you've eaten.
<br />On a side note, a few years back I was getting these episodes of hot/sweaty flashes, shaking, blinking out. I was sure it was sugar related, but after extensive testing it turned out to be panic attacks. It threw me for a loop bc when I'd get them, I wouldn't really be feeling panicky or stressed at the time per se, they'd just happen. But often, thats how panic attacks are.
<br />Your description sounds alot like my panic attacks.
<br />But it sounds sugar related too, so I'd get it checked.
<br />Just another perspective.
 
C

carly23

New member
I called my doctor and let them be aware <img src="i/expressions/face-icon-small-smile.gif" border="0"> ...so waiting for a call back!
 
C

carly23

New member
I called my doctor and let them be aware <img src="i/expressions/face-icon-small-smile.gif" border="0"> ...so waiting for a call back!
 
C

carly23

New member
I called my doctor and let them be aware <img src="i/expressions/face-icon-small-smile.gif" border="0"> ...so waiting for a call back!
 
R

rubyroselee

New member
Carly,

Check out my recent post on "hypoglycemia in CF". This is definitely something that happens in CF and has happened to me for 10+ years. The information on there will tell you how to overcome the low sugars and what types of food to eat, as well as eating every 2 hours in the morning to get past the lows. PM me your e-mail and I can share the full articles with you on hypoglycemia in CF.
 
R

rubyroselee

New member
Carly,

Check out my recent post on "hypoglycemia in CF". This is definitely something that happens in CF and has happened to me for 10+ years. The information on there will tell you how to overcome the low sugars and what types of food to eat, as well as eating every 2 hours in the morning to get past the lows. PM me your e-mail and I can share the full articles with you on hypoglycemia in CF.
 
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